I'm sure everyone will agree with that statement! Heh heh. But
hello anyway to you all.

I've had one consultation so far with my sleep doc and been dignosed
with Narcolepsy with apparently 'classic' symptoms. I know I'll
have to insist I get the proper scans and stuff to make sure I've
got N or something else 'cos obviously I'd rather have something
curable *sigh* so that I can get some real sleep instead of living
on stimulants.

I know I've got to go back to my doc to talk about what to do after
after my first consultation finally after years of EDS and the fact
I've started collapsing more and of course the weird hallucinations
and not knowing what reality I'm waking up in from day to day.

I only managed to get to a sleep doctor after deciding after of
years of depression that I wasn't actually depressed, but incredibly
tired all the time!

I've just had a week of Provigil which brought the hallucinations
into the day and had a really bad effect on me, the side effects
were very, very bad. It was quite funny though watching a
photograph of my husband playing guitar, pity there was no sound
though *heh heh*!

I know I've got to talk this through with the doc - my GP's useless
for help of any kind on this - and you know that feeling of trying
to ask the right questions when you're too tired to make sure you've
asked the right ones (and after all, they're taking charge of the
consultation and not you right) when you're talking to the sleep
doc? Anyone got any hints on that? :-(

I can no longer work properly in the office and I'm either going to
have to quit or they're going to have to fire me I guess - does
anyone know if I should wait for them to fire me on medical grounds
or if I should just quit???? Which would be best??? PLEASE
HELP!!

My union rep is too busy to catch and I'm going bananas now full
stop! Like I said - my doctor WON'T help! My boss doesn't like me
so please don't suggest to ask her for help! She WON'T understand -
they've got all the information off the net I can provide about
Narcolepsy anyway. Once I lose my income either way I'm THROUGH!!!

I'm in pain all the time and tired and the hallucinations have been
driving me crazy for years and years and years!! I'm only nearly
21!!! I'm sick of being called a liar and lazy and pathetic. My ex
even used to beat me up for being lazy when I just fell asleep
places and left me where I was if I collapsed when I was out.

Really - I've got NO support except the moral support of my husband
(who it would appear has sleep apnea *sigh*) cos he really does
understand. I've even been referred to a psychiatrist cos I thought
I was going crazy. I know it's a long shot but PLEASE can anyone
help????!!!!!!!! Please - with love, Lupi xx