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Xyrem available in Wisconsin   Message List  
Reply | Forward Message #1080 of 2876 |
Re: [Narcolepsy-Chat] type


Hi, its bed-time (2.30 a.m. ;-) - i wasnt tired 20 mins ago - I am now ;)
- Was finishing off emails & such.. - website design etc..)

Anyway, my fiancee has Narcolepsy.. (Her doctors dont actually know what
she has, but Ive "briefly" read your list & some symptoms she has described
- Is Narcolepsy..)

As for me - I dont think Im narcoleptic or anything - No sleep 'atacks'
during daytime - just excessivly tired, & weak.. - Although its constant -
all the time... - Night times im a lot better - for some reason, i like
staying up late - hate getting up early :-( (even after 6 hours, 8 hours,
10, 12 or 16 hours sleep - Same thing..)

During weekdays, I get 6-8 hours, on weekends i get 8-12 (i'll explain later)..

ok - thanks.. - I'll go to bed, & re-read it tomorow...

goodnight..

G



At 02:16 AM 4/2/03, you wrote:

>Oh boy Gordon have you asked the million dollar question actually!
>
>This is only my version of N...the way that I "sort" N and how I am able
>to better understand N.
>
>There is N with Cataplexy and N without Cataplexy.
>
>Basically two groups that the science world puts us in, but a good doc
>will realize that it is not that cut and dry by any means.
>
>There are many symptoms that a PWN (person with N) can have, some have all
>the symptoms and some have none other then EDS (excessive daytime
>sleepiness). I personally suffer from all of the symptoms including
>Cataplexy, one of my best friend's who also has N has EDS only.
>
>Below I am going to list some of the symptoms for you as well as the only
>medical form of being






Tue Apr 1, 2003 2:43 pm

gordonisnz
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Message #1080 of 2876 |
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Unlike most other states, until a month ago, no narcoleptic could receive Xyrem unless they had already been part of a study. That counted me out. But my...
Jan and John Saecker
w2771circle
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Mar 31, 2003
1:20 am

Hi there are there many types of Narcolepsy ? I dont fall asleep or anything, But i am constantly tired... G....
Gordon Stewart
gordonisnz
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Mar 31, 2003
9:49 am

Narcolepsy usually has a variety of symptoms, and tired is not the same as sleepy. Some of us see dreams, like a transparent movie, while we're awake: ...
Jan and John Saecker
w2771circle
Offline Send Email
Mar 31, 2003
5:07 pm

... Ah - ok - Yup.. my fiancee has Narcolepsy.. (has bad dreams etc..) although sghe says her doctors dont know if it is narcolepsy - Doesnt meet the ...
Gordon Stewart
gordonisnz
Online Now Send Email
Apr 1, 2003
10:00 am

Oh boy Gordon have you asked the million dollar question actually! This is only my version of N...the way that I "sort" N and how I am able to better...
J Bahr
jbahr007
Offline Send Email
Apr 1, 2003
2:16 pm

Hi, its bed-time (2.30 a.m. ;-) - i wasnt tired 20 mins ago - I am now ;) - Was finishing off emails & such.. - website design etc..) Anyway, my fiancee has...
Gordon Stewart
gordonisnz
Online Now Send Email
Apr 1, 2003
2:37 pm
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