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NW_Families_with_Heart · NW Familes with Heart
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Description

Families of children with Hypoplastic Left Heart Syndrome and other Congenital Heart Defects in the Pacific Northwest (Oregon, Washington, Idaho) unite to support each other. Although regionally based, anyone who wants to talk with other "heart families" about how congenital heart disease affects their lives and their children is welcome to join.

In addition to an e-mail support group, "NW Families With Heart" is also an organized network of families and healthcare providers that is affiliated with Doernbecher Children's Hospital in Portland, OR.

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in search of a neurocardiologist?
My daughter(5yrs old)who has had several open heart surgeries is now having some other problems that is requiring us to see a neurologist soon. I was wondering
Posted - Mon Dec 28, 2009 3:01 am
 SomerG
somergill
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parents of child who had the ross procedure at young age
I was just recently contacted by a dad whose 3 yr old son will be having the Ross Procedure this spring. He would love to "talk" with other parents who have a
Posted - Sat Dec 26, 2009 4:00 pm
 michelle: Kids With H...
kidswithheart
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Re: learning disabilities?
Darla, I could spend hours collecting articles that show a link between neurodevelopmental delay and chd, the following article is just one that showed up in a
Posted - Wed Dec 9, 2009 3:27 am
 Heather Helmy
hhelmyrd
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learning disabilities?
Hello, Landon is having trouble in first grade. He will be scheduled to have a learning test here soon. I truly think because Landon didn't go to preschool,
Posted - Tue Dec 8, 2009 9:42 pm
 Darla Bell
dancedrill
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Pulmonary Valve Transcather Replacement Clinical Trial Patients need
I received a request from the Senior Manager, Sarah Huoh, and Edwards Life Science to help spread the word that participants are needed for the Pulmonary Valve
Posted - Tue Nov 24, 2009 1:23 am
 michelle: Kids With H...
kidswithheart
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 23 9 14 7 2 9 4 2 1 3 4
2008 9 11 7 13 3 6 9 1 2 4 8 1
2007 30 41 24 30 17 12 34 26 17 10 4 1
2006 30 46 29 28 32 31 18 34 20 12 25 13
2005 63 34 24 27 16 23 39 17 24 24 18 32
2004 11 36 23 37 37 37 31 77 53 47 39 27
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Related Link: http://www.ohsuhealth.com/dch/
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