Families of children with Hypoplastic Left Heart Syndrome and other Congenital Heart Defects in the Pacific Northwest (Oregon, Washington, Idaho) unite to support each other. Although regionally based, anyone who wants to talk with other "heart families" about how congenital heart disease affects their lives and their children is welcome to join.
In addition to an e-mail support group, "NW Families With Heart" is also an organized network of families and healthcare providers that is affiliated with Doernbecher Children's Hospital in Portland, OR.
Hi all, Thanks to those who have already contacted me to sign on to the letter. The most recent version is attached, and I hope that other groups will be able
Photo submissions are now being accepted for the 2010 CHD calendar. Photos can be submitted of anyone born with a heart defect (adult or child), living or
This is the awesome new patch product that I sent the Med Page Article out about in March. The inventor contacted us and asked us to help promote it. This is