NW_Families_with_Heart : NW Familes with Heart

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Families of children with Hypoplastic Left Heart Syndrome and other Congenital Heart Defects in the Pacific Northwest (Oregon, Washington, Idaho) unite to support each other. Although regionally based, anyone who wants to talk with other "heart families" about how congenital heart disease affects their lives and their children is welcome to join.

In addition to an e-mail support group, "NW Families With Heart" is also an organized network of families and healthcare providers that is affiliated with Doernbecher Children's Hospital in Portland, OR.

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dandy walker syndrome with hlhs This was on another list I am on. If you know of someone, please have them contact me a.s.a.p. Thank you so much! Hello - I have a cousin who's three month Posted - Tue Apr 30, 2013 1:39 am	michelle rintamaki kidswithheart Send Email
Please Like Our New Page Please go to www.kidswithheart.org and "like" us on Facebook!!! Thank you! Michelle L. Rintamaki Director, BA Education (mom to John, 25, tof, repair Posted - Thu Mar 21, 2013 3:18 pm	michelle rintamaki kidswithheart Send Email
Help Make Every Day Congenital Heart Defect Awareness Day HELP PROMOTE CONGENITAL HEART DEFECTS AWARENESS Check out our generic awareness products at www.kidswithheart.org and click on CHD Store Here you will find a Posted - Fri Feb 1, 2013 3:39 pm	michelle rintamaki kidswithheart Send Email
Please register with Kids With Heart Natl Assn for Children's Heart We are pleased to announce that our new web page registration is now up and working!! Sorry for any inconvenience for those of you who had to experience the Posted - Mon Jan 28, 2013 7:03 pm	michelle rintamaki kidswithheart Send Email
FW: Doernbecher fun run/walk To all who might want to participate�. Aimee R. Mooney, Co-Founder of NWFWH and The Children�s Heart Foundation, Oregon Chapter Mom of Brogan, 12, HH and Posted - Tue Aug 21, 2012 11:58 pm	Aimee Mooney aimeemooney Send Email
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