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NW_Families_with_Heart · NW Familes with Heart

Group Information

  • Members: 127
  • Category: Heart Diseases
  • Founded: Jan 13, 2004
  • Language: English
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Description

Families of children with Hypoplastic Left Heart Syndrome and other Congenital Heart Defects in the Pacific Northwest (Oregon, Washington, Idaho) unite to support each other. Although regionally based, anyone who wants to talk with other "heart families" about how congenital heart disease affects their lives and their children is welcome to join.

In addition to an e-mail support group, "NW Families With Heart" is also an organized network of families and healthcare providers that is affiliated with Doernbecher Children's Hospital in Portland, OR.

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Dr. Mary Rice Retirement and Thank you Celebration
Dr. Rice is retiring from Doernbecher Children's Hospital! All Heart Families are invited to come to a CELEBRATION to honor her and the amazing care she has
Posted - Tue May 22, 2012 9:57 pm
Aimee Mooney
aimeemooney
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Dr. Mary Rice Retirement Party & Thank you Celebration
Dr. Rice is retiring from Doernbecher Children's Hospital! All Heart Families are invited to come to a CELEBRATION to honor her and the amazing care she has
Posted - Tue May 22, 2012 9:55 pm
mooneya@...
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Growth and development post surgery
My daughter was born with DORV and a VSD in March 2011. She had her first surgery at 9 weeks of life and just had a second surgery on January 10 to repair the
Posted - Mon Jan 30, 2012 3:07 am
kaike1981
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Re: OHSU
Hello Mary! So glad to “hear” your voice! Wow, 3 girls! That is amazing. I am so thrilled to know that Sienna and Kiara are well. So Finn has had 5
Posted - Mon Sep 12, 2011 7:03 pm
Aimee Mooney
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Re: OHSU
We have a book on in our chdbookstore at www.kidswithheart.org that is specifically designed to address the asd cath closure with kids. The title is Nathan's
Posted - Mon Sep 12, 2011 1:41 pm
michelle rintamaki
kidswithheart
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 1 2
2011 6 3 6 1 1 1 2 4
2010 2 7 1 3 2 3 2 1 1 1
2009 23 9 14 7 2 9 4 2 1 3 6
2008 9 11 7 13 3 6 9 1 2 4 8 1
2007 30 41 24 30 17 12 34 26 17 10 4 1
2006 30 46 29 28 32 31 18 34 20 12 25 13
2005 63 34 24 27 16 23 39 17 24 24 18 32
2004 11 36 23 37 37 37 31 77 53 47 39 27
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