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NW_Families_with_Heart · NW Familes with Heart

Group Information

  • Members: 125
  • Category: Heart Diseases
  • Founded: Jan 13, 2004
  • Language: English
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Description

Families of children with Hypoplastic Left Heart Syndrome and other Congenital Heart Defects in the Pacific Northwest (Oregon, Washington, Idaho) unite to support each other. Although regionally based, anyone who wants to talk with other "heart families" about how congenital heart disease affects their lives and their children is welcome to join.

In addition to an e-mail support group, "NW Families With Heart" is also an organized network of families and healthcare providers that is affiliated with Doernbecher Children's Hospital in Portland, OR.

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please share with all your families dealing with arrhythmia issues
http://www.medpagetoday.com/MeetingCoverage/AHA/17007?userid=157659 <http://www.medpagetoday.com/MeetingCoverage/AHA/17007?userid=157659&impress
Posted - Tue Nov 17, 2009 1:11 am
michelle: Kids With H...
kidswithheart
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Looking for resources on Congenital Heart Defects - check out the most complete bookstore anywhere! Visit www.kidswithheart.org <http://www.kidswithheart.org/>
Posted - Tue Nov 10, 2009 3:33 pm
michelle: Kids With H...
kidswithheart
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Please email Johanna and ask her to add your name to this letter req
Hi all, Thanks to those who have already contacted me to sign on to the letter. The most recent version is attached, and I hope that other groups will be able
Posted - Fri Sep 11, 2009 1:11 am
kidswithheart
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2010 calendar photos now being accepted
Photo submissions are now being accepted for the 2010 CHD calendar. Photos can be submitted of anyone born with a heart defect (adult or child), living or
Posted - Thu Aug 13, 2009 8:20 pm
Karin
karincoulter
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Press Release Going Out Tomorrow- avoid serious scar tissue complica
This is the awesome new patch product that I sent the Med Page Article out about in March. The inventor contacted us and asked us to help promote it. This is
Posted - Fri Aug 7, 2009 2:47 am
michelle: Kids With H...
kidswithheart
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 23 9 14 7 2 9 4 2 1 2
2008 9 11 7 13 3 6 9 1 2 4 8 1
2007 30 41 24 30 17 12 34 26 17 10 4 1
2006 30 46 29 28 32 31 18 34 20 12 25 13
2005 63 34 24 27 16 23 39 17 24 24 18 32
2004 11 36 23 37 37 37 31 77 53 47 39 27
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