Abbie, we are praying for you and Kaylee. Sarah...
7182
Sally Eubanks
sallyeu
May 17, 2009 6:21 pm
Wishing the best for Kaylee. Hope she feels better soon. Sally, Marco and Oscar ... From: ahoweth31088 <ahoweth31088@...> Subject:...
7183
cleibo1
May 18, 2009 12:12 pm
Abbie- You and Kaylee are in our thoughts and prayers. Pleasse continue to keep us updated. Corey...
7184
Amanda Hollingsworth
adhollingswo...
May 18, 2009 12:48 pm
Abbie, I'm keeping you and Kaylee in my thoughts. Â Amanda ... From: Sally Eubanks <sallyeu@...> Subject: Re: [Myotubular_Myopathy] Kaylee update To:...
7185
Sally Eubanks
sallyeu
May 19, 2009 5:21 am
Hi Families-- I assume, since the Houston conference is coming up, that you've all thought about and/or dealt with this issue. If things weren't so...
7186
Betsy Grant
scottandbets
May 19, 2009 11:05 am
When I was looking into booking flights to Houston, I came accross this as well. So far, the only airline I am aware of that has this policy (power off the...
7187
cleibo1
May 19, 2009 1:05 pm
I don't know if Southwest flies international, but we flew Southwest Airlines to Florida without any problem. We did NOT have to turn off Spencer's vent and...
7188
Sally Eubanks
sallyeu
May 19, 2009 1:41 pm
That's very useful--thanks!! i had forgotten about US Airways. More research! ... From: Betsy Grant <betsy@...> Subject: Re: [Myotubular_Myopathy]...
7189
Toni Abram
tonilouisa71
Jun 9, 2009 8:31 am
Hello All Just a short note to let you know that I graduated from university on Friday - I am attaching some photos of the day below. ...
7190
Anne Lennox
lennoxanne
Jun 9, 2009 9:59 am
Toni That is fantastic news. Well done and huge congratulations from all of us Anne, Andrew, Sophie and Rory...and Tom from on high! xxxx _____ From:...
7191
Gary B
harrys_dad2003
Jun 9, 2009 12:13 pm
WELL DONE TONI!!! Look like an absolutely fantactic day. Just how proud do your parents look. Makes all the effort worthwhile doesn't it - congratulations...
7192
toni.abram1@...
tonilouisa71
Jun 9, 2009 12:29 pm
Hey Gary The cow was from the restaurant we ate at in the evening - bit obscure I know. The place is called the Barn - this was one of two cows I saw there. ...
7193
Gary B
harrys_dad2003
Jun 9, 2009 2:20 pm
Toni, I knew there would be a logical reason for the cow. I thought it was because I HERD that even though it was FRIESAN that night, you still had ice-CREAM...
7194
toni.abram1@...
tonilouisa71
Jun 9, 2009 2:24 pm
Rolling arond the floor laughing. ;o) Toni xx Sent using BlackBerry® from Orange ... From: Gary B <garybeck95@...> Date: Tue, 9 Jun 2009 15:19:49 ...
7195
WELLS CINDY
joeysmom58062
Jun 10, 2009 12:18 am
congratulations from cindy and joey ... From: Toni Abram <toni.abram1@...> Subject: [Myotubular_Myopathy] Toni's Graduation To:...
7196
Toni Abram
tonilouisa71
Jun 10, 2009 9:32 am
7197
Toni Abram
tonilouisa71
Jun 10, 2009 9:43 am
... From: "rare-disorders-admin" <rare-disorders-admin@...> To: <toni.abram1@...> Sent: Tuesday, April 07, 2009 3:18 PM Subject: Rare...
7198
Connie Guinn
kookla_g
Jun 10, 2009 12:59 pm
VERY interesting, Toni. Thanks for posting this! xo Connie Connie Guinn, Director MTM-CNM Conference Planning Team www.mtm-cnm.com281-997-3581 Good Search:...
7199
Angela H.
blueeyesofbl...
Jun 10, 2009 7:46 pm
Congratulations Toni!  Best of luck to you in your future endeavors!! Sincerely,  Angie Patrick 26 weeks 1lb. 14oz. 9/17/88 - 02/03/05 Danielle 35 weeks...
7200
patsarah2006
Jun 17, 2009 4:45 pm
Thought this might be of interest, Sarah. http://www.mda.org/publications/Quest/extra/jun09/air_travel.html Alert: New Air Regs Air travelers using respiratory...
7201
talkpod@...
scootergurl86
Jun 19, 2009 9:34 pm
I just got an email from someone here about flight restrictions with a vent and was wondering if someone can resend it to me? Rachel B...
7202
Pat or Sarah
patsarah2006
Jul 8, 2009 2:07 pm
http://www.mda.org/publications/Quest/extra/jun09/vacations.html Frustration and Canceled Vacations No clear way for air travelers to comply with new...
7203
TONI ABRAM
tonilouisa71
Jul 9, 2009 6:28 pm
Hello Everyone Work on the next Information Point newlsletter is due to start shortly, with a planned issue date of August 2009. If you are involved in any...
7204
patsarah2006
Jul 14, 2009 6:41 pm
The May 2009 supplement to the journal Pediatrics is all about management of neuromuscular disease. I found the articles really interesting. I am going to...
7205
Myotubular_Myopathy@y...
Jul 14, 2009 6:49 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the Myotubular_Myopathy group. File :...
7206
Myotubular_Myopathy@y...
Jul 14, 2009 6:50 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the Myotubular_Myopathy group. File :...
7207
Myotubular_Myopathy@y...
Jul 14, 2009 6:51 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the Myotubular_Myopathy group. File :...
7208
Myotubular_Myopathy@y...
Jul 14, 2009 6:51 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the Myotubular_Myopathy group. File :...
7209
Myotubular_Myopathy@y...
Jul 14, 2009 6:52 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the Myotubular_Myopathy group. File :...
7210
TONI ABRAM
tonilouisa71
Jul 29, 2009 6:02 am
Hello Everyone Work on the next Information Point newsletter is now underway.  If you have recently been involved in any projects, meetings or get togethers...
