Myotubular_Myopathy : Messages : 7129-7158 of 7390

#7129

From: "jenn332" <jenniejenkins@...>
Date: Wed Apr 1, 2009 1:19 pm
Subject: Nathaniel's passing

My beautiful son, Nathaniel, passed away on 18th March, 8 days short of his
first birthday. He had only been discharged from hospital a week earlier but
started to suffer from an unusually high heart rate on the Sunday evening (190 -
210 bpm.) On the Wednesday morning he suffered a huge heart attack brought on by
respiratory failure and died peacefully in the afternoon in hospital. I miss him
so much.

jennie

Reply | Messages in this Topic (14)

#7130

From: "cleibo1" <cleibo1@...>
Date: Wed Apr 1, 2009 1:24 pm
Subject: Re: Nathaniel's passing

cleibo1

Send Email

Jennie-
I am so very sorry. It breaks my heart to hear that one our children has gone to
heaven. No one should have to go through what you are dealing with. You and your
family are in our thoughts and prayers.

Corey, Bruce, Spencer and Daniel







--- In Myotubular_Myopathy@yahoogroups.com, "jenn332" <jenniejenkins@...> wrote:
>
> My beautiful son, Nathaniel, passed away on 18th March, 8 days short of his
first birthday. He had only been discharged from hospital a week earlier but
started to suffer from an unusually high heart rate on the Sunday evening (190 -
210 bpm.) On the Wednesday morning he suffered a huge heart attack brought on by
respiratory failure and died peacefully in the afternoon in hospital. I miss him
so much.
>
> jennie
>

Reply | Messages in this Topic (14)

#7131

From: toni.abram1@...
Date: Wed Apr 1, 2009 1:27 pm
Subject: Re: Nathaniel's passing

tonilouisa71

Send Email

Jennie

So so sorry to read this.

Thinking of you.

Toni xx

Sent using BlackBerry� from Orange

From: "jenn332"
Date: Wed, 01 Apr 2009 13:19:33 -0000
To: <Myotubular_Myopathy@yahoogroups.com>
Subject: [Myotubular_Myopathy] Nathaniel's passing

My beautiful son, Nathaniel, passed away on 18th March, 8 days short of his first birthday. He had only been discharged from hospital a week earlier but started to suffer from an unusually high heart rate on the Sunday evening (190 - 210 bpm.) On the Wednesday morning he suffered a huge heart attack brought on by respiratory failure and died peacefully in the afternoon in hospital. I miss him so much.

jennie

Reply | Messages in this Topic (14)

#7132

From: Betsy Grant <betsy@...>
Date: Wed Apr 1, 2009 1:46 pm
Subject: Re: Nathaniel's passing

scottandbets

Send Email

Jennie,

My heart breaks for you, you have my deepest sympathies.

Betsy

On Wed, Apr 1, 2009 at 9:27 AM, <toni.abram1@...> wrote:

Jennie

So so sorry to read this.

Thinking of you.

Toni xx
Sent using BlackBerry� from Orange

From: "jenn332"
Date: Wed, 01 Apr 2009 13:19:33 -0000
To: <Myotubular_Myopathy@yahoogroups.com>
Subject: [Myotubular_Myopathy] Nathaniel's passing

My beautiful son, Nathaniel, passed away on 18th March, 8 days short of his first birthday. He had only been discharged from hospital a week earlier but started to suffer from an unusually high heart rate on the Sunday evening (190 - 210 bpm.) On the Wednesday morning he suffered a huge heart attack brought on by respiratory failure and died peacefully in the afternoon in hospital. I miss him so much.

jennie

Reply | Messages in this Topic (14)

#7133

From: Temple McLaurin <seannathon@...>
Date: Wed Apr 1, 2009 2:38 pm
Subject: Re: Nathaniel's passing

seannathon

Send Email

Jennie,

I am so sorry for you loss. I will pray for you and your family. Temple

--- On Wed, 4/1/09, jenn332 <jenniejenkins@...> wrote:

From: jenn332 <jenniejenkins@...>
Subject: [Myotubular_Myopathy] Nathaniel's passing
To: Myotubular_Myopathy@yahoogroups.com
Date: Wednesday, April 1, 2009, 6:19 AM

My beautiful son, Nathaniel, passed away on 18th March, 8 days short of his first birthday. He had only been discharged from hospital a week earlier but started to suffer from an unusually high heart rate on the Sunday evening (190 - 210 bpm.) On the Wednesday morning he suffered a huge heart attack brought on by respiratory failure and died peacefully in the afternoon in hospital. I miss him so much.

jennie

Reply | Messages in this Topic (14)

#7134

From: Connie Guinn <kookla_g@...>
Date: Wed Apr 1, 2009 3:24 pm
Subject: Re: Nathaniel's passing

kookla_g

Send Email

Jennie, I am so sorry to hear about Nathaniel. Your heart and head must be swimming with emotions right now, and most of all your arms must ache with emptiness. I wish desperately that this didn't have to happen. I know that you helped him fight a long, hard battle, and you loved him with every ounce of your being. I am praying peace and love to you and your family. I, and others in this group are here for you through this difficult season. If you ever want to talk, please call me anytime 281-997-3581.

Connie

Connie Guinn, Director

MTM-CNM Conference Planning Team

www.mtm-cnm.com

281-997-3581

Good Search: http://www.goodsearch.com/?charityid=894813
Good Shop: http://www.goodshop.com/?charityid=894813

From: jenn332 <jenniejenkins@...>
To: Myotubular_Myopathy@yahoogroups.com
Sent: Wednesday, April 1, 2009 8:19:33 AM
Subject: [Myotubular_Myopathy] Nathaniel's passing

Reply | Messages in this Topic (14)

#7135

From: debbie mccluskey <dgmccluskey@...>
Date: Wed Apr 1, 2009 3:43 pm
Subject: Re: Nathaniel's passing

dgmccluskey

Send Email

Our prayers are with you and your family. I pray to God to comfort you and your family in the loss of your sweet little boy. The McCluskeys

--- On Wed, 4/1/09, jenn332 <jenniejenkins@...> wrote:

From: jenn332 <jenniejenkins@...>
Subject: [Myotubular_Myopathy] Nathaniel's passing
To: Myotubular_Myopathy@yahoogroups.com
Date: Wednesday, April 1, 2009, 8:19 AM

My beautiful son, Nathaniel, passed away on 18th March, 8 days short of his first birthday. He had only been discharged from hospital a week earlier but started to suffer from an unusually high heart rate on the Sunday evening (190 - 210 bpm.) On the Wednesday morning he suffered a huge heart attack brought on by respiratory failure and died peacefully in the afternoon in hospital. I miss him so much.

jennie

Reply | Messages in this Topic (14)

#7136

From: Elizabeth Peil <elz0221@...>
Date: Wed Apr 1, 2009 4:03 pm
Subject: Re: Nathaniel's passing

elz0221

Send Email

Jennie,

We are so sorry to hear of Nathaniels passing. Our hearts and prayers go out to you and your family.

The Hollands

Chuck, Liz, Pollux, Chaz and Aubrey

Reply | Messages in this Topic (14)

#7137

From: WANDA SANTORY <bubblelips8151972@...>
Date: Wed Apr 1, 2009 4:03 pm
Subject: Re: Nathaniel's passing

bubblelips81...

Send Email

So sorry to hear the news. I understand your pain. My love to you.

From: jenn332 <jenniejenkins@...>
To: Myotubular_Myopathy@yahoogroups.com
Sent: Wednesday, April 1, 2009 9:19:33 AM
Subject: [Myotubular_Myopathy] Nathaniel's passing

Reply | Messages in this Topic (14)

#7138

From: burcu paltura <bpaltura@...>
Date: Wed Apr 1, 2009 10:11 pm
Subject: Nathaniel's passing

bpaltura

Send Email

I am very sorry to hear of your loss.
I want you to know that I feel your pain as a mother as I lost my angel this past November. You and Nathaniel will also be in my prayers...

With heartfelt sympathy,

Burcu and the angel Ilker

--- On Wed, 4/1/09, jenn332 <jenniejenkins@...> wrote:

From: jenn332 <jenniejenkins@...>
Subject: [Myotubular_Myopathy] Nathaniel's passing
To: Myotubular_Myopathy@yahoogroups.com
Date: Wednesday, April 1, 2009, 4:19 PM

My beautiful son, Nathaniel, passed away on 18th March, 8 days short of his first birthday. He had only been discharged from hospital a week earlier but started to suffer from an unusually high heart rate on the Sunday evening (190 - 210 bpm.) On the Wednesday morning he suffered a huge heart attack brought on by respiratory failure and died peacefully in the afternoon in hospital. I miss him so much.

jennie

Reply | Messages in this Topic (14)

#7139

From: burcu paltura <bpaltura@...>
Date: Wed Apr 1, 2009 10:11 pm
Subject: Nathaniel's passing

bpaltura

Send Email

I am very sorry to hear of your loss.
I want you to know that I feel your pain as a mother as I lost my angel this past November. You and Nathaniel will also be in my prayers...

With heartfelt sympathy,

Burcu and the angel Ilker

--- On Wed, 4/1/09, jenn332 <jenniejenkins@...> wrote:

From: jenn332 <jenniejenkins@...>
Subject: [Myotubular_Myopathy] Nathaniel's passing
To: Myotubular_Myopathy@yahoogroups.com
Date: Wednesday, April 1, 2009, 4:19 PM

My beautiful son, Nathaniel, passed away on 18th March, 8 days short of his first birthday. He had only been discharged from hospital a week earlier but started to suffer from an unusually high heart rate on the Sunday evening (190 - 210 bpm.) On the Wednesday morning he suffered a huge heart attack brought on by respiratory failure and died peacefully in the afternoon in hospital. I miss him so much.

jennie

Reply | Messages in this Topic (14)

#7140

From: Debbie Maughan <debbiemaughan@...>
Date: Wed Apr 1, 2009 10:16 pm
Subject: Re: Nathaniel's passing

debbiemaughan

Send Email

I am so very sorry to hear about the passing of Nathaniel, please know you are in our thoughts and prayers.

Debbie

From: jenn332 <jenniejenkins@...>
To: Myotubular_Myopathy@yahoogroups.com
Sent: Wednesday, April 1, 2009 7:19:33 AM
Subject: [Myotubular_Myopathy] Nathaniel's passing

Reply | Messages in this Topic (14)

#7141

From: "bv_mixednuts" <bv_mixednuts@...>
Date: Thu Apr 2, 2009 12:13 am
Subject: Re: Nathaniel's passing

bv_mixednuts

Send Email

You and your family are in our thoughts and prayers.
Virginia

--- In Myotubular_Myopathy@yahoogroups.com, "jenn332" <jenniejenkins@...> wrote:
>
> My beautiful son, Nathaniel, passed away on 18th March, 8 days short of his
first birthday. He had only been discharged from hospital a week earlier but
started to suffer from an unusually high heart rate on the Sunday evening (190 -
210 bpm.) On the Wednesday morning he suffered a huge heart attack brought on by
respiratory failure and died peacefully in the afternoon in hospital. I miss him
so much.
>
> jennie
>

Reply | Messages in this Topic (14)

#7142

From: Donald Serafano <dbserafano@...>
Date: Thu Apr 2, 2009 6:15 pm
Subject: (No subject)

dbserafano

Send Email

Nancy Matteo and I are sorry for your loss.

Don Serafano

Reply | Messages in this Topic (1)

#7143

From: burcu paltura <bpaltura@...>
Date: Sat Apr 4, 2009 4:24 pm
Subject: News and future pregnancy concerns

bpaltura

Send Email

Dear All,

As you know Ilker has passed away 4 months ago. He was my first and the only child. I've always wanted to have two children but I couldn't do it when Ilker was alive. I wanted to give all my love, care and attention to him as you all may understand why. After Ilker's passing I had serious health problems. I was told that I was pregnant but it is an abnormal one which was called "hydatiform mole" Because of that disease which turned into a cancer cell formation I had to have two operations and a chemoteraphy treatment within 2 months. Luckily there was no metastasis and my latest tests are just fine. The disease witholds me to get pregnant because the level of HCG in the blood is checked regularly to make sure it stays normal. This is because pregnancy, by raising the level of HCG, can make it hard to detect if the tumor has come back. So I just need to be patient but I also don't want to take any more risks in the future about my pregnancy. That's why I need to make sure that when I am pregnant it is a normal one and free of myotubular myopathy. I read some articles on the web about the genetics of XMTM and I want to ask you a very important question. That is: If a male child is diagnosed -both by muscle biopsy and genetic testing- as having a XMTM condition and the mother is also genetically tested and the same mutation in MTM1 gene is found; does this carrier mother has any risk of giving birth to a female who would have the same condition? I know that the disease affects males but is it "only males" or "mostly males"? I have read the file about the info on genetics which was added before to the myotubular myopathy group website. I read that again in the morning and under the title "How does CNM run in families" it says:

"Carriers have a 50% (1 in 2) chance that each of their sons will have XLMTM and a 50% (1 in 2) chance that each of their daughters will be carriers"

However a couple of days ago

I read a very disturbing sentence in an article in our native language talking about some affected females seen lately and noticed that a reference was cited. "Kristiansen M, Knudsen GP, Taner SM et al. X-inactivation patterns in carriers of X-linked myotubular myopathy. Neuromuscul Disord 2003; 13: 468-471"

Unfortunetly I couldn't get the full-text article on the web, so if any of you have an information on the subject or know some professionals who might give info on this "X-inactivation patterns" I would be very grateful. Even if there is a very slight chance that females can also be patients not only carriers I need to know this.

Waiting for your comments,

With Love,

Burcu and the angel Ilker

Reply | Messages in this Topic (3)

#7144

From: "Wendy" <wendyhughes@...>
Date: Sat Apr 4, 2009 5:38 pm
Subject: RE: News and future pregnancy concerns

hughesdewy

Send Email

Hi Burcu,

I’ve responded privately to this, please let me know if you don’t receive my email.

Wendy x

-----Original Message-----
From: Myotubular_Myopathy@yahoogroups.com [mailto:Myotubular_Myopathy@yahoogroups.com] On Behalf Of burcu paltura
Sent: 04 April 2009 17:24
To: Myotubular_Myopathy@yahoogroups.com
Subject: [Myotubular_Myopathy] News and future pregnancy concerns

Dear All,

"Carriers have a 50% (1 in 2) chance that each of their sons will have XLMTM and a 50% (1 in 2) chance that each of their daughters will be carriers"

However a couple of days ago

Waiting for your comments,

With Love,

Burcu and the angel Ilker

Reply | Messages in this Topic (3)

#7145

From: "hughesdewy" <wendyhughes@...>
Date: Tue Apr 7, 2009 8:13 am
Subject: Cataracts

hughesdewy

Send Email

I'm interested to know if any MTM/CNM children have a problem with cataracts?
(eg opacities of the lens of the eye).

Thanks, Wendy

Reply | Messages in this Topic (2)

#7146

From: Amanda Hollingsworth <adhollingsworth0102@...>
Date: Tue Apr 7, 2009 12:03 pm
Subject: Re: Cataracts

adhollingswo...

Send Email

Hi Wendy, Jacob had congenital cataracts. He had surgery on both eyes when he was 2. He also had (has) another condition of his eyes, but the name of it escapes me right now. I'll look it up. Anyways, the second condition caused him to not be a candidate for lens implants.

Amanda

--- On Tue, 4/7/09, hughesdewy <wendyhughes@...> wrote:

From: hughesdewy <wendyhughes@...>
Subject: [Myotubular_Myopathy] Cataracts
To: Myotubular_Myopathy@yahoogroups.com
Date: Tuesday, April 7, 2009, 4:13 AM

I'm interested to know if any MTM/CNM children have a problem with cataracts? (eg opacities of the lens of the eye).

Thanks, Wendy

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#7147

From: WANDA SANTORY <bubblelips8151972@...>
Date: Wed Apr 8, 2009 12:50 am
Subject: Pictures from WANDA

bubblelips81...

Send Email

Pictures for you!

From: WANDA SANTORY

You're invited to view my pictures at Shutterfly. Enjoy!

Pictures from WANDA SANTORY

(1 of 20 pictures)

If selecting "See pictures" doesn’t work, copy-and-paste this address into your browser:
http://share.shutterfly.com/action/welcome?sid=0AZMmjZw5cMmTno

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#7148

From: Connie Guinn <kookla_g@...>
Date: Wed Apr 8, 2009 5:13 am
Subject: Re: Pictures from WANDA

kookla_g

Send Email

Thanks for sharing these, Wanda. They are awesome! I will see you there next time!! :)
Love you!
Connie

Connie Guinn, Director

MTM-CNM Conference Planning Team

www.mtm-cnm.com

281-997-3581

Good Search: http://www.goodsearch.com/?charityid=894813
Good Shop: http://www.goodshop.com/?charityid=894813

From: WANDA SANTORY <bubblelips8151972@...>
To: myotubular_myopathy@yahoogroups.com
Sent: Tuesday, April 7, 2009 7:50:41 PM
Subject: [Myotubular_Myopathy] Pictures from WANDA

Pictures for you!

From: WANDA SANTORY

You're invited to view my pictures at Shutterfly. Enjoy!

Pictures from WANDA SANTORY

(1 of 20 pictures)

If selecting "See pictures" doesn’t work, copy-and-paste this address into your browser:
http://share. shutterfly. com/action/ welcome?sid= 0AZMmjZw5cMmTno

Reply | Messages in this Topic (2)

#7149

From: "Sheallyn" <sheallyn73@...>
Date: Sun Apr 12, 2009 5:41 pm
Subject: Re: Nathaniel's passing

sheallyn73

Send Email

hi Jennie,

I am late in seeing this as I have not been here in a while .. Very sorry to
hear that Nathaniel has passed away :/ If you need to talk for any reason please
feel free to email me anytime .. I've been where you are and understand the pain
your in..

all my love,


Sheallyn

Reply | Messages in this Topic (14)

#7150

From: "Sheallyn" <sheallyn73@...>
Date: Sun Apr 12, 2009 5:45 pm
Subject: Re: News and future pregnancy concerns

sheallyn73

Send Email

Dear Burcu, sorry to hear that you have had such a tough road to travel these
past 4 months .. (big hugs)

I personally don't know much more than you as far as female's born with xl-mtm..
wish I could be of more help to you.


please take care!

Reply | Messages in this Topic (3)

#7151

From: "Dana" <casonsmiracle@...>
Date: Tue Apr 14, 2009 1:43 am
Subject: Please pray for my family....my husband died

casonsmiracle

Send Email

I don't know what to do or how to handle this. Roy and I have been together for
14 years. I love him so much!! We both had a prescrition drug problem a few
years ago. I have been clean for 4 years but Roy kept having problems. He would
slip up and mix pills. Easter Sunday my oldest son came and told me that his dad
had something purple all over his face. I went to check on him and he was not
breathing and cold. I can't believe that he is really gone. Despite his
problems, he loved me and the boys so so much. How am I supposed to tell Cason
his daddy is never coming back??? My baby has suffered enough without losing his
daddy!!! I should have checked on him sooner. I was so mad at him Saturday night
for being buzzed on pills and he kept denying it, but it was obvious. My last
words to him were full of hatred and meaness. I feel so guilty. I am sorry to be
on here dumping like this. This pain is so raw. Please pray that God give me and
my babies strength and pray Roy is in heaven now....please!!!

Dana

Reply | Messages in this Topic (10)

#7152

From: Amanda Hollingsworth <adhollingsworth0102@...>
Date: Tue Apr 14, 2009 10:52 am
Subject: Re: Please pray for my family....my husband died

adhollingswo...

Send Email

(((HUGS))) to your family. What a tragedy. I am so sorry.

Amanda Hollingsworth

--- On Mon, 4/13/09, Dana <casonsmiracle@...> wrote:

From: Dana <casonsmiracle@...>
Subject: [Myotubular_Myopathy] Please pray for my family....my husband died
To: Myotubular_Myopathy@yahoogroups.com
Date: Monday, April 13, 2009, 9:43 PM

I don't know what to do or how to handle this. Roy and I have been together for 14 years. I love him so much!! We both had a prescrition drug problem a few years ago. I have been clean for 4 years but Roy kept having problems. He would slip up and mix pills. Easter Sunday my oldest son came and told me that his dad had something purple all over his face. I went to check on him and he was not breathing and cold. I can't believe that he is really gone. Despite his problems, he loved me and the boys so so much. How am I supposed to tell Cason his daddy is never coming back??? My baby has suffered enough without losing his daddy!!! I should have checked on him sooner. I was so mad at him Saturday night for being buzzed on pills and he kept denying it, but it was obvious. My last words to him were full of hatred and meaness. I feel so guilty. I am sorry to be on here dumping like this. This pain is so raw. Please pray that God give me and my babies strength and pray Roy is in heaven now....please!!!

Dana

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Reply | Messages in this Topic (10)

#7153

From: toni.abram1@...
Date: Tue Apr 14, 2009 11:16 am
Subject: Re: Please pray for my family....my husband died

tonilouisa71

Send Email

Dana

I am so sorry. My heart goes out to you and I wish you the strength to deal with this today and in the days to come.

Big hugs to you and your family.

Toni xx

Sent using BlackBerry� from Orange

From: Amanda Hollingsworth
Date: Tue, 14 Apr 2009 03:52:09 -0700 (PDT)
To: <Myotubular_Myopathy@yahoogroups.com>
Subject: Re: [Myotubular_Myopathy] Please pray for my family....my husband died

(((HUGS))) to your family. What a tragedy. I am so sorry.

Amanda Hollingsworth

--- On Mon, 4/13/09, Dana <casonsmiracle@yahoo.com> wrote:

From: Dana <casonsmiracle@yahoo.com>
Subject: [Myotubular_Myopathy] Please pray for my family....my husband died
To: Myotubular_Myopathy@yahoogroups.com
Date: Monday, April 13, 2009, 9:43 PM

I don't know what to do or how to handle this. Roy and I have been together for 14 years. I love him so much!! We both had a prescrition drug problem a few years ago. I have been clean for 4 years but Roy kept having problems. He would slip up and mix pills. Easter Sunday my oldest son came and told me that his dad had something purple all over his face. I went to check on him and he was not breathing and cold. I can't believe that he is really gone. Despite his problems, he loved me and the boys so so much. How am I supposed to tell Cason his daddy is never coming back??? My baby has suffered enough without losing his daddy!!! I should have checked on him sooner. I was so mad at him Saturday night for being buzzed on pills and he kept denying it, but it was obvious. My last words to him were full of hatred and meaness. I feel so guilty. I am sorry to be on here dumping like this. This pain is so raw. Please pray that God give me and my babies strength and pray Roy is in heaven now....please!!!

Dana

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Reply | Messages in this Topic (10)

#7154

From: Betsy Grant <betsy@...>
Date: Tue Apr 14, 2009 12:12 pm
Subject: Re: Please pray for my family....my husband died

scottandbets

Send Email

Dana,

I am SO sorry! My deepest sympathies go out to you.

(((HUGS))).

Betsy

On Tue, Apr 14, 2009 at 7:16 AM, <toni.abram1@...> wrote:

Dana

I am so sorry. My heart goes out to you and I wish you the strength to deal with this today and in the days to come.

Big hugs to you and your family.

Toni xx
Sent using BlackBerry� from Orange

From: Amanda Hollingsworth
Date: Tue, 14 Apr 2009 03:52:09 -0700 (PDT)

To: <Myotubular_Myopathy@yahoogroups.com>
Subject: Re: [Myotubular_Myopathy] Please pray for my family....my husband died

(((HUGS))) to your family. What a tragedy. I am so sorry.

�

Amanda Hollingsworth

--- On Mon, 4/13/09, Dana <casonsmiracle@...> wrote:

From: Dana <casonsmiracle@...>
Subject: [Myotubular_Myopathy] Please pray for my family....my husband died
To: Myotubular_Myopathy@yahoogroups.com
Date: Monday, April 13, 2009, 9:43 PM

I don't know what to do or how to handle this. Roy and I have been together for 14 years. I love him so much!! We both had a prescrition drug problem a few years ago. I have been clean for 4 years but Roy kept having problems. He would slip up and mix pills. Easter Sunday my oldest son came and told me that his dad had something purple all over his face. I went to check on him and he was not breathing and cold. I can't believe that he is really gone. Despite his problems, he loved me and the boys so so much. How am I supposed to tell Cason his daddy is never coming back??? My baby has suffered enough without losing his daddy!!! I should have checked on him sooner. I was so mad at him Saturday night for being buzzed on pills and he kept denying it, but it was obvious. My last words to him were full of hatred and meaness. I feel so guilty. I am sorry to be on here dumping like this. This pain is so raw. Please pray that God give me and my babies strength and pray Roy is in heaven now....please!!!

Dana

------------------------------------

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<*> To visit your group on the web, go to:
� � http://groups.yahoo.com/group/Myotubular_Myopathy/

<*> Your email settings:
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Reply | Messages in this Topic (10)

#7155

From: Debbie Maughan <debbiemaughan@...>
Date: Tue Apr 14, 2009 2:51 pm
Subject: Re: Please pray for my family....my husband died

debbiemaughan

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My thoughts and prayers are with you and your children at this most difficult time.

From: Dana <casonsmiracle@...>
To: Myotubular_Myopathy@yahoogroups.com
Sent: Monday, April 13, 2009 7:43:45 PM
Subject: [Myotubular_Myopathy] Please pray for my family....my husband died

I don't know what to do or how to handle this. Roy and I have been together for 14 years. I love him so much!! We both had a prescrition drug problem a few years ago. I have been clean for 4 years but Roy kept having problems. He would slip up and mix pills. Easter Sunday my oldest son came and told me that his dad had something purple all over his face. I went to check on him and he was not breathing and cold. I can't believe that he is really gone. Despite his problems, he loved me and the boys so so much. How am I supposed to tell Cason his daddy is never coming back??? My baby has suffered enough without losing his daddy!!! I should have checked on him sooner. I was so mad at him Saturday night for being buzzed on pills and he kept denying it, but it was obvious. My last words to him were full of hatred and meaness. I feel so guilty. I am sorry to be on here dumping like this. This pain is so raw. Please pray that God give me and my babies strength and pray Roy is in heaven now....please! !!

Dana

Reply | Messages in this Topic (10)

#7156

From: Temple McLaurin <seannathon@...>
Date: Tue Apr 14, 2009 2:58 pm
Subject: Re: Please pray for my family....my husband died

seannathon

Send Email

Dana, I was up late nght and read this. I was stunned. I had no idea what to say. It is now the morning and I am feeling so sad for your loss. I appreciate your openness surrounding the details of your husbands death. I hope you can continue to be strong, this must be heart wrenching for you and your family. I will pray for you all. On a side note have a good cry. It's ok even for MOMS to take a time out. Take care Temple

--- On Mon, 4/13/09, Dana <casonsmiracle@...> wrote:

From: Dana <casonsmiracle@...>
Subject: [Myotubular_Myopathy] Please pray for my family....my husband died
To: Myotubular_Myopathy@yahoogroups.com
Date: Monday, April 13, 2009, 6:43 PM

I don't know what to do or how to handle this. Roy and I have been together for 14 years. I love him so much!! We both had a prescrition drug problem a few years ago. I have been clean for 4 years but Roy kept having problems. He would slip up and mix pills. Easter Sunday my oldest son came and told me that his dad had something purple all over his face. I went to check on him and he was not breathing and cold. I can't believe that he is really gone. Despite his problems, he loved me and the boys so so much. How am I supposed to tell Cason his daddy is never coming back??? My baby has suffered enough without losing his daddy!!! I should have checked on him sooner. I was so mad at him Saturday night for being buzzed on pills and he kept denying it, but it was obvious. My last words to him were full of hatred and meaness. I feel so guilty. I am sorry to be on here dumping like this. This pain is so raw. Please pray that God give me and my babies strength and pray Roy is in heaven now....please! !!

Dana

Reply | Messages in this Topic (10)

#7157

From: "cleibo1" <cleibo1@...>
Date: Tue Apr 14, 2009 5:13 pm
Subject: Re: Please pray for my family....my husband died

cleibo1

Send Email

Dana we are so very sorry for you terrible loss. You and your family are in our
thought and prayers. Just remember Roy knew you loved him.
Corey, Bruce, Spencer and Daniel






--- In Myotubular_Myopathy@yahoogroups.com, Betsy Grant <betsy@...> wrote:
>
> Dana,
> I am SO sorry! My deepest sympathies go out to you.
> (((HUGS))).
> Betsy
>
> On Tue, Apr 14, 2009 at 7:16 AM, <toni.abram1@...> wrote:
>
> >
> >
> > Dana
> >
> > I am so sorry. My heart goes out to you and I wish you the strength to deal
> > with this today and in the days to come.
> >
> > Big hugs to you and your family.
> >
> > Toni xx
> >
> > Sent using BlackBerry� from Orange
> >
> > ------------------------------
> > *From*: Amanda Hollingsworth
> > *Date*: Tue, 14 Apr 2009 03:52:09 -0700 (PDT)
> > *To*: <Myotubular_Myopathy@yahoogroups.com>
> > *Subject*: Re: [Myotubular_Myopathy] Please pray for my family....my
> > husband died
> >
> >     (((HUGS))) to your family. What a tragedy. I am so sorry.
> >
> > Amanda Hollingsworth
> >
> > --- On *Mon, 4/13/09, Dana <casonsmiracle@...>* wrote:
> >
> >
> > From: Dana <casonsmiracle@...>
> > Subject: [Myotubular_Myopathy] Please pray for my family....my husband died
> > To: Myotubular_Myopathy@yahoogroups.com
> > Date: Monday, April 13, 2009, 9:43 PM
> >
> > I don't know what to do or how to handle this. Roy and I have been together
> > for 14 years. I love him so much!! We both had a prescrition drug problem a
> > few years ago. I have been clean for 4 years but Roy kept having problems.
> > He would slip up and mix pills. Easter Sunday my oldest son came and told me
> > that his dad had something purple all over his face. I went to check on him
> > and he was not breathing and cold. I can't believe that he is really gone.
> > Despite his problems, he loved me and the boys so so much. How am I supposed
> > to tell Cason his daddy is never coming back??? My baby has suffered enough
> > without losing his daddy!!! I should have checked on him sooner. I was so
> > mad at him Saturday night for being buzzed on pills and he kept denying it,
> > but it was obvious. My last words to him were full of hatred and meaness. I
> > feel so guilty. I am sorry to be on here dumping like this. This pain is so
> > raw. Please pray that God give me and my babies strength and pray Roy is in
> > heaven now....please!!!
> >
> > Dana
> >
> >
> >
> > ------------------------------------
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
>

Reply | Messages in this Topic (10)

#7158

From: "Sheallyn" <sheallyn73@...>
Date: Wed Apr 15, 2009 11:54 pm
Subject: Re: Please pray for my family....my husband died

sheallyn73

Send Email

Dana,

very sorry to hear that you lost your husband .. and in such a tragic way... I
wish I had the answers for you but I have never lost a partner so I am unsure of
what to say .. As for your boys, keep his spirit alive by talking to them about
thier daddy, maybe work on a scrapbook together and let them add what they like
.. just an idea ..

please take care and email me if you need anything!

*hugs*

Reply | Messages in this Topic (10)

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