hes doing well we went to the seating clinic the other day to get him another chair its really nice its called squiggles we are just waiting for the hospital...
4612
Sheallyn
sheallyn73
May 3, 2007 5:13 pm
What would you do? . . . you make the choice . Don't look for a punch line, there isn't one . Read it anyway . My question is: Would you have made the same...
4611
Sheallyn
sheallyn73
May 3, 2007 4:38 pm
Glad to hear your feeling better Mason!! Keep up the good work .. *big hugs* :<) Sheallyn & Kaden James...
4610
Sheallyn
sheallyn73
May 3, 2007 4:25 pm
Thanks to both of you for your kind words and advice! And your right, Kaden has beaten every single odd they said he would not and for that I am so very proud...
4609
Ray
st_pete_flor...
May 3, 2007 2:43 pm
K also stands for a strikeout in baseball, which is all very confusing- for now on, K should just represent things that begin with the letter K- K must have...
4608
Scott & Betsy Grant
scottandbets
May 3, 2007 2:10 pm
I'm not sure, Rachel, better talk to your doc about that one. Betsy...
4607
Scott & Betsy Grant
scottandbets
May 3, 2007 1:18 pm
Dear Simone, So I guess you and I are in an exclusive group, huh? I'll have to ask my surgeon if she's heard of other carriers having this done. I didn't ask...
4606
SIMONE
zacantsim70
May 3, 2007 1:23 am
Hi Betsy Yes I had this surgery in January of this year . My surgery went really well. I think my surgeon is going to write up the case and publish it as they...
4605
talkpod@...
scootergurl86
May 3, 2007 12:32 am
ooohhhh lol sorry, then what happens if you have too much K as it is extremely difficult for doctors to take blood from me as i clot too quickly. therefore i...
4604
Scott & Betsy Grant
scottandbets
May 3, 2007 12:07 am
Rachel, In reading your email I'm wondering if you are thinking (and I can see why you would!) that vitamin K and potassium are the same? In chemistry, you're ...
4603
Scott & Betsy Grant
scottandbets
May 2, 2007 11:41 pm
That is wonderful news!! Betsy...
4602
Richard and Connie Gu...
kookla_g
May 2, 2007 10:20 pm
Betsy, My grandmother, a carrier, had this same problem,too. And, my son, Benjamin has it, too. -Connie ... pleased ... it ... this....
4601
rachel_wrigley
May 2, 2007 10:00 pm
dose anyone want a copy of marconis care paln just to give you all an idea on what to put on yours thanks Rachel...
4600
Scott Fontana
masonsparents
May 2, 2007 9:00 pm
Just wanted to let you all know that Mason is doing better. He did not have a sinus infection, but a really rare bug in his sinuses. His local pediatrician had...
4599
talkpod@...
scootergurl86
May 2, 2007 8:07 pm
I was reading on mtmrg.org that a vitamin K deficentcy is comorbid with mtm, and i was wondering what can be done to fix it because everytime i seem to break a...
4598
tonilouisa71
May 2, 2007 8:04 pm
Dear Members, I have just spoken to Aislinn McIvor at Endemol Productions. Please see the email below from her outlining a forthcoming TV documentary series....
4597
DARLENE MILLER
dm4462
May 2, 2007 8:01 pm
Hi Betsy Glad to hear your surgery went well. Take care, Darlene ... From: Scott & Betsy Grant<mailto:scottnbets@...> To:...
4596
Scott & Betsy Grant
scottandbets
May 2, 2007 7:52 pm
I just thought I'd share that I had eye surgery Monday. I'm pretty pleased with the results. If anybody has any questions, feel free to ask. It was to correct...
4595
Scott & Betsy Grant
scottandbets
May 2, 2007 7:49 pm
Dear Sheallyn, Kaden sounds like he is doing wonderfully for being one year old! Especially considering all he's been through. I used to get hung up on...
4594
tonilouisa71
May 2, 2007 7:46 pm
Hello All I saw this posting about PCT124 and thought you might be interested in a piece that Elizabeth Taylor from the Beggs Laboratory wrote about this for...
4593
tonilouisa71
May 2, 2007 7:42 pm
Thought this may be of interest to some. Toni xx Dear All, If you have a moment to complete this survey that would be great, the link is below. Best wishes, ...
4592
DARLENE MILLER
dm4462
May 2, 2007 7:33 pm
Hi Sheallyn, I have two grandsons with xlmtm. Kyle is 5 years old, I take care of him, and Connor is 18 months old and his mother takes care of him. Connor...
4591
Sheallyn
sheallyn73
May 2, 2007 7:28 pm
I do not want to put a scare into you but I was reading about this and if he has not been tested for this then he should be ... Again, I am not a doctor but...
4590
Sheallyn
sheallyn73
May 2, 2007 7:08 pm
I was called into a meeting when Kaden was 2 months old to decide on whether to trach my baby or not, I opted to not do it at the time ... They told me without...
4589
Sheallyn
sheallyn73
May 2, 2007 6:53 pm
Kaden is on Gylocpyrolate 3 times a day ... at .75 ml's . He gets it at 8:00 am, 4:00 pm and 12:00 am ... It took the doc's about 3 months to find the right...
4588
Sheallyn
sheallyn73
May 2, 2007 6:52 pm
As Alison pointed out distilled water IS a great idea!! The bi pap that we use has a humidifier attached to it so we fill it 1/2 way with water and run it all...
4587
Sheallyn
sheallyn73
May 2, 2007 6:37 pm
first off for anyone who is unaware as there are so many of us here, my son Kaden (just turned 1 year) has X linked MTM, which is considered the most severe...
4586
alison.frase
May 1, 2007 8:45 pm
Hello Daniela, My heart goes out to you and Alejandro. I have called a family in CA that also had their grandson in Kaiser Sunset. I am hoping that they will...
4585
rachel_wrigley
May 1, 2007 6:02 pm
i mentioned a while bk i would share marconis care plan with you all ive now copyed it and ready to send out for ppl to look at please email me if you would...
4584
Darlene
dm4462
May 1, 2007 5:47 pm
Hi all, Have any of the other kids started losing their baby teeth and/or at what age did they? How long did it take to get the permanent tooth in? Kyle has...
