Hi Everyone, I realized today that I haven't really posted in awhile. First of all, Javad is doing well. He came home on Labor Day and has been doind great. He...
2091
connie guinn
kookla_g
Sep 12, 2005 7:08 pm
Stacey, I'm sorry to hear that Briar's vocal cords have not developed. I have never heard of that being associated with MTM. I've read a lot of articles on...
2092
connie guinn
kookla_g
Sep 12, 2005 7:19 pm
Stacey, As far as signing goes, Briar may just need some time with that also. Benjamin knows some signs and can sign them well, but he doesn't want to do it-...
2093
kristin cypher
myrkrida
Sep 13, 2005 4:51 am
Hi Stacey! I think that everyone has given you excellent advice in this area, but I thought I would share my experience, too. When Sebi was born, he wasn't...
2094
redscootee@...
mrsbnmd
Sep 13, 2005 8:05 am
Hope your day was happy and you got lots of things you asked for. Tell us more about what you did on your special day! take care pat...
2095
connie guinn
kookla_g
Sep 14, 2005 5:39 pm
Stacey, Hello again! Benjamin had a CT scan of his head (first time ever) in April of this year. The ER doctor said that the scan showed 'brain...
2096
rachel_wrigley
Sep 15, 2005 10:18 am
still carnt view photos anyone any ideas i think im going to contact the owner of this group...
2097
xskye3322x
Sep 22, 2005 1:17 pm
Just thought id say hi, not been back to read the posts on the group in a long time, find it sad really that theres lots of new members; cause that means MTM...
2098
Jessica & Mark
nyte_faewyn
Sep 22, 2005 2:03 pm
Hi Skye! Its been awhile. I hope all is well with you and you family. Good luck with your surgery, let us know how it goes. Take care Jessica (Jack's Mum) ...
2099
Jessica & Mark
nyte_faewyn
Sep 24, 2005 12:46 pm
I hope you are ok, I heard Houston had a close call with Rita. I hope you are all safe and well and you have power!! xoxo Jess...
2100
connie guinn
kookla_g
Sep 24, 2005 3:16 pm
Jess, Hi! Thanks for your concern! We are ok- we evacuated to north Texas early in the week when the storm was estimated to hit Houston dead-on. Our plan...
2101
Jessica & Mark
nyte_faewyn
Sep 26, 2005 8:52 am
Connie, Thank god you guys are Ok. I had a horrible feeling come across me when I was watching all the news bulletins on TV and my immediate thought was for...
2102
Shannon
smashintwo66
Sep 27, 2005 4:35 pm
Hi Jess, How have you guys been doing? I have been checking on Jack and am amazed how big he is getting. I love the picture of he and Mark! Javad is doing real...
2103
Darlene
dm4462
Sep 28, 2005 1:26 am
Hi all, Kyle goes in tommorrow for surgery. He is having it because he has undecended testicles. Hopefully they can put them in place, if not they are going...
2104
Amanda Hollingsworth
adhollingswo...
Sep 28, 2005 1:52 am
HI Darlene! I hope Kyle's surgery goes well. Jacob had orchiopexy back in June and a funny thing happened (well, not too funny): his right one was in place,...
2105
Wendy
hughesdewy
Sep 28, 2005 9:03 am
Hello Darlene I'm sorry I haven't had an opportunity to correspond with you directly before, but always read everyone's correspondence with interest. Zak and...
2106
Amanda Hollingsworth
adhollingswo...
Sep 28, 2005 3:18 pm
We were also told that Jacob's may have to be removed if they couldn't be put in place. Not only were Jacob's testicles undescended, his scrotum was...
2107
Scott Fontana
masonsparents
Sep 28, 2005 7:45 pm
Mason too was born with undescended testicles and an underdeveloped scrotum. He had to do hormone shots to get the scrotum to grow prior to the surgery. He had...
2108
DARLENE MILLER
dm4462
Sep 29, 2005 5:51 pm
Hi All, Kyle is doing fine. They were unable to do all the surgery. He developed a yeast infection between the time we left home and they started surgery....
2109
Wendy
hughesdewy
Sep 29, 2005 9:55 pm
Hi Darlene Glad to hear Kyle is fine and we will be thinking of Kyle and you . hoping it all goes well. Take care Wendy and Zak x ... From:...
2110
Toni Abram
toni0571
Oct 4, 2005 6:17 pm
Hello Everyone I was reading about this survey in work today and thought it might interest some of the UK members. This is the link if you want to take part...
2111
briars_mom
Oct 4, 2005 9:34 pm
Hello all. We will be meeting with an equipment provider soon in regards to Briar's car seat situation. Briar has been able to use the car seat "norms" but...
2112
Amanda Hollingsworth
adhollingswo...
Oct 5, 2005 11:15 am
We use, and have used since Jacob was about 10 months old, a Costco Alpha-Omega 3-in-1 car seat. It is fabulous. It has a recline feature and we recline our...
2113
Scott Fontana
masonsparents
Oct 6, 2005 4:27 pm
We recently went through this with Mason. He is getting so big, but still needs the support of a 5 point restraint. We currently use the Snugseat 1000, this...
2114
Shannon
smashintwo66
Oct 6, 2005 5:22 pm
For Javad we found the Britax to be an excellent carseat! He has used it since he was very young and still fits into it . We are hoping that he will still be...
2115
Dana
casonsmiracle
Oct 9, 2005 6:48 am
Hi!! I am still new so this is my first reply and I hope that I do it right and do not embaress myself. We have had the Britax Traveler car seat for about 5...
2116
Dana
casonsmiracle
Oct 9, 2005 7:00 am
I am still new to the group. My son, Cason, has been sick since birth and we just got a MTM dx in June when he turned 2. He recieved a trach and g-tube in...
2117
redscootee@...
mrsbnmd
Oct 9, 2005 8:08 am
This is a very warm group and several of them have gone through what your are experiencing. So ask questions and hopefully they can give you some suggestions...
2118
redscootee@...
mrsbnmd
Oct 9, 2005 8:14 am
Dana, Your message came through just fine. I don't know where you live but we are in Roanoke, VA. From time to time the police will do free checks on car...
2119
Toni Abram
toni0571
Oct 9, 2005 3:13 pm
Hello Dana
Sorry to hear that Cason has been in the hospital again.
Sometimes these message boards can go a bit quite over the weekends but they pick up...
