Hi Carolyn, Glad to hear you had a good visit in Boston. Kyle takes Robinal. It works wonders for him. Each day is different though. Sometimes he gets it 3...
1523
Carolyn Hammerberg
chammerberg
Dec 3, 2004 5:40 am
Hi, All! I just wanted to let you know that Austin's genetic test came back and we've been told that his MTM1 mutation is one that they've never seen before....
1524
Shannon
smashintwo66
Dec 3, 2004 7:09 am
HI Carolyn, Javad had genetic testing done through University of Chicago and he has a type they have not identified before also. I guess that they have only...
1525
Carolyn Hammerberg
chammerberg
Dec 4, 2004 9:20 pm
Hmm... that makes me feel better about Austin's weight! He was around 8.5 pounds at two months, but Lisa said he gained four ounces in the last week because...
1526
Shannon
smashintwo66
Dec 5, 2004 2:27 am
Carolyn, OMG! I can't believe that they basically wrote Austin off. SOOOOOO FRUSTRATING! It's unfortunate that they only rely on what they can find on the web...
1527
redscootee@...
mrsbnmd
Dec 5, 2004 10:43 am
Connie, What wonderful news about Benjamin. So glad to hear he is becoming more mobile. Thanks for sharing. take care pat...
1528
Susekie@...
susekie
Dec 5, 2004 6:11 pm
Hi everyone! Do you know this???? I think it is a nice idea to remember all the children who had to pass. I knew that this was "invented"; in the USA or...
1529
Shannon
smashintwo66
Dec 5, 2004 8:04 pm
The link for this is www.compassionatefriends.org. Ther is info on where to find a candle lighting in your area. THanks for letting everyone know! Shannon...
1530
Carolyn Hammerberg
chammerberg
Dec 6, 2004 2:24 am
Gosh, this is so informative! Though I don't know why we've never heard of any of this, I hope that they were simply unaware of these options rather than...
1531
ANN MILLER
dm4462
Dec 6, 2004 5:13 pm
Hi Carolyn, Glad to hear Austin is doing better. As I said before, there will be good days and bad days. After awhile the bad days will seem less, you get...
1532
dotj67
Dec 6, 2004 5:48 pm
Hi Everyone , My name is Dorothy I havent written anything for awhile we have been busy with our son Nicholas he is almost 3 yrs old in January. He has mtm,...
1533
Shannon
smashintwo66
Dec 6, 2004 5:53 pm
Hi Carolyn, I read what Darlene said and totally agree. I also take Javad to physical therapy at the hospital (rehab program) every other week and speech and...
1534
Shannon
smashintwo66
Dec 7, 2004 6:55 am
Hi Dorothy, Glad to see you back. Have thought about Nicholas and hoped all was well! Shannon...
1535
ANN MILLER
dm4462
Dec 8, 2004 2:19 am
Hi Dorothy, Glad to hear Nicholas is doing good. Kyle will be 3 years old December 15th. Take care, Darlene ... From: dotj67<mailto:kd1025@...> To:...
1536
Shannon
smashintwo66
Dec 9, 2004 6:18 am
Hi Everyone, Here are the addresses I have compiled (you may have some already!) I didn't find one for Darlene (& Kyle), Toni, and Mason's family. I know there...
1537
Shannon
smashintwo66
Dec 9, 2004 5:10 pm
Rita had sent me her address, but I forgot to put it on the list. Michael, Rita, Tobias, & Marlene Kiera Andreasberg 3 31249 Hohenhameln Germany/ Deutschland ...
1538
ANN MILLER
dm4462
Dec 9, 2004 8:38 pm
Hi, Jimmy, Darlene, Kayla, and Kyle Miller 21460 Sydney Dr. Lexington Park, MD 20653 USA ... From: Shannon<mailto:smashintwo66@...> To:...
1539
Susekie@...
susekie
Dec 9, 2004 10:51 pm
THANK YOU!!!!! :-) :-) :-) Rita...
1540
Scott Fontana
masonsparents
Dec 9, 2004 11:36 pm
FYI : Here is our address: Scott, Staceyanne & Mason Fontana 1068 Viceroy Dr. Chico, CA 95973 scfontana@... www2.caringbridge.org/ca/masonryan Hope...
1541
Amanda
dhahjh
Dec 10, 2004 3:37 pm
Dorothy, Hi!! It is good to hear from you. I do think of you and Nicholas often. I am glad he is doing well. I didn't realize he and Jacob are so close in...
1542
Amanda
dhahjh
Dec 10, 2004 3:39 pm
Shannon, Thank you so much for taking the time to do this!! Love, Amanda ... already!) ... I...
1543
Carolyn Hammerberg
chammerberg
Dec 11, 2004 4:58 am
Shannon, here's mine (and many thanks for doing this!): Carolyn Hammerberg (Austin's grandmother) 6102 Ruthland Road Oakland, CA 94611 USA Looking through the...
1544
redscootee@...
mrsbnmd
Dec 12, 2004 7:46 am
A little early but interesting! take care pat...
1545
redscootee@...
mrsbnmd
Dec 12, 2004 8:00 am
A little early but good! take care pat Last April on a Sunday we took one of our "nowhere" drives, my husband was quietly driving a back road. I was occupied...
1546
Wright, Janice (J)
matthewsmomm...
Dec 14, 2004 1:05 pm
Al and I have just got back from our trips. It was good to get home and appreciate all that is good in SA. We loved seeing Nicky again and marvelled at how...
1547
redscootee@...
mrsbnmd
Dec 19, 2004 8:15 pm
Janice, Nice to know you and Al had a nice vacation. I know how hard Christmas will be for your family. I remembered the good times I was able to share with my...
1548
Scott Fontana
masonsparents
Dec 20, 2004 11:10 pm
Note: forwarded message attached. ... Do you Yahoo!? Yahoo! Mail - Helps protect you from nasty viruses. For those of you with boys still in diapers, what...
1549
Shannon
smashintwo66
Dec 21, 2004 5:26 pm
I know that Connie has had this same problem (she hasn't been online much because of computer problems), but I will call her and see what she is using. I...
1550
Amanda
dhahjh
Dec 21, 2004 5:39 pm
We are in the same predicament with Jacob. He will only be able to wear the size 6 for a little while longer, then I don't know what we are going to do....
1551
ANN MILLER
dm4462
Dec 21, 2004 9:54 pm
Hi, Kyle is also outgrowing the size 6 diapers. Our supply company is sending me some overnites and several other brands they carry to try. The good news ...
