The "Myotubular Myopathy" YahooGroup has a new, more private, home. The new address is http://healthsharegroups.org.

Our new home at HealthShare Groups (HSG) offers a greater opportunity for growth and development of a more interactive community. HSG is an association of over a hundred health related support groups and is one of the fastest growing social networks on the web.

This group is no longer accepting new members and all posts from current members will soon be suspended.

This site will remain open for informational purposes only.

Note to All Members: The posting of messages with the intent to promote products and or services are not allowed. Signature lines with the same intent are not permissible. The purpose of this group is to provide support. Personal attacks, "flaming", "trolling", and offensive messages are not permitted in this group. The group moderators will remove offensive messages and members who violate these rules will be permanently removed from the group.