Anyone got this article:
Myelin, mitochondria, and autoimmunity: What's the connection?
Carelli and Bellan Neurology.2008; 70: 1075-1076
If so, share the news on it! Looks really interesting!
Thanks x
--- In MyelinSheathProtein@yahoogroups.com, "librarygirl4"
<librarygirl4@...> wrote:
>
> Hi Sonya,
> Do you see a DAN doctor based on the demyelination only? My
> daughter had a reaction to her 6 month shots, but it was on her
leg,
> no fever. However, she has demyelination showing on the MRI at 13
> months. My other question is, did your son have portions of
> demyelination, or was it demyelinated everywhere in the brain? My
> daughter's is everywhere, & her MRI looks similar to the
myelination
> of a newborn, no structural problems with the brain, just the
myelin
> missing all over. She has hypotonia & can't sit up or crawl.
Other
> than that she's very happy & easygoing. Her genetic tests
> (Chromosomes and leukodystrophy tests) & testing for Biotinidase &
> CMV antibodies came back negative. So we're stuck in limbo, not
sure
> of which tests & paths to go now.
> Thanks,
> Marilyn
>
>
>
> --- In MyelinSheathProtein@yahoogroups.com, Sonya OBrien
> <frogfoot1969@> wrote:
> >
> > Welcome Maria, I am also sorry to here what happened to your
child.
> I have a 4 yo and we are also seeing a DAN! we go on Thurs. to get
> our results from our neuroimmunology panel. I have read great
things
> about the LDN but I haven't started it yet because I wanted to try
> all natural things first. I have read that Spingolin or Basic
myelin
> protien can help with the myelin issue but have not tried it myself
> yet. I think in the files section there is a link to info about it.
> Myself and my Mom both have MS so unfortunately I do know a lot
about
> it. My son didn't have regressive Autism but had a reaction to his
6
> week vaccines which we think triggered his autoimmune response. He
> has demyelination that shows on his MRI among other things. Good
luck
> and keep us updated on how things go.
> >
> > Sonya, Mom to Seoc multiple diagnoses
> >
>