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Myalgic_Encephalomyelitis-ites_United · M.E. Support and Activism

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12 New Messages - New Questions

Description

This is a group where people with the organic neurological, cardiac, immune and neuroendocrine illness Myalgic Encephalomyelitis (classified at G93.3 by the World Health Organisation) can meet other people with the same illness for advice, support and new friendships...... and perhaps even some small political/activism discussions too - illness allowing.

This is a group that cares about challenging the myths about 'CFS' and ME and isn't prepared to accept how things are now; where people with ME are abused/neglected etc. You wont hear the same old 'I have a miracle cure for 'ME/CFS'' and 'oh I am just so tired!' and 'FM/Lyme/Candida is pretty much the same illness' and 'ME/CFS' is helped by exercise isn't it?' and 'aren't the CDC doing a great job to help us now?' stuff here! We know that knowledge is power and that debunking these myths is really important. You'll be sent the group's new M.E. Manifesto when you apply for membership, please read and evaluate it carefully!

Join up and tell us a little bit about yourself when you are able, or just jump right in and start replying to posts if you'd prefer. Anyone with an interest in improving M.E. advocacy or who has M.E. is welcome.

BUT: Anyone thinking of joining just to talk about an 'amazing miracle treatment' - please don't! Basically, if you've come up with an easy answer, you have NO IDEA what the actual question is. M.E. is NOT 'CFS' or 'ME/CFS'! Genuine members only please.

PLEASE also ignore ALL the silly ads for 'fatigue' treatments on this site they are NOT vetted or recommended by this group in any way.

Note: It is important to be aware that M.E. and CFS are not synonymous terms. See What is M.E.? for more information on all aspects of Myalgic Encephalomyelitis and a discussion of why the disease category 'CFS' must be abandoned.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 153 172 135 35 48
2011 177 55 52 142 100 208 134 53 117 116 75 152
2010 430 218 256 424 329 145 116 300 397 187 238 231
2009 406 507 298 207 293 207 164 106 356 238 180 375
2008 150 104 77 85 47 57 169 131 169 527 572 260
2007 198 110 67 87 40 7 9 15 21 16 51 44
2006 55 32 105 73 57 64 149 333 754 511 250 474
2005 55 42 37 42 21 10 20 34 15 44 22 19
2004 3
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