I know for my son, he takes a long while to wake up from anesthesia. He is way more sensitive to anesthesia than normal ppl....
104785
Susan Lemme
slemme2000
Apr 27, 2013 4:50 pm
Something I happened across, for information only, I have no firsthand knowledge. From Boston's Childrens Hospital Children's is consistently at the forefront...
104786
Nimmo Family
linuxuserpro
Apr 28, 2013 4:09 am
Great info, thx for sharing....
104787
Roger Kulp
leucovorinsaves@...
Apr 30, 2013 1:19 pm
Lots of stuff causes seizures.I think PFAPA is autoimmune.One thing I have learned about mito,is there are also any number of other metabolic diseases that go...
104788
Kelli Hopkins
not2bz2scrap
Apr 30, 2013 2:37 pm
Roger that's very interesting! Do you take a large dose of leucovorin? Kelli http://nomatterwhathappens-kelli.blogspot.com/ ...
104789
mark schofill
tmschofill
Apr 30, 2013 2:57 pm
http://hotsonglyricshere.com/wp-content/themes/twentytwelve/average.php?tfmgk752gskhh ******************** We are here to ruin ourselves and to break our...
104790
Rob Weiner
rob_weiner
Apr 30, 2013 4:32 pm
Suzanne, I know I have posted this first bit before, but start a daily health log/diary. Â Especially if you are just starting treatment. As far as the mito...
104791
crimson_wife
Apr 30, 2013 4:32 pm
My youngest has diagnoses of high-functioning autism, hypotonia, and dyspraxia. Her carnitine tested low and she had a big jump in her functioning after...
104792
Rob Weiner
rob_weiner
Apr 30, 2013 4:32 pm
Beth- It doesn't need to be the new normal. Â Keep focused on controlling your stress and working on your health. Â It can get better. Try new diets, try...
104793
Nimmo Family
linuxuserpro
Apr 30, 2013 4:52 pm
Might want to try cutting way down on carbs and focusing more on fats, veggies n proteins...cut out diet sodas, stick to water, coffee and tea. All the best......
104794
Sean Durity
sdurity
Apr 30, 2013 5:07 pm
Dr. Frances Kendall is here in Atlanta -- not one of the cities you mentioned. However, I think she can do things with the medical records, blood tests, and...
104795
Alyssa Davi
johnalyssa43
Apr 30, 2013 6:18 pm
I wonder if rx Leucovorin Calcium (folinic acid) might help you... some kids report big improvement in anxiety (and mood) when on this. It's been called the...
104796
Roger Kulp
leucovorinsaves@...
May 1, 2013 1:14 pm
I have cerebral folate deficiency syndrome,and autism.I am now working towards a mito diagnosis.I have been on B12 for years for megaloblastic anemia.From what...
104797
Roger Kulp
leucovorinsaves@...
May 1, 2013 1:51 pm
Yes.75mg a day. Roger To: Mito@...: mommie2angels@...: Tue, 30 Apr 2013 10:37:32 -0400Subject: Re: [Mito] siezure cure? Roger...
104798
m poole
mbpudd
May 4, 2013 3:00 am
I would also like input on any pain meds that work. ________________________________ From: Roger Kulp <leucovorinsaves@...> To: "Mito@yahoogroups.com"...
104799
Nimmo Family
linuxuserpro
May 4, 2013 3:02 am
Anyone try homeopathic meds with success? Seems that would be a good alternative....
104800
m poole
mbpudd
May 4, 2013 3:04 am
why is this used? ________________________________ From: "gotamaralynne@..." <gotamaralynne@...> To: "Mito@yahoogroups.com" <Mito@yahoogroups.com> ...
104801
gotamaralynne@...
thegirlloves...
May 4, 2013 3:08 am
It's used for the MTHFR genetic defect. My dr. Tested me for it after I asked for it. It is part of your detox system. And other systems that I can't describe....
104802
Cheryl Fields
fieldscheryl
May 7, 2013 12:03 am
Cerebral folate deficiency and for some pts on chemo. Dr. Quadros at SUNY was doing the testing for the cerebral folate receptor antibodies, but I think this...
104803
Roger Kulp
leucovorinsaves@...
May 7, 2013 12:03 am
I take it for cerebral folate deficiency,the cause of my autism.In autism,it often goes along with mitochondrial disease,which I am waiting for a workup for....
104804
Roger Kulp
leucovorinsaves@...
May 7, 2013 12:51 pm
The lab was damaged by Hurricane Sandy. Are there mito specialists who know about cerebral folate deficiency and autism,besides Dr.Frye at Arkansas...
104805
David Staup
astrodve
May 7, 2013 1:38 pm
Roger I have read your posts and suspect the following info might help you in your search for understanding and help. I have identified what I believe to be...
104806
Roger Kulp
leucovorinsaves@...
May 7, 2013 2:15 pm
I have an actual diagnosis of cerebral folate deficiency syndrome from SUNY Downstate.It is this diagnosis has led me to look for a mitochondrial one,after...
104807
David Staup
astrodve
May 7, 2013 7:22 pm
Roger what I'm saying is low doses of benadryl inhibit (reduce) the amount of cell death to more normal levels... this will allow you to function more while...
104808
Randall
startfromscr...
May 20, 2013 2:06 pm
Haven't been here in a few years but symptoms have worsened and looking for the most current protocol or protocols for supplements, diet, etc. I have one from...
104809
Randall
startfromscr...
May 20, 2013 2:06 pm
Hi, I haven't been here in a few years and wondering if there are any current, updated suggested protocols (e.g. CoQ10, vitaman E, etc.) for those with...
104810
Robert Pische
crimsonacecl...
May 20, 2013 2:06 pm
Try mayo clinic Not sure how to post on board ,but my sons had mito since 8 now 19 hed usually pretty normal 1 episode a year ,he takes l...
104811
Roger Kulp
leucovorinsaves@...
May 20, 2013 2:13 pm
I have asked them.I have learned this is so rare,that Dr.Ramaekers at Centre Hospitalier Universitaire de Liège in Belgium is the only real choice I have.He...
104812
Rick3224
rickarnitine
May 20, 2013 2:22 pm
I get nose bleeds every time I try Carotene, even worse if its vit E ( can only take 100mg a day). And I don't have any hematologic problems. Rick Sent from my...
104813
LindaP
lindasbook2004
4:41 am
I offer as much as i know & feel it saves my life yet not cure. i use high dose Vit B complex B 100 mg 2x day, green &black tea & other teas eg red white...
