My son wished for a party and a Wii with games. He ended up with a Wii, 12
games, a new 40" Sony flat screen television with entertainment center, a
Sony...
Bode had an appt. w/ Dr. C in July. He noted Bode's crazy flexibility and very stretchy skin (cutix laxa or EDS like). Nevertheless, he sent us that day to...
Make a Wish is coming by this weekend to grant Jonathan a wish but we have no idea what to wish for. He cannot tell us what he would like to wish for so...
Hi all. I have been calling around to get prices on the mito cocktail. The ubiquinol alone at our compounding pharm will be nearly $400 for one month and...
So sorry that you and Ainsley are going through all of this. What a nightmare GI issues are for so many with mito. I pray you find some answers to relieve her...
Interesting question Susie. I had 4 impacted teeth and nightmare surgery in teens. My kids have *some* mild dental issues as well - one has late erupt first...
Hi- I have been dealing with mito for 13 yrs now with all different ranges of severity in one family. I know that it can be impossible to completely rule out...
when i posted last our son was going in for the above surgeries.. a few days leading up to the operation everyone including his school teacher we decided he...
Good Evening, Our son is 14 and also in the same boat has to have a GA if xrays are to be done or if needed any dental work..When he had ENT surgery about 5...
Hi Krystena- Thank you for sharing you blog. I am on tamiflu because my husband and daughter were very sick with some virus that turned into bronchitis-...
Complex 1 that is God Bless, Rafael & Elicia Rivera www.sheltersonline.com ________________________________ From: Rivera Family <riverafamilygeorgia@...>...
My daughter has had alot of trouble growing and loosing teeth she is comples 1 interesting.. God Bless, Rafael & Elicia Rivera ________________________________...
Kim saw a dentist this week for the first time in along time as she has to be put to sleep for them to even look at her. He did some xrays and says she still...
My daughter and son are both on keppra. but this past month at their 6 month neuro visit he said that new testing for keppra levels are now being followed 1 x...
Breanna is on Keppra so there is no need to test her levels. Heather Mommy to: Sarina-(Hodgkin's Survivor, CP, Spina Bifidai Occulta, Scoliosis, diabetes, ASD,...
Question to the Group~ For those who have children on seizure medication….  What is the typical protocol that you’ve experienced for having your...
Hmm ,I too thought I had heard about a connection between connective tissue disorders and mitochondrial disease... my 3 yr old has HEDS and possible mito (as...
Hi there. Welcome to cyber world. :) If you use a particular name and google it you will find it if it's original enough... I found this out too when I was on...
Hi all! Thank you so very much indeed for the advice and support regarding Ms. Megan's ileostomy issues. I'm so glad I posted because I got several great...
I missed it, how do I order magnets? Please reply. Thank you Janelle McGuire ... From: betsygreen4 <betsygreen4@...> To: Mito@yahoogroups.com Sent: Tue,...
sei1126@...
Nov 11, 2009 3:51 pm
98735
Good to hear that went well and no issues with nerves. No, this doesn't rule out mito - confirms there is no problem in "communication network" of brain,...
Thanks all for the support for the nerve conduction study and EMG for the kids. They did really well at the tests and we even managed to pop in for fasting...
Hi, I am new to the mito world and here, but wanted to tell you love your site. Your words are inspirational and your family is beautiful! Do you do...
That is why I sort of mostly stopped writing as someone years ago at son's school was looking up what I wrote. If I recall right this is a public list. Some...
KAFoley2@...
Nov 11, 2009 12:44 am
98731
 I know some of you use these strollers because they support bigger kids, so please be careful! http://www.cnn. com/2009/ BUSINESS/ 11/10/stroller....
The only thing I know of is that you can go in and delete your own posts and the TPN group I am on is totally closed- which means that you cannot search the...
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