when i posted last our son was going in for the above surgeries.. a few days leading up to the operation everyone including his school teacher we decided he...
Good Evening, Our son is 14 and also in the same boat has to have a GA if xrays are to be done or if needed any dental work..When he had ENT surgery about 5...
Hi Krystena- Thank you for sharing you blog. I am on tamiflu because my husband and daughter were very sick with some virus that turned into bronchitis-...
Complex 1 that is God Bless, Rafael & Elicia Rivera www.sheltersonline.com ________________________________ From: Rivera Family <riverafamilygeorgia@...>...
My daughter has had alot of trouble growing and loosing teeth she is comples 1 interesting.. God Bless, Rafael & Elicia Rivera ________________________________...
Kim saw a dentist this week for the first time in along time as she has to be put to sleep for them to even look at her. He did some xrays and says she still...
My daughter and son are both on keppra. but this past month at their 6 month neuro visit he said that new testing for keppra levels are now being followed 1 x...
Breanna is on Keppra so there is no need to test her levels. Heather Mommy to: Sarina-(Hodgkin's Survivor, CP, Spina Bifidai Occulta, Scoliosis, diabetes, ASD,...
Question to the Group~ For those who have children on seizure medication….  What is the typical protocol that you’ve experienced for having your...
Hmm ,I too thought I had heard about a connection between connective tissue disorders and mitochondrial disease... my 3 yr old has HEDS and possible mito (as...
Hi there. Welcome to cyber world. :) If you use a particular name and google it you will find it if it's original enough... I found this out too when I was on...
Hi all! Thank you so very much indeed for the advice and support regarding Ms. Megan's ileostomy issues. I'm so glad I posted because I got several great...
I missed it, how do I order magnets? Please reply. Thank you Janelle McGuire ... From: betsygreen4 <betsygreen4@...> To: Mito@yahoogroups.com Sent: Tue,...
sei1126@...
Nov 11, 2009 3:51 pm
98735
Good to hear that went well and no issues with nerves. No, this doesn't rule out mito - confirms there is no problem in "communication network" of brain,...
Thanks all for the support for the nerve conduction study and EMG for the kids. They did really well at the tests and we even managed to pop in for fasting...
Hi, I am new to the mito world and here, but wanted to tell you love your site. Your words are inspirational and your family is beautiful! Do you do...
That is why I sort of mostly stopped writing as someone years ago at son's school was looking up what I wrote. If I recall right this is a public list. Some...
KAFoley2@...
Nov 11, 2009 12:44 am
98731
 I know some of you use these strollers because they support bigger kids, so please be careful! http://www.cnn. com/2009/ BUSINESS/ 11/10/stroller....
The only thing I know of is that you can go in and delete your own posts and the TPN group I am on is totally closed- which means that you cannot search the...
Hi! I have noticed this as well. I learned this by googling my name (before I joined facebook), & some of my posts to this group popped up. I think it is...
To all of those who've emailed me internationally, yes I can send them internationally, I just need to calculate the postage and handling each time at the post...
WHAT THE.... HEY PATTIE!!! BOY HAVE I BEEN "OFF THE SCENE" FAR TOO LONG! PLEEEEEASE fill me in when you can. I ALWAYS THOUGHT YOUR BOYS HAVE MITO. I think I...
Hi guys! For those of you that realize I've been MIA for....well... a LOOOONG time, I thought I'd share with you our blog. Love, Krystena Richards Mito/GAII...
Jen - My children and I have HEDS (Hypermobile Ehlers-Danlos). The geneticist never said anything about the HEDS effecting mitochondria. I have not come...
Hi, Sharon -- That's right...I remember reading that on the boys' Caringbridge page. There are two parts to the test. The first part is a nerve conduction...
I would have to agree with this. My 3 sons and I all have Mito complex 1 with a mDNA mutation on ND1. My kids and I always present with elevated Pyruvate....
Interesting about the mircroarray and ruling out mito. Leah just had this test done this past summer and we got the results back in September and it came back...
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