Theano, How is Dino? Â We made it home and are trying to settle in but I am feeling very overwhelmed. It will pass in a couple of days I am sure of it!! Â ...
97932
mandy231177
Oct 1, 2009 10:36 am
Hello, Thank you for your answers. For you it might be not such a big thing, but i am feeling kind of relieved and I am so happy that there are children in the...
97933
Lee Collins
leecol211
Oct 1, 2009 11:45 am
You are absolutely not alone. The supplements have worked like a miracle for my daughter. We pay for them out of pocket. It's expensive, but worth every penny!...
97934
Erin L
ffwife73
Oct 1, 2009 2:22 pm
Does anyone have any thoughts on this subject? I don't sell it but have friends that do and they've tried more than once to try to get us to give it to Ian....
97935
Darla Klein
honeybear50317
Oct 1, 2009 5:18 pm
Yes, the post-hospitalization fatigue (mentally and physically) has hit you too. Marianna and I just came home from a 14 day stay inpatient (congestive heart...
97937
Cheryl
mama_rfva
Oct 2, 2009 1:48 am
I am concerned with the fact that there are dead zones in the small intestine. On a small bowel follow through do things progress through in a timely matter. I...
97938
Loriann Melby
LoriannMelby
Oct 2, 2009 4:54 am
Has anyone used tranxene in mito patients? It is used for anxiety and partial seizures. The neurologist ordered it for Lucas to see if we can decrease his...
97939
nena1294@...
julianna1294
Oct 2, 2009 9:45 am
_YouTube - Jason McElway, Autistic Basketball Hero_ (http://www.youtube.com/watch?v=KZJhfP50bxE&feature=PlayList&p=510BEECAE4ADDB98&playnext=1&playnext ...
97940
balcellsfam
Oct 2, 2009 2:33 pm
Today at noon you are welcome to join the MitoAction monthly conference call - this month the topic is coping with a disease that is invisible and ambiguous in...
97941
Taylor Smith
taylorsmithsn
Oct 2, 2009 3:04 pm
Hey all, Â it has been a while since I wrote, but I recall someone asking about Riboflavin. I was poking around on Solace's site and saw this in the Coming...
97942
nena1294@...
julianna1294
Oct 2, 2009 5:38 pm
_RxList - The Internet Drug Index for prescription drugs and medications_ (http://www.rxlist.com/script/main/hp.asp)...
97943
Theano Delis
theanodelis
Oct 2, 2009 5:58 pm
Karen, I hope Justin is doing better. We will continue praying for him.  Our two main concerns with Dino are his skeletal muscles and his lung capacity. He...
97944
gpk8905
Oct 2, 2009 7:24 pm
... Dear Crystal, We use Dr. Melton from cleveland clinic. Thanks Pia...
97945
C Whynott
clwhynott
Oct 2, 2009 7:35 pm
Hi sorry I was in the process of ordering a PECS schedule an I lost the woman's name and address I was ordering it from. If you are reading this would you send...
97946
Tyler
jayroeta
Oct 2, 2009 7:51 pm
Hello, I have a son who is seven and has AS. He also has rheumatoid arthritis and a movement disorder. He has always puzzled doctors and doesn't really "fit"...
97948
HEATHER EVANSSMITH
zoeyrainbow
Oct 2, 2009 8:12 pm
Elle, We don't have an offical DX of Mito, but when the girls have any surgery they treat them like the are allergic and do a different kind of a anesthesia. ...
97949
KA
kalars69
Oct 2, 2009 8:25 pm
Wlecom Elle! Head to www.umdf.org site there on the front page is a link to a Mito 101 primer online version OR you can also request a CD version for Docs and...
97950
Theano Delis
theanodelis
Oct 2, 2009 8:42 pm
Elle, I am from Somerset County, Warren Twsp. We started out in St Barnabas, Livingston then we went to Columbia Presberyrian, NYC and got a definite diagnosis...
97951
nena1294@...
julianna1294
Oct 2, 2009 9:02 pm
Hi Elle, I am in mercer county NJ Hamilton township, Julianna has had a difficult time with anesthesia due to the damage in her brain. hugs millie ...
97952
nena1294@...
julianna1294
Oct 2, 2009 9:03 pm
DR. RUSSELL SANETO, D.O., PH.D., ASSOCIATE PROFESSOR "We're fighting to improve treatments for children with mitochondrial diseases to give them a better...
97953
C Whynott
clwhynott
Oct 2, 2009 10:19 pm
Definitely don't quote me on this but I believe Dr. Cohen stated that it reqires much less anesthesia for mito patients, so I commend you for addressing...
97954
gibbons.stacy
Oct 3, 2009 1:02 am
I took my daughter to see her Neurologist yesterday and told him that I had noticed a lot of regression and that she tested low enough to qualify for...
97955
gibbons.stacy
Oct 3, 2009 1:10 am
Yes, My daughter's ER note tells the ER staff that she requires less anesthesia and that she is supposed to be considered dehydrated BEFORE she is clinically...
97956
Alyssa Davi
johnalyssa43
Oct 3, 2009 1:28 am
Yes, it's too. Dr. Cohen has tried a pre-market sample himself and says it is indeed tasteless. ... From: Taylor Smith <taylorsmithsn@...> Subject:...
97957
A Chapman
amandajchapman
Oct 3, 2009 1:57 am
i'm no doctor but here a few thoughts...  when i had kidney stones, my back hurt. when i have kidney infections, my back hurts. so i'm thinking that...
97958
Lee Collins
leecol211
Oct 3, 2009 2:03 am
Docs can be so frustrating! Neuro symptoms are really scary. Mito could be causing some or all of her symptoms, but docs don't know how to fix mito. A lot of...
97959
LNerenhausen
lisanerenhausen
Oct 3, 2009 2:18 am
I know the subject line may be a little weird; but here is my question. I know kids get tired and they can show it physically, red cheeks, lower muscle tone,...
97960
Porscha Waggle
jddancer5368
Oct 3, 2009 2:53 am
I think this is a great question. Because I see the same issues with Christian. He is physically sometimes okay but you can see he is just tired. Sorry I could...
97961
Stacy Gibbons
gibbons.stacy
Oct 3, 2009 3:07 am
My 3 yr old does COMPLETE nonsense things, it is kind of funny but then it isn't.. LOL She has walked up to the wall and yelled at it to leave her alone or...
97962
KA
kalars69
Oct 3, 2009 5:30 am
Stacy: http://www.umdf.org/atf/cf/%7B28038c4c-02ee-4ad0-9db5-d23e9d9f4d45%7D/NEUROLOGICAL_MANIFESTATIONS_CHILDREN.PDF Â I think this link should still work -...
