Hi Everyone!! I have fantastic news from CARE Memory Bands!!! I have been speaking with them back and forth about how I LOVE this idea of this medical alert...
My piece at Age of Autism went up today.Some of you may have seen it.I have been afraid to go over and look at it.I was waiting until the comments build up,to...
Congrats on being published! Go ahead and read comments - Mostly positive feedback :-) One person added in their 2 cents about plastic being responsible for...
In March of 2008, another child with Complex I who had intractable epilepsy started taking Vigabatrin as another "last ditch" effort to help get seizure...
Our 11 year old with Aicardi Syndrome was placed in a vigabatrin study program when she was 3 months old. When her infantile spasms started at 4 weeks old age...
Kelli: Ainsley is also currently on Keppra, Lamictal and Phenobarbital, along with the Vigabatrin. She was on all of those before we started the vigabatrin,...
Lisa, Abe is on all the meds Ainsley is on along with Topomax & Clonazapam. He also takes klonopin, ativan & diastat for rescue meds. We have pretty much...
I personaly do not agree with DAN! Yes...we work with Dr. Natowicz and he does not agree with much of DAN! practice. I can't remember the name of this DAN!...
Hi Roger, You said that a DAN! offered to see you for free....chelation and much of what they do with HBOT is very expensive. I can only imagine that they...
Sorry for the mass email, please if you do reply hit reply do not hit reply all. But I just seletected everyone in my address book for this email. I have been...
... Just wanted to add something that helps with my kids who suffer chronic sinusitis.... we got a small steaming machine and run saline steam up through their...
Hi Antionette, Don't yell at me.Talk to all the local doctors who refused to see me.Get on Dr.Cohen's case,for requiring that I have a primary care physician...
Hi All We are going to Cleveland in Aug to see Dr. Cohen & I am looking for any tips that I may have not thought of yet....to make the most of this trip. We...
I have a question about complex I, II & III.............. Has anyone ( or your child)  had a skin fibroblast & had the result come back very elevated in...
I am sorry if you think I am yelling...not at all what I was doing. I don't have a local doctor either. It is sad that so many of us are struggling for...
I went to the UMDF symposium in DC recently and every physician there agreed that HBOT is one of the worst things that could be done for a patient with mito....
It saddens me to see the argument goes on about treatment for autism. I have been in the field as a parent or professional (teacher and social worker) for 30...
Lindsey - there are cases of confirmed mito who have had sucess. Kristi Hogg is one - she followed though based on Grace Kientz sucess...The UMDF docs aren't...
although it varies from state to state and hospital district to hospital district and insurance policy to insurance policy, sometimes doctor's hands are tied...
chelation and hbot can also be very dangerous. Â ... From: kikijabunce <ajbunce@...> Subject: [Mito] Free DAN! not for long To: Mito@yahoogroups.com Date:...
i've been knocked down so many times by parents in the autism community for saying things like enjoy your kid, embrace their uniqueness, revel in who they are,...
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