Hi Meagan, If everything's backing up, placement can change within hours. I've had it happen with ^Heather^, she had the placement checked, got back up to the...
It happens.....far too often in general, and even more so within the mito world. It¹s a complicated disease that likes to present atypically and is still not...
Ava has had a MA bracelet for over a year now, but given the dx now, I'm wondering what I need to put on the new one. She falls a lot, and the current one is...
Hi Densie, I have Mito and Lupus. I also have three kids with mito and one has a psoitive ANA and the other rheumatoid arthritis. I have the butterfly rash on...
1)What are your/your child's SLEs like ?Please describe them in as much detail as possible. 2)What is cranial synostosis ?It is supposed to happen in autism a...
The more I read,the more I think that this is all due to cardiomyopathy,and conduction defect,.I was diagnosed with both in 1981.I was told they were...
my plan is to list the majors and then a couple of doctor's & hospital affiliation and their phone numbers.  i'm thinking that the names of the doctors &...
Although I am a very committed loving mother- I have been close- an ignorant doctor thought my baby presented as having fetal alcohol syndrome when I don't...
Our Mito Dr told us to put on ours "Mitochondrial Disease, No lactated Ringers, No PCN".that is all that will fit on a regular (not small) sized bracelet. My...
Every story I have heard about regarding CPS,and children with medical issues usually involves a doctor,nurse,or someone else at a school,hospital,or wherever...
All docs involved don't seem to trust her tube right now. She was admitted tonight (after a nightmare day/evening in the ER). She is not getting feeds...
No Roger, not saying it has anything to do with posting to groups or otherwise. It¹s usually the result of some medical/educational professional involved in...
Dasha and I both allergic to corn. You would not even begin to beleave the number and types of products corn is used in/on. This site may give you some...
Sorry right now i do not have the time to split who the emails need to go to and who is doesn't. but I have alot of people emailing, calling, texting and...
So sorry to hear about Christian. I am sending prayers that he recovers
quickly. Hugs,         Wendy Mito411 Volunteer Coordinator ...
Thank you. He finally woke up just about 20 minutes ago. Sent from my Verizon Wireless BlackBerry ... From: "Wendy D" <ricwendy@...> Date: Tue, 2 Jun...
Juile - we live in a suburb of St. Louis (Chesterfield). We have a 5 year old with mito and we receive all our medical services from st. louis childrens. I...
ok, so we're now in the murky waters of trying to identify if our 5 year old has an attention problem, a learning disability, or if what we're seeing is just...
Who have you seen in regards to the attention problem? We saw a psychologist who does a special type of test. Our oldest son has ADD and was diagnosised as a...
Kristen- I have a 8 year old son with ADHD - Combined type (hyperactive, inattentive and impulsive). He has a medical and educational diagnosis of ADHD. We've...
Hi All, I was just curious to hear if anyone has gotten in touch with either of these charities and if you have, were they helpful in paying for meds or...
We live in Illinois but we used to go to St. Louis Childrens but during the dx period they couldnt find anything and refused to believe me on what me and our...
Have you taken your child to a very good nueropsychologist for evaluation of ADD/ADHd and learning disability. That is what we did and it was worth it! ...
True we also went to an audiologist to check to see if our kids had CAPD- Central Auditory Processing Disorder. She was awesome and knew her stuff. It is...
Help! G-tubes, J-tubes, TPN - Where do we begin? MitoActions's speaker this month is home nutrition support expert Deborah Pfister from NutriThrive. * What is...
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