Hi everyone just a question in regards too sharing a room with someone to split cost, and if anyone in cleveland area is driving to spilt the costs also. I...
Lisa, Just a side note concerning the company Epic4Health. As the CoQ 10s can be quite expensive it is good to know that this company will offer discounts to...
Lisa, The Carnitor tabs that are used on the diet can easily be dissolved in water and put through a tube, that's what we did for Aidan. Tara & Aidan To:...
Hi Linda I'm sorry your daughter is having so many issues simultaneously, and watching your child's health decline is just heart-wrenching (our Mito angel...
Can you tell me more about the mito cocktail compounded please? thank you Migdalia (Dee) we live with Jesus in our heart and lives!!! Can you tell me more...
From what I have seen everybody gets a slightly different compound based on the lab results/condition/size/doctor, etc. If you go on the UMDF site and click on...
You are correct in stating that the media is blowing this up big time. As they state more people die from the typical flu than from this flu. But.....if your...
I am coming to the "professional's" for assistance. Connor has always been very regular as far as his BM's. He would go 2 times in one day and then skip 2...
Good morning, I took a look at the website that was in one of the prev responses and will be taken her to the pedi the next time they appear. Dasha was...
My son had very runny bms all the time for the first year of life and then we traveled to the US and since we got here last march he has been constipated--I...
I eventually outgrew my severe problems with fecal impaction,only to develop severe malabsorption,inflammation,and spastic colon.That started when I was...
Thank you Roger for sharing, as my son is autistic and cannot tell me, Kathy In a message dated 5/5/2009 12:32:29 A.M. Eastern Daylight Time, ...
KAFoley2@...
May 5, 2009 6:52 am
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Jen, these bowel issues certainly are not normal, but I don't think they are unusual either in mito kids My daughter has a similar story. Used to be very...
Connor is also non-verbal. It makes it so difficult! I never know if he's uncomfortable, hurting, happy...My husband and I are always guessing. He makes a few...
My son used to have long periods without a BM. We used Flax Seed Oil or Prune Juice on a semi-regular basis to keep him "moving" and if needed we used a...
Jen Is Connor on L-Carnitine? Â My daughter has similar issues -going for long times between BM; when we increased her dose (500mgAM/250mgPM)Â and changed to...
--We see Dr Goldstein and LOVE HER.. always able to answer questions.. and easily accesible.. I would stay outside of Pittsuburgh.. and drive in.. as the...
I remember Goldstein from way back in 2001 when she started her interest in mito. She was working with the geneticist there at the time- and even came to the...
My daughter is 3 1/2 and has been hospitalized repeatedly over the last 18 months with feeding intolerance, pseudo-obstruction and motility issues that have...
I have a friend who will be moving to Atlanta this summer. She has a special needs daughter (hearing impaired and some vision impairment). For those of you...
I am not sure about others, but I have had a good experience with Gwinnett . While I did have to go into the IEP meetings prepared and stand my ground on what...
Hi Everyone, Is anyone else dealing with,my result, heteroplasmy C15925S(G+C) alteration in the tRNA daughter's results, D50619/BU65196 alteration in the...
Note: forwarded message attached. *Car A/C (Air Conditioning) MUST READ!!! ** * Please do not turn on A/C as soon as you enter the car. Open the windows after...
Hi, all, I'm so sad and scared. We thought our little girl who is now six months old might be free of mito. She seemed so strong at birth. Our elder ...
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