Shawna-your insurance will be billed first and then any remaining cost will be billed to Medicaid. If your plan says you get OT,PT,speech etc for say 3 hours...
Shawna: I need to disagree when you call them idiots. The reason I say that is they have different guidelines than what we have in our mind for therapies....
Rachel is still only very strongly suspected mito (indicated but not proven by symptoms, blood work, frozen biopsy) but no ETC testing was done. We are...
I would like to reply on this subject also. when the tendons and muscles start to contract, therapy does help, a little. Your child: to really get a lot out of...
I have some things to catch up with at home and am going off lists for a while. I hope everyone has a good month of March. Leah mom to John, 4, possible...
I appreciate your input. Unfortunately we have spent a year battling the school just to get any IEP goals other than vague sentences with no measurable...
Doyle, this was hugely valuable, thank you. I went to your beautiful site for Audrey. What an angel. I guess my bigger question is, why does the spasticity...
Jenna- Yeah- I understand about being very strongly suspected mito- but no clinical evidence- so are me and my daughter. We have low blood pressure but don't...
I got this from a very good friend. I think it is a message to all our mito Moms as well as those with other disabilities and "regular" kids. Hope you like it ...
Okay my little guy had labs done at his 6mnth check up with metabolic and they said his lactate was 2.1 which they said was good for him he is usually high....
Hi! I need help to figure out what to do here. My hubby and I have noticed that Zach probably has 5-10 seizures on a typical day. However, he can't go...
We have the same problem, I think it's the lighting. We can only take adeline shopping at certain stores. I have tried many things, but haven't figured it out...
Is it cold where you are? Maybe it's the temperature changes? What about wearing sunglasses in the stores, maybe it's the neon lights. They trigger...
Shawna, Â At this point I can only tell you what we experienced. this is a very unpredictable disease, so for me to tell you what to expect would be wrong....
It also occured to be that there may be some type of glasses that can help, other than sunglasses. I have a special filter of something in my prescription...
I would think you could try sunglasses and if that doesn't work, ask an eye doctor.  My eye doctor prescribed my glasses because of my migranes. I just...
Hi tracy - quick response...but more time later tonight.... Â I would ask for an amubulatory EEG - basically they "Robot up" Zach and wrap him in a turban...
Melanie, We live in Mississippi. We aren't cold. I've thought about it being the lights. But he didn't seize from photostimulation on the EEG and the...
I forwarded it to Dr. Boles...I'll let you know what he says. I have a couple of thoughts about it though.  I wonder if the mito patients were taking...
This is what Dr. Boles said... "I was one of the reviewers of his grant proposal that strongly recommended that it be funded. This is not yet ready for...
we do have tons of clinical evidence but not definate proof- we cannot say she has a complex whatever issue because the testing was not completed on her...
http://www.lifelinesneuro.com/Â is one example; sounds like not everywhere offers this option but I know I've seen several different children at preschool and...
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