Shawna-your insurance will be billed first and then any remaining cost will be billed to Medicaid. If your plan says you get OT,PT,speech etc for say 3 hours...
94195
LNerenhausen
lisanerenhausen
Mar 1, 2009 5:00 pm
Shawna: I need to disagree when you call them idiots. The reason I say that is they have different guidelines than what we have in our mind for therapies....
94196
Jenna
sjkassis503
Mar 1, 2009 5:58 pm
Rachel is still only very strongly suspected mito (indicated but not proven by symptoms, blood work, frozen biopsy) but no ETC testing was done. We are...
94197
Jenna
sjkassis503
Mar 1, 2009 6:01 pm
Yikes our insurance only allows 2 a month! they do get gross after 2 weeks of use ... has ... supply...
94198
Doyle & AmieLawrence
angelaudrey2003
Mar 1, 2009 6:48 pm
I would like to reply on this subject also. when the tendons and muscles start to contract, therapy does help, a little. Your child: to really get a lot out of...
94199
Leah
leahprattrob...
Mar 1, 2009 9:20 pm
I have some things to catch up with at home and am going off lists for a while. I hope everyone has a good month of March. Leah mom to John, 4, possible...
94200
loerco333
Mar 1, 2009 11:55 pm
Hi Lisa, Have a good spring! Talk to you soon, Blessings, Joni H.--- In ... for...
94201
Shawna Graves
ilovecodybug
Mar 2, 2009 4:24 am
I appreciate your input. Unfortunately we have spent a year battling the school just to get any IEP goals other than vague sentences with no measurable...
94202
Shawna Graves
ilovecodybug
Mar 2, 2009 4:36 am
Doyle, this was hugely valuable, thank you. I went to your beautiful site for Audrey. What an angel. I guess my bigger question is, why does the spasticity...
94203
Tracy Lengyel
tracyhope2008
Mar 2, 2009 4:51 am
Jenna- Yeah- I understand about being very strongly suspected mito- but no clinical evidence- so are me and my daughter. We have low blood pressure but don't...
94204
Norman and Susie Stre...
norman_stretton
Mar 2, 2009 2:14 pm
I got this from a very good friend. I think it is a message to all our mito Moms as well as those with other disabilities and "regular" kids. Hope you like it ...
94205
parteeofseven
Mar 2, 2009 2:52 pm
Okay my little guy had labs done at his 6mnth check up with metabolic and they said his lactate was 2.1 which they said was good for him he is usually high....
94206
Tracy Shedd
tracyshedd2003
Mar 2, 2009 2:57 pm
Hi! I need help to figure out what to do here. My hubby and I have noticed that Zach probably has 5-10 seizures on a typical day. However, he can't go...
94207
lawblond7@...
lawblond7
Mar 2, 2009 3:16 pm
In a message dated 3/2/2009 9:57:41 A.M. Eastern Standard Time, tracyshedd2003@... writes: My hubby and I have noticed that Zach probably has 5-10...
94208
Daniel And Heidi Payton
adelinemaekenna
Mar 2, 2009 3:35 pm
We have the same problem, I think it's the lighting. We can only take adeline shopping at certain stores. I have tried many things, but haven't figured it out...
94209
Melanie Zavala
melani04
Mar 2, 2009 4:31 pm
Is it cold where you are? Maybe it's the temperature changes? What about wearing sunglasses in the stores, maybe it's the neon lights. They trigger...
94210
Doyle & AmieLawrence
angelaudrey2003
Mar 2, 2009 4:48 pm
Shawna, Â At this point I can only tell you what we experienced. this is a very unpredictable disease, so for me to tell you what to expect would be wrong....
94211
Melanie Zavala
melani04
Mar 2, 2009 4:48 pm
It also occured to be that there may be some type of glasses that can help, other than sunglasses. I have a special filter of something in my prescription...
94212
Tracy Shedd
tracyshedd2003
Mar 2, 2009 4:54 pm
Would I talk to the opthamologist to see what's available? Or neurologist? Or would regular sunglasses do the same?...
94213
Melanie Zavala
melani04
Mar 2, 2009 5:02 pm
I would think you could try sunglasses and if that doesn't work, ask an eye doctor.  My eye doctor prescribed my glasses because of my migranes. I just...
94214
KA
kalars69
Mar 2, 2009 5:17 pm
Hi tracy - quick response...but more time later tonight.... Â I would ask for an amubulatory EEG - basically they "Robot up" Zach and wrap him in a turban...
94215
betsygreen4
Mar 2, 2009 5:30 pm
Given the recent news about low glutathione levels in mito dysfunction (http://www.sciam.com/blog/60-second-science/post.cfm?id=new-test-for-mi\ ...
94216
betsygreen4
Mar 2, 2009 5:35 pm
In my research on glutathione depletion, I came across this: http://www.sciencedaily.com/releases/2002/10/021014072451.htm ...
94217
Tracy Shedd
tracyshedd2003
Mar 2, 2009 5:40 pm
Melanie, We live in Mississippi. We aren't cold. I've thought about it being the lights. But he didn't seize from photostimulation on the EEG and the...
94218
Tracy Shedd
tracyshedd2003
Mar 2, 2009 5:47 pm
Thanks! I've never heard of an ambulator EEG before...
94219
Melanie Zavala
melani04
Mar 2, 2009 6:31 pm
I forwarded it to Dr. Boles...I'll let you know what he says. I have a couple of thoughts about it though.  I wonder if the mito patients were taking...
94220
Lee Collins
leecol211
Mar 2, 2009 7:05 pm
Is he taking Carnitor? My daughter was low prior to starting it. YES!!! it could be causing all sorts of problems. Lee...
94221
Melanie Zavala
melani04
Mar 2, 2009 7:06 pm
This is what Dr. Boles said... "I was one of the reviewers of his grant proposal that strongly recommended that it be funded. This is not yet ready for...
94222
Jenna
sjkassis503
Mar 2, 2009 8:04 pm
we do have tons of clinical evidence but not definate proof- we cannot say she has a complex whatever issue because the testing was not completed on her...
94223
KA
kalars69
Mar 2, 2009 8:51 pm
http://www.lifelinesneuro.com/Â is one example; sounds like not everywhere offers this option but I know I've seen several different children at preschool and...
