I love, love, love it! Is this an original or did you find it somewhere? and Would you mind if I shared it with some special ed teacher friends? They...
Karen: I'm glad his fever is down but I pray that the bacterial infection does NOT get worse. I agree it can be lonely and boring up in the hospital. You can...
I loved it!!! I even printed out and I am going to tape it to my bathroom mirror~~ we are diong our testing right now!! New IEP to follow the diagnostics...
Oh, I am wo sorry to hear he is doing so poorly. I sure hope they will figure out what is going on and are able to help him make a quick recovery. Keep us...
Dear group, I am feeling in need of some hand-holding. We have been approved for Medicaid waiver services, which is a great thing. I need to find Charlie an...
This Friday MitoAction's monthly topic is "Autism and Mitochondrial Disease" with guest speaker Dr. David Holtzman from Massachusetts General Hospital. The...
Hi Cathy, Never apologize for the whining. WE are all entitled to do this at times. I
just wanted to send you some BIG HUGS!!!! Hugs,      ...
Cathy, You are not alone! We all go through these emotions but then somehow we find peace and strength to go on! I woke up this morning ready to notify...
Karen, I hope and pray that Justin is doing better. Please keep us informed of his progress. Theano Dino's mom ... From: karen brubaker <karenbrbkr@...>...
Thanks you all again! Â we are on the floor and we ahve started feeds back up and probably won't get out of here until Thursday or later. Wea re going to get...
You and Justin will be in my prayers. As for disease progression...keep in mind that mito ebbs and flows for most affected people. Keep on hoping and praying...
I was thinking of taking up speed walking here and maybe timing how long it takes to walk all of the floors here!LOL!! Maybe how many elevators I can ride in...
My sister is pregnant with her first child, today they said the babys limbs are not growing. Has anyone heard of this with mito? My daughters limbs are all...
I am not familiar with that, but my sister-in-law was told that her baby wouldn't have any feet, even at the last ultrasound.....but she did have...
She is still waiting to hear more. All I know of is the mito is in our family. Thanks for your help. Hi-d Payton Sent from my iPhone On Feb 2, 2009, at 5:32...
Cathy-Medicaid Waiver is a blessing. We have had it for Kim for 20 years and for the most part it has been wonderful. It has its ups and downs like anything...
Cathy, I remember being in your place almost 2 years ago. I knew deep down Alex needed a nurse at night but it was still a difficult decision. All I can say...
My SIL had the same thing happen. She went for an ultrasound and there is a test they do with blood flow. It showed my nephews growth rate in his body at 15%...
Is this waiver the Katie Beckett waiver or a type of community care waiver? We have the Katie Beckett, but after jumping through all the hoops and being told...
Susan, I'm not sure what the Katie Beckett waiver is. The waiver program that Charlie is in, is part of the Federal Medicaid program. It is through the...
Dear Group, Thank you SO much for all of you who responded to my whine for moral support. It was exactly what I needed. Sympathy, empathy and a kick in the...
I have a question for all of you experts!!! I got a call yesterday and Nathan is not doing well in is new diagnositics that the school has asked to do. We...
I thought i sent this to here but apparently i didnt. Denise is anyones pump affected by the zevex software recall. 3 out of the 4 pumps we have are affected....
How do you all handle it when you continuouly receive damaged cans the inside box is all smashed and the cans inside are as well but the outside box is fine....
Hello everyone,    My daughter's delayed had a scan about 6 months ago and she was diagnosed with significant delayed emptying. She had a botox injection...
I actually had to have it done for 2 of my children. My oldest (non-mito)
daughter and my son (mito). I was very successful in both. Our surgeon is
very aware...
Keli, Are the people doing the diagnostics familiar with Nathan and mito? How well did they know him before? Are they willing to give him more time to come...
Keli- I would also not change Nate's classification; especially wihtout the staff offering explanations beyond standardized testing. His education is more...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
