Catherine-we also use carnitine from the natural food stores. Kim takes 2t of liquid three times a day. She weighs 85 pounds and is 30 years old if that's any...
Hi Darla, To my knowledge, they haven't connected it. I asked the geneticist's resident, and had a brief conversation about it. However, there is still so...
We were told intubation (on babies) causes the palate to arch slightly, but only very slightly. Jesus Re: Birth Defects..Was, anyone heard of this Posted by:...
We haven't been able to get Nathan's paid for yet! Blue Cross is not budging! Keli ... supplement Charlie is supposed to take is coQ10. Because ... Hi there! ...
Ok, can I correct the name of who has the condition... It is Marianna, our adopted three year old. I find it interesting how there are several names for the...
I was told when Sophie was an infant that her high palate was because she didn't know how to suck and that the sucking was what would pull her palate down. I...
... Hi an occasional lurker.......here is an article on the cerebral folate autoantibodies... Autoantibodies to Folate Receptors in the Cerebral Folate ...
... acidosid caused by mito disorders not taken care of by the pede result in brain herniation into the spine.In Mito@yahoogroups.com, ... concerned at all...
Hi , where did you find your info. I am always intresting in more info. As my Regin has cfd and mito. Rebecca and Regin ________________________________ ...
Happy New Year to all. Good luck with Health and Happiness.  Kristi in TN www.westtennesseecares.com www.youtube.com/kristihogg mother to Marli, 10 mayci 8...
... google scholar. Type that into your browser, once on google scholar type in cerebral folate disorder and mito. from what I can tell folate metabolism is...
we too use cytoQ. Like someone said before, since it's a prescription specifically for mitochondrial cytopathies, we had no problem getting it covered. So no...
I just need to write out my thoughts for a minute if I have any hopes of getting sleep tonight, I am so tired my eyes are blurry yet at after 10 I am still...
I have a question. Kim has had seizures since she was three. They are pretty regular stuff but she does something else and I have never had anyone explain it...
Hi Amanda, I am sorry Jackson is having such a tough time. I know all to well about the
sleep issues. I really hope he gets to sleep soon and you too. Please...
I am soo glad to hear about the damn propofol reaction. My daughter gets an ungodly fever and respiratory failure, this has happened 3 times, finally people...
I know the frustration of having a very tired boy who just needs to sleep who can't. We do melatonin every night but Sheldon can't sleep during the day so he...
Justin is getting very bloated every time he eats. His tummy gets hard and distended after eating or even running feeds at 50 ml/hr. he is gassy alot too. Not...
Amanda just a note on melatonin...our oldest son takes it. He's high-functioning autistic, very hyper and takes 3 melatonin tablets each night or he would ...
Hi, Regin has CFD bc her 5- mthfr Is lower then normal. It was 20L and the normal range is something like 40to 187 nmol/L. There is a cfd support group...
All of my three kids had difficult sleep issues. My oldest would cat nap for 15 mins. and almost never really sleep. When awake he would often scream...
We were told by a sleep specialist at CCF (can;t remember his name) that melatonin works best and in the most natural way when given around the dinner hour. ...
Are you venting him at all? I'm also a firm believer in probiotics.. I use Florastor with my daughter. I just emailed my GI last night as he reduced...
Not sure if this is similar but I often get the cramping in my calves and it is very painful. And there are times when I have woken in the night with...
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