I know this isn't exactly the same, but maybe it will help. When Laura left the NICU, she had horrible reflux. It would stimulate her vagal nerve, causing...
Hello everyone, I apolpgizes for not beng very active on the board lately but I wanted to share that Erik Went home to the ^^Angles^^ On Friday November 28th...
please pass this on to your docs, therapists, teachers, etc. Mitochondrial Disease in Autism Spectrum Disorder Patients: A Cohort Analysis Jacqueline R....
I am praying for you! God Bless, Rafael & Elicia Rivera www.sheltersonline.com ________________________________ From: mottcrew2002 <mottcrew2002@...> To:...
My son Linden is kind of like this. Some things do hurt him, but it's no where near what most people feel. He can fall and bust his head open and laugh and say...
That is too funny! _____ From: Mito@yahoogroups.com [mailto:Mito@yahoogroups.com] On Behalf Of Susan Lake Sent: Sunday, November 30, 2008 11:56 PM To:...
What do you consider the goal of seizure treatment? My 6 year old son has multiple seizures daily. Most appear like absence (though they don't match typical...
I would also be curious as to what the dr would consider dangerous while driving a vehicle. My son is almost 5 now and started having absence seizures when he...
can anyone tell me a compounding pharmacy in pa that does the mito cocktail. It has been a mess trying to transfer the girls prescriptions. The one pharmacy...
Hi Laura. Does Aidan still have seizures with topamax? Perhaps my goals are too high. Zach's seizures show on EEG, but as 9 Hz generalized seizures. I think...
Hi Laura. Does Aidan still have seizures with topamax? Perhaps my goals are too high. Zach's seizures show on EEG, but as 9 Hz generalized seizures. I think...
Jennifer, I feel so sorry for your daughter! My son is kinda in that situation, but not exactly. He complains constantly that his legs hurt. But, he can...
This makes less since than the first round of testing. There are plenty of "Sequence Variants Identified" but all but one states "polymorphism" (not known to...
One of my sons had several years following a stroke episode where he couldn't tell between hot and cold on his skin and couldn't feel pain either. It was...
Our baby Dasha who is 22 months on the 7th has an odd reaction/non- reaction to pain. She can fall and scrap chunks out of her hands and legs with no reaction...
We are having to change doctors because her dx'ing doc does not play well with others. When we got her dx in Sept. her doc's at U of F stuck their heads in the...
Tammy- Â I am so very sorry. I spent some time on Erik's caringbridge site. What a beautiful boy and beautiful family. Â You are in our thoughts and prayers....
I have a question for all those who "have been there done that"...We recently saw a Biochemical Geneticist and she was extremely impressed with our son's ...
Jenny,  I know Regin has regressed or forgotten things all together, but then over time she has learned them agian. ei she learn to sit then got sick and...
Children with mitochondrial disease often regress and then gain those skills back. My son has done that and in talking with one of the world's experts on...
AReckling@...
Dec 2, 2008 12:34 pm
92669
When my daughter Ella was younger she didn't react to painful stimuli at all. She wouldn't even flinch when her blood was drawn or if she was injured. This...
Both of my kids have had regressions and then learned the skill back. For Alex, we must have taught him his ABCs 10 times. He would learn it, get sick, and...
With cognitive and speech things Rachel gains back quickly after illness. She can get pretty confused acting with moderate fevers (sometimes hallucinations),...
check out diplomatpharmacy.com this is where I get Lexi's. They are about an hour and ahalf from us so they ship it to us. They are not in PA but they have a...
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