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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

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Group Information

  • Members: 1984
  • Category: Support
  • Founded: Feb 14, 1999
  • Language: English
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Messages 92065 - 92094 of 104814   Oldest  |  < Older  |  Newer >  |  Newest
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92065 Thats2seven@...
worshiponlyhim Send Email
Nov 1, 2008
11:35 am
Gracie... I hope Ohio doesn't give you any grief over the out of state thing. However, when you apply for Tx medicaid, usually they will retroact until a...
92066 Laura
tbnkatie Send Email
Nov 1, 2008
12:37 pm
... ohio. I do have his cards though. Do you think Ohio medicaid covers this? ... from hendricks in Abilene to here. Gracie, Ask the providers if they will...
92067 artemisiasdream Send Email Nov 1, 2008
1:35 pm
Hey, when are you going? We're going to be there Dec. 9th. ... best phone number to reach her?� We're going to see her in December.� I let my hubby set up...
92068 Steve and Katie Linde...
mitoakl Send Email
Nov 1, 2008
1:49 pm
Just wanted to share with you all that Alex's Dream is finally completed. We had a media day yesterday and these are just two of the stories that were done. ...
92069 Kelli Hopkins
not2bz2scrap Send Email
Nov 1, 2008
2:56 pm
Our baby (suspected mito) has been on meds for infantile spasms. We started high doses of steriods. He started smiling, laughing, babbling, and rolling again....
92070 gracie dudley
girlyd2 Send Email
Nov 1, 2008
3:39 pm
The only problem with us applying for Tx medicaid is that we don't have a address here in Tx yet. As we were only here 3 days. I don't think we can get TX...
92071 nikki
nikki26nzder Send Email
Nov 1, 2008
4:49 pm
Good Morning, WOW that is really awesome,so pleased his wish has come true,and another train fanatic :O) what a lovely set..Im sure he will get many hours of...
92072 Joe and Katie Skorka
katieskorka Send Email
Nov 1, 2008
5:02 pm
Our 4 year has had his port for a year and a half and we'v had no problems with it.  It was accessed and used for the 7 weeks he was inpatient for a liver...
92073 betsygreen4 Send Email Nov 1, 2008
5:07 pm
There is a new warning put out by the Canadian Food Inspection Agency.... Sherwood brand Pirate's Gold Milk Chocolate coins are being recalled due to the fact...
92074 Norman and Susie Stre...
norman_stretton Send Email
Nov 1, 2008
5:19 pm
Sorry Kelley I couldnt get into the file. THanks for answering though....
92075 Susan Lake
emhboo Send Email
Nov 1, 2008
5:20 pm
Okay, I'm confused. You moved to Texas and don't have an address?   Susan Mom to Reiley, my beautiful girl!! And the mystery continues.... An observant...
92076 gracie dudley
girlyd2 Send Email
Nov 1, 2008
5:29 pm
Well we didn't offically move yet our stuff is still in Ohio in a storage unit. We came to Texas to look at houses but were only here 3 days. We were staying...
92077 slpwoman@...
rutrab Send Email
Nov 1, 2008
10:34 pm
In regard to getting accessed, we have found that putting a good amount of emla cream on about 1-2 hours prior to getting accessed and covering it with ...
92078 Laura
tbnkatie Send Email
Nov 2, 2008
1:59 am
... Tx yet. As we were only here 3 days. I don't think we can get TX medicaid until we get an Addy!! ... If that's the case, I'd say you're still residents of...
92079 beyeafamily Send Email Nov 2, 2008
2:07 am
Can blood draws be done through a med-port?...
92080 Allison Kidd
refluxbabe Send Email
Nov 2, 2008
2:40 am
Yes. In fact, Brigid's port has been a Godsend for that exact reason - while inpatient, she gets blood draws twice daily, and when she is out, it is at least...
92081 Tracy Lengyel
tracyhope2008 Send Email
Nov 2, 2008
3:47 am
Gracie- You can stay with us in Arizona for a break, I know it is through N. Mexico from you, but once he's stable and you need a break and don't have a house...
92082 artemisiasdream Send Email Nov 2, 2008
2:48 pm
wow I already saw this, I didn't know you guys were on here! It was the most awesome train table ever! ... completed. We had a media day yesterday and these...
92083 gracie dudley
girlyd2 Send Email
Nov 2, 2008
6:43 pm
Thanks Tracy, I know us mito families are just that one big family!!! We may take you up on this But are really hoping to get a house here in Texas soon Thank...
92084 Wgirl86@...
steelmagnl Send Email
Nov 2, 2008
10:34 pm
Kristi, Where in TN do you live? I used to live in Nashville (Bellevue area), and we are now living in Huntsville, AL, just under 2 hours south of...
92085 betsygreen4 Send Email Nov 2, 2008
10:56 pm
I've done this before, just once nine years ago, but I keep worrying if our new little girl will have the same complications that our first one has. Also, I...
92086 Melody
tallie_dog Send Email
Nov 3, 2008
12:31 am
Gracie, People go on vacation or travel all the time. Just because he is receiving medicaid does not mean that you all couldn't travel to another state and he...
92087 Melody
tallie_dog Send Email
Nov 3, 2008
12:38 am
Natalie has had a few more set backs since her brain surgery. My husband and I are scheduled to leave in one week to go to the Dominican Republic for a...
92088 mom2jettandjude Send Email Nov 3, 2008
1:10 am
http://www.umdf.org/site/c.dnJEKLNqFoG/b.3444071/ TN info Julie Manley UMDF Mississippi www.umdf.org www.judesmitojourney.com ... From: Wgirl86@... To:...
92089 Melanie Zavala
melani04 Send Email
Nov 3, 2008
1:35 am
We're praying for you both!    Melanie Zavala ... From: betsygreen4 <betsygreen4@...> To: Mito@yahoogroups.com Sent: Sunday, November 2, 2008 2:56:51...
92090 kathy boone
scar146trio449 Send Email
Nov 3, 2008
1:51 am
Betsy,   Many prayers being sent up for you and your new baby girl.  Look forward to hearing all about her.   Kathy, grandma to Audrey, forever 6yrs,...
92091 mom2jettandjude Send Email Nov 3, 2008
2:46 am
i feel it is for families dealing with chronic illness as well. i think it would be great if u set up a site! Julie Manley UMDF Mississippi www.umdf.org ...
92092 Susan Lake
emhboo Send Email
Nov 3, 2008
3:13 am
Melody, I'm keeping you in my thoughts. Safe journey to the hospital tomorrow and I hope things improve soon for Natalie!!! And of course for you as well....
92093 Tracy Lengyel
tracyhope2008 Send Email
Nov 3, 2008
5:36 am
Melody- We are very devoted Christians, and have had 2 babies die from mito. I mentioned that we are Christians because we totally recognize the importance of...
92094 JDDancer5368@...
jddancer5368 Send Email
Nov 3, 2008
1:23 pm
Christian has never done this before but he slept for 15 hours straight last night and this morning. Is this normal? Sent from my Verizon Wireless BlackBerry...
Messages 92065 - 92094 of 104814   Oldest  |  < Older  |  Newer >  |  Newest
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