Sharon, I would like to thank you for posting this experience with Clay. My nephew is ADAD with encopresis and at childens national medical center in dc. ...
KAFoley2@...
Oct 1, 2008 11:26 am
91269
Jennifer, My 1st son was undiagnosed for 6 years and in that time people often wrote about his facial features. His first year a lot of people described it as...
Kim has been on the Feingold diet for several years. I find that it helps to calm her and makes her more resistant to infections and colds. It removes...
Rachel's cheeks will droop and her eyelids will to some extent during a low tone time. Her mouth will hang open. Sometimes I'm confused between when she has...
Jennifer-Kim has mood swings about every two weeks. When she goes from good to bad and back she literally changes in appearance. I dont know if it is what you...
We have noticed in the last couple of months Joey has had a harder time getting off of the floor. Usually takes him a couple tries. We now in the last week...
Everyone is welcome to join us this Friday October 3rd for the MitoAction free teleconference. The topic is "tummy troubles in patients with Mito" with guest...
Hey ... I have a four year old daughter with Complex 1. She's been seeing the same pediatrician since she was born and we've never had issues with them until...
I have been told the flu mist is a live weakened virus. They don't give it to chemo patients or their family for that reason. Even if you are not the one with...
We just had this issue come up as we were in the doctor's office about an unrelated issue and I inquired about the flu shot (hoping we could kill 2 birds with...
Barbara- I am assuming Brianna is your daughter? I saw the video on utube of her- wow! It was a very strong, heartfelt way of getting the very important...
Ainsley's pediatrician is totally against the flu mist for her - both bc of mito and her seizure disorder. He generally is very cautious about live vaccines...
Hey everyone! Both me and my 10 yr old are having a lot of mild mito symptoms (2 babies deceased from severe inactivity in complexes 1-4) We just found out...
We are actually flying commercially with our two kids on Friday and have flown many times with all the above. We have not had a problem with anything but...
Tracy: For Gluten-There is a stool test if you want accuracy from lab results www.enterolab.com or you could remove a few days/weeks see if anything...
I have flown with Kylie 4 times in the last few months and have had minimal issues. Kylie is in a wheelchair so they automatically know there are some medical...
Christy- I will definately be there for that one! jenna ... MitoAction free teleconference. ... speaker Dr. Alex Flores. Here ... information helps you! ... ...
Do you have a smaller pulse-ox you travel with? Ours is bulky. When Rachel wasn't acting right at the higher altitudes I was wishing we had one with us...
Hey everyone, Jeremy just has his J tube placed last tuesday and tonight i went to give meds and start feedings and it is clogged, and clogged good!!!! I have...
flush it with 20mls pf pedialyte In a message dated 10/1/2008 2:31:00 P.M. Eastern Daylight Time, willisdm@... writes: Hey everyone, Jeremy just has his J...
don't be afraid to put your shoulder into it then do the warm water thing...push and pull... once you get it unclogged.... best way to keep it clear...is to...
We borrow a fingertip one from a friend of ours. It is great but only good for spot checks. The name is Choice Medical Fingertip Pulse Oximeter. I think she...
Kelly- I'm so excited, I'm glad there is another way to test for gluten intolerance. Did you have the stool test done on your daughter? Did your insurance...
Linden Looks different during a crisis too. I can even tell when he's over done it or is just starting to get sick cause one of his eyes droops and his face...
No Tracy we only did the genetic testing for 2 Celiac genes on her. When we started the diet she was vomiting daily and not gaining and ...suprise I wasn't...
We just arrived home about 1 hour ago from our Cleveland trip for Asenath's lumbar puncture under anesthesia. I must say the hospital did an AWESOME job with...
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