The place you are at is a hard one...I totally get the running a hundred miles and hour Everything takes along time. Not to much get done in a week or so. ...
Hi, we also have problems with mucous plugging due to anethesia, and had the partial collapsed lung as well.. they blamed it on an infection.. or virus.. but...
My son had a collapsed lung one time because they intubated him wrong and the tube went into one of his lungs. Another time, he was supposed to have surgery...
Tomorrow Marianna will be having her heart cath test and on Wednesday she will most likely be having heart surgery. It is tentatively set up already. I would...
We have recently had an outside doctor review Jimmy¹s case and she looked at the first anesthesia incident for his initial MRI. A few hours after the MRI his...
Jenna, Thank you for such kind words. Hope you and Rachel are well. I've been somewhat out of touch with many caring bridge sites this summer. Hopefully life...
Darla, Keep asking and it will be given to you. Keep searching, and you will find. Keep knocking, and the door will be opened to you. Matthew 7:7 Hugs Theano...
Darla, My son was born with multiple congenital heart defects so he and I were thrown into the "heart world" really early, he has under gone two caths and two ...
I will pray for her this week and your whole family as you deal with this. I hope it all turns out the best possible outcome! MArianna is blessed you have...
Sending extra prayers your way. ~Katie Alex 5 years and Lauren 10.5 months (both with mito) www.caringbridge.org/visit/alexanderlindemann ... Wednesday she...
I am so excited to share with you guys that Dr. Christoph Westphal, CEO and founder of Sirtris Pharma will be speaking at the MitoAction MITO meeting (Monthly...
I know I'm replying this a little late. We just got back last night from our summer place and haven't checked emails for two weeks. Yikes, lots to catch up...
In a message dated 9/1/2008 12:11:12 P.M. Eastern Daylight Time, jenbabs@... writes: In fact, he recovered faster with this in place than he ever did...
hi! we just received GREAT NEWS today! we were told that mary kendyl's lactic acid tests came back normal this time! they told us that pretty much rules out...
Marianna's heart cath test went very well today without complication and she is once again here at home with us. The pressure measured within the heart was...
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... came back normal this time! they told us that pretty much rules out mitochondrial! Kim, I'm glad that Kendyl's lactic acid was normal. Normal results...
Yeah glad the test was good but sorry it doesn't answer her fatigue and enlarged heart. I understand feeling glad that somehting is NOt happending but still...
Jude's never had Lactic Acidosis. And unfortunately, he is one of the many who have mito by biopsy. If they told u that, I'd suggest u get a new doc. Julie...
Normal results don't rule out mito. Many, if not ... Elevated lactic acid is non- ... mito. I have two kids that have confirmed mito on muscle biopsies. Even...
For those of you who have kids in school, I'm wondering how you deal with fatigue. Isaiah started full-day kindergarten last Monday. I know it has only been a...
My son is just starting preschool next monday, but his school is only 3 hours long so I don't have that issue. But, we have been having an issue with his...
My kids this year started a public school virtual academy . They still get IEP services but are at home but its public school. Most states have this public...
In a message dated 9/1/2008 7:51:11 A.M. Eastern Daylight Time, nena1294@... writes: Everything takes along time. Not to much get done in a week or so. ...
In a message dated 9/2/2008 9:48:35 P.M. Eastern Daylight Time, tbnkatie@... writes: Many, if not most, mito patients have normal lactic acid, at least...
I forgot to ask you if you live in Jersey or Philly? I have a few plans and wonder if you might be interested in spreading awareness? I have six kids. Millie ...
My Zach is a first grader. Last year in KG, he didn't make it for a full school day for about the first month. Slowly, he started to be able to adjust and...
Hi Willow - I would suggest reexamine how he moves at school - changing classes or trips to BR or outside. See if there are any ways to reduce his energy use...
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