... told that the level our kid's pyruvate was elevated was real and not a lab error. It is also listed as part of their lab evidence of the Mito. ... the...
My Joey is almost five and his physiatrist told me it was getting time to think about an electric wheelchair and I would LOVE to have suggestions on which ones...
Oh, Amen Sister Friend!!!! Don't get me started on family! Of all people that should have some understanding, or at least treat your child as "normal"...
My oldest daughter who doesn't seem to sweat recently told me she never has goose bumps either and didn't realize it until her cousins and her were all ...
... time to ... suggestions on ... Hi Darla, I don't know if it's the best, as I don't know all of what's out there, but my daughter just got an Alante Jr....
http://www.askipedia.com/askipedia-article-015001-726,1.htm Goose bumps, goose pimples, goose flesh, chicken skin, or cutis anserine, is the result of tiny...
Hi we knew our son was having seizures since he was 3 years old. Old nuero said it was rolandic seizures which when I looked up they only happen during sleep....
Nathan's is in Atlanta on the 13~~ they called yesterday and said that it was about an hour to an hour and a half!~~~ Good Luck~~ I have to go make another...
_After your child has had a needle muscle biopsy - Family factsheets - GOSH and ICH_ (http://www.gosh.nhs.uk/factsheets/families/F000088/index.html) ...
_Brain Atrophy_ (http://www.bic.mni.mcgill.ca/users/louis/brain_atrophy.html) I am a parent just like you. My daughter has mito. g/j, two biops, seizure's,...
Becky when I first read your post I thought you said retreat into your bubble. Visions of sponge bob floated through my head LOL! Thank you for all the kind...
Heather, oh that is funny! Whatever works at this point! And with my mind lately I could have! You would be one cool Mom if you could hang with Sponge Bob!...
_Abdominal Bloating and Distention_ (http://www.puristat.com/bloating/default.aspx) **************Looking for a car that's sporty, fun and fits in your...
_Symptom: Digestive symptoms - CureResearch.com_ (http://www.cureresearch.com/sym/digestive_symptoms.htm) **************Looking for a car that's sporty, fun...
_Children's Orthopaedics_ (http://www.childrensorthopaedics.com/neuromuscular.html) **************Looking for a car that's sporty, fun and fits in your...
_May News from MitoAction_ (http://www.mitoaction.org/files//newsletters/2007-05.html) **************Looking for a car that's sporty, fun and fits in your...
We had Shoffner do the initial testing on our son. This was done in Dec. 2007, and we got the results in March, 2008 indicating an initial diagnosis of a...
Hi - thanks to everyone for their responses to my initial posts. Just wondering...do any of your kids have a consistently low BUN and/or consistently low...
... BUN is usually not significant if low. What was creatinine? What was hydration status? http://www.labtestsonline.org/understanding/analytes/bun/test.html ...
Laura - thanks for your reply. I read an article from University California - San Francisco and another from UMDF that said low BUN can be significant, in...
Hi Liz, The BUN Creatinine ratio is what many physicians evaluate to determine if there is muscle wasting. That was one of the first signs that our older...
Has anyone seen hyperactivity as a side effect of the carnitine? Carson just started taking it for his elevated MMA levels and he is what I would consider...
Thanks, migdalia. I'm sorry we're on the same road right now with newly diagnosed generalized seizures. With as horrible as this is, have you been dealing...
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