A lot of times insurance companies will cover the expense of this and most people don't know it. Before you start looking anywhere, contact your insurance...
Dee You may be able to get mda to help with some of the cost .. Rebecca and Regin ... From: Migdalia <srjsmom572@...> To: Mito@yahoogroups.com Sent:...
Hi, It sounds like they are trying to place a G-J tube but it's not working. It didn't work for my son either and he had to have a surgical j tube placed and...
AReckling@...
May 1, 2008 12:42 pm
86779
My daughter is spilling ketones but her glucose is normal , her anion gap is slightly high also.... why would she be spilling ketones? Karen...
Hi i am sorry for this . I really dont have advice for you .. I am praying for you for strengh and healing .. I hope that a j-tube will work swiftly . Rebecca...
I am taking Creatine 2.5mg twice a day, my two children are also taking creatine at different doses. I have been taking it for 1.5 years as prescribed by Dr....
Alex is in complete or almost complete digestive system failure. He has a central line and is on TPN. He is thriving and hardly "suffering" because of it....
Hi Friends!! After 7 years of a ³presumed² or ³unspecified² mito dx, we finally received results from the latest round of mtDNA testing done on Chance that...
As far as where to stay, you can stay at the Ronald McDonald House near Scottish Rite hospital in Atlanta. I believe that's free of charge and they have mito...
Hi Ainsley, Megan has been doing the same thing.....really gross runny, and foul smelling poops for about 2 weeks .......Not to sure what it is that is causing...
Here is a link to look at it. It looks really good for some of our kids. http://www.1800wheelchair.com/asp/view-product.asp?product_id=2504 Joni K ... to...
We have a Jazz Easys stroller/wheelchair. It is classified as a wheelchair I believe but looks like a giant stroller. Sits higher than a regular stroller....
"acidosis - refers to the spilling of ketones associated with a LOW blood sugar level (unlike the severe ketoacidosis seen in uncontrolled diabetes, which is...
We love love love our Jazz Easys also. It's so adjustable and supportive...and light compared to others. It IS calssified as a wheelchair but our insurance...
Hi, I have had it for a few years.. and love it .. for my now 5 year old.. handles great. etc.. we are upgrading to the axiom 2..because although it hold...
Is she sick at all? Brandon will spill ketones any time he is sick, overheated or stressed out at all, or fasts at all (or even just doesnt take in enough...
As much as it stinks on many levels, I am so glad you guys have solid answers now. I dont know anything about mutations etc, but I hope someone else has some...
Joni- We have the 2 kid verison of this-( :-) Dreamer Design Ditto Deluxe ) and it has been the best $450 we've spent in a long while.....no insurance didnt...
We dont have a mutation identified but my oldest has confirmed complex 1 deficiency, and my youngest is suspected at this point (one opinion says he may have...
See, if we rule out anything causing secondary mitochondrial dysfunction Dr. P still won't diagnose him with Mito based on his symptoms and labs even though he...
Wow! Finally! What a blessing to finally know and have definitive results. It seems the new tests they are developing are helping a bunch of our group ...
I wanted to let you all know that another child has been called to heaven. Ryan Donnelly earned his wings tonight around 7:20PM. His mom Danni and I hit it...
Jenna - I don't know if this would help or not, but Elyssa was just in the hospital for the last 4 days and one of the physicians who was rounding on us at...
Hi Kass, I'm curious about this diagnosis. You say that they have identified one mutation on a Complex One gene. This puzzles me because to the best of my...
Hi everyone, Aaron has been in the hospital with metabolic crash he went into acidosis ( sorry pretty new to this Mito stuff) this is his first real metabolic...
Yeah for you ALL, Kass!!! SO glad that Dr. K was able to figure this out. Give rest of us hope that SOMEDAY, maybe..... we'll get figured out too. Kelly-Ann...
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