Hi everyone, My son in the beginning of Feb got a stomach virus that really caused alot of diarrhea. It has know been 4 weeks and he still has it. We have...
Ok all I am trying to gather some information for my massive PR nightmare for UHC. Yes I am technically and attorney - BUT I do not practice law per se ...
We currently use a CAS monitor which is superb. It monitors heart rate, respiration and pulse oximetry. The system that we have is designed for use in...
Good MorningCathy: Was he on antibiotic? Guess not if he didn't have a positive culture. I give my kids (ages 4 & 6) probiotics after anitbiotic.Provides high...
Ok But I really don't think it will help you know if he has a seizure as it never registered on his apnea monitor when he had one although his pulse ox goes...
Jonathan's seizures are very quite but afterwards, he stops breathing. This is what scares me, I can hardly sleep at night and he sleeps in bed with my...
We used a monitor for hailees seizures, her heart rate would go up, and her sats would drop. Hailee has been known to code on her seizures so her doctor had...
I understand I have been there. That is why I think a pulse ox is more what you need it will go off better then the other types they just go off if no movement...
Brandon has long and very long chain fatty acid defects secondary to his mito... Its apparently not an uncommon finding... as far as which way the docs lean...
My daughter is still undiagnosed at this point, but has suspected mito. I don't know much about mito, but I do know that I have 9 (all full blood related)...
What Melody said popped into my head too - is she saying anything positive in the reports? I would be pissed if it didnt. Honestly I think i might side with...
I know a few families who have seen him and I saw him talk at symposium last year - he really seems to be a great doc! glad you guys got in, hope the...
Clarissa- Anne J wrote about iron I think a few weeks back. Your daughter certainly does need to have iron in her diet. Iron is needed to carry oxygen to...
Meagan- I certainly know how you feel. Rachel was basically diagnosed (mito was her diagosis for every admission and we had eliminated everything else) and we...
If you get a pulse-ox make sure it's one that can easily tell you if the signal strength is good or not. I think the reason that pulse-ox is not usually...
Lisa, I totally feel your frustration, in many instances I felt like choking some of Dino's teachers and therapists. Don't let this one go but gather your...
Depending on which doc we talk to it is thought that Brandons mito is maternal and therefor I and my youngest also have it (our local doc doesnt think this is...
I don't understand how she can have FOD and NOT mito?!?! I though FOD was a variation of Mito. Am I wrong? Tracy ... Never miss a thing. Make Yahoo your...
I would make it very clear to my school to NEVER send home a negative message on Leah's Big Mac! How dare they. If they need to write something negative that...
My understanding is this: FOD's are considered mito in a way because they do have to do with the mitochondria but they tend to be more in their own plain......
Ok I am trying to figure out on traveling and post op things for Aaron 1. I will be transporting him in a lift van in his wheelchair with his leg up in his kid...
When my son had his done he did not have any problem putting pants on. It
was tender at first and sore for a few weeks. The incision should only be
about 3...
Thanks Wendy, Do you remember the name of the numbing med? That is a good idea. I am just worried as he has sensory issues and this is going to drive him nuts...
Gracie, I don't remember the name but if you ask about it they should know exactly
what you are talking about. The sutures will only be on a few days. They are...
Wendy, Thanks I will keep everyone posted. It took forever for the steristrips to fall off after his brain surgery. I am hoping this goes well with no...
Hi Cath, Our daughter is 3.5 now...and has always had diarrhea. We struggled for 6 months looking for an answer. FIBER is the only thing that has worked for...
Grant learned quickly that he couldn't touch the site......he got antsy when steri-strips were coming off but soaking in bath tub sped up that process...and at...
Have any of you ever done the MMR shot divided into 3 shots? (measles, mumps, rubella) My son (almost 2, Mito complex I) has had all of his shots except for...
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