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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
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Messages 83118 - 83147 of 98727   Oldest  |  < Older  |  Newer >  |  Newest
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83118
_Elis Angels_ (http://www.elisangels.net/) **************Start the year off right. Easy ways to stay in shape. ...
nena1294@...
julianna1294
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Feb 1, 2008
11:41 am
83119
put your story on wish upon a hero **************Start the year off right. Easy ways to stay in shape. ...
nena1294@...
julianna1294
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Feb 1, 2008
11:54 am
83120
I have been looking nad yes have contacted many groups... wondering where to get a list of number of mito families in the country? per state or city? I am in...
nena1294@...
julianna1294
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Feb 1, 2008
12:47 pm
83121
_Andre Sobel River of Life Foundation - How We Do It._ (http://www.andreriveroflife.org/jobs.html) **************Start the year off right. Easy ways to stay...
nena1294@...
julianna1294
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Feb 1, 2008
12:53 pm
83122
Hi Everyone True's skin biopsy was sent for disorders of gluconeogenesis...and from all I can find, that means PDH or PCD (or fructosemia which we know he...
VisibleWorship@...
worshiponlyhim
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Feb 1, 2008
1:36 pm
83123
In a message dated 2/1/2008 8:51:20 AM Eastern Standard Time, HUGHESS@... writes: Greetings all, FYI, Stewart Connie Leblond"...
nena1294@...
julianna1294
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Feb 1, 2008
1:54 pm
83124
I agree. Shoffner is the man for diagnosis. At our last appt. with him I asked him for a recommendation on a doc in my state (FL) that would be good for...
Jennifer Slauter
jslauter
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Feb 1, 2008
1:55 pm
83125
What is the name of that doctor, and where is she? We're moving back to FL in May. Thanks, Kristine ... From: Jennifer Slauter Date: 2/1/2008 7:55:21 AM To:...
Kristine Reed
lvwisc
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Feb 1, 2008
2:31 pm
83126
I know a little about PDH because it was a consideration for my boys early on (it was ruled out per skin fibroblast). I do know with PDH there is a thiamine...
kcvpcv
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Feb 1, 2008
2:47 pm
83127
I am curious where you are also. We live in South Florida (Ft. Lauderdale area). Jen -Donny (8) -Mason (6) -Connor (3) Leigh's Syndrome, Complex I -Hailey...
Jen Clifton
jcliftondmc
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Feb 1, 2008
3:13 pm
83128
We are in Oregon... Jane Gonzales Wife to Sal, Mom to Jennifer, Jessica and Christina Jes' site: www.caringbridge.org jessicagonzales06 jesuslovesme ...
Jane Gonzales
cuznj2001
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Feb 1, 2008
3:53 pm
83129
In a message dated 2/1/2008 12:52:09 PM Eastern Standard Time, David.Rodriguez@... writes: FYI. -----Original Message----- From: Pamela Gaston...
nena1294@...
julianna1294
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Feb 1, 2008
7:01 pm
83130
I believe Cleveland Clinic does fresh biopsies also and does accept many out of state insurances icluding out of state medicaid jenna ... for ... help...
Jenna
sjkassis503
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Feb 1, 2008
7:42 pm
83131
... accept ... I think this has recently changed. I contacted CC recently and they told me that they no longer accept out of state medicaid. Just an FYI. Erica...
beyeafamily
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Feb 1, 2008
9:13 pm
83132
This was posted on another site but if you go to the link, you can actually see where each candidate (that responded) stands on specific issues that relate to...
ply4willis
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Feb 1, 2008
9:40 pm
83133
No, Cleveland Clinic doesn't accept out-of-state medicaid, but they do have a second opinion service. They may accept your state insurance tho. I have the...
mom2jettandjude
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Feb 1, 2008
9:41 pm
83134
Please, please go to the UMDF site and read the official statement made by the scientific advisory board on this. (Some of the greatest Mito minds in the...
ply4willis
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Feb 1, 2008
9:44 pm
83135
_Paul Harch Hyperbaric Oxygen Therapy Brain trauma disorders neurological_ (http://www.harchhyperbarics.com/) this is just for fyi since topic was brought up ...
nena1294@...
julianna1294
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Feb 1, 2008
9:47 pm
83136
Sorry maybe they did before? Someone from this list told me they did. I guess children with medicaid are not allowed to have mito. Sorry I really need to...
Jenna
sjkassis503
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Feb 1, 2008
9:58 pm
83137
Hi, ARE YOU FROM MICHIGAN? HAVE CHECKED THE CRIPPLED CHILDRENS PROGRAM? ALSO IF YOU HAVE A SOCIAL WORKER THAT SEES THE CHILD ON A REGULAR BASIS SHE SHOULD BE...
kathy north
kateventplanner
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Feb 1, 2008
10:13 pm
83138
Thanks for all of the replies everyone! We live in Washington State. My husband is also self-employed, so private insurance would be really expensive for us!...
mother2abi
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Feb 1, 2008
10:28 pm
83139
Cleveland Clinic just stopped accepting out of state MA on January 1st (I just found out). Stinks, Kris ... you ... seeing...
kcvpcv
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Feb 1, 2008
10:35 pm
83140
... spoke to a few other with mito who concur they also have migraines. I can't recall it working that well for me. I ended up in the doctors office while on...
onesmileynurse
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Feb 1, 2008
11:28 pm
83141
Where in the Fort Lauderdale area? My brother lives in Davies, FL. He is the CEO of the performing arts center. If I ever get down to Florida again it would...
LNerenhausen
lisanerenhausen
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Feb 2, 2008
12:59 am
83142
I guess that's why if our records were recieved by Cleveland they were never reviewed. jenna ... they ... mito. ... also ... her ... injustice ... state ... CC...
Jenna
sjkassis503
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Feb 2, 2008
1:09 am
83143
Thank you for posting this. In a message dated 1/31/2008 7:30:54 P.M. Central Standard Time, francescainboston@... writes: The American Association of...
sweetjayne1@...
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Feb 2, 2008
1:11 am
83144
Has someone got the direct link to the article/s on HBOT on the UMDF website - I went looking without success?? Regards, Howard Savage...
Howard & Brenda Savage
howardsav
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Feb 2, 2008
2:04 am
83145
Hi, My son is currently in public school (developmentally delayed kindergarten) and we are about to do a re-evaluation to determine his eligibility category....
ashleydilorenzo
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Feb 2, 2008
2:39 am
83146
Clay and Jake are both categorized as OHI. For Jake he has to be classified as OHI as he does not meet any of the other categories and is academically gifted...
lawblond7@...
lawblond7
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Feb 2, 2008
2:43 am
83147
I have noticed that the official organization of just about every disease in existance claims that HBOT will not help the disorder and could be harmful (when...
Susan Sunseri
robsusanrose
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Feb 2, 2008
3:06 am
Messages 83118 - 83147 of 98727   Oldest  |  < Older  |  Newer >  |  Newest
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