I am looking for anyone who has United Health Care (a fully funded plan and not a self insured plan) - that has gotten United Health Care to pay for formula....
We didn't fight them on covering formula, but put up one hell of a fight for nursing coverage. The hospital helped a whole bunch and made calls to big wigs in...
In a message dated 12/1/2007 8:16:45 A.M. Eastern Standard Time, jenbabs@... writes: Coming from you you’re not going to get very far, but if your...
as for all denials in writing..never take a verbal decline contact disability attorney..many times they will consult no fee. also contact family services in...
We had formula coverage for tube and oral feedings while we had UHC. My son doesn't have PKU. We got a copy of their clinical policy guidelines and it was...
Find out what state United Health Care operates under. Most states have a Metabolic exemption in the state laws that insurance companies have to abide by...
Julianna had gi appt. where porbiotics were mentioned. Anyone use? Sucla2 looks like it is not the probalem at this point. Nothing incredible said that...
Yeah- we use probiotics to keep GI bacteria balance (with our kids Gluten-free diet). I use a local company brand; our option is refrigerated powder or...
Colleen, I have not heard of such a thing as my understanding is with at least the type of Mito we have, is it is basically an inborn error of Metabolism. ...
Hi Colleen. Our specialist mentioned something similiar to us when he dx Abbey. He said there can be a fine line between the amount of healthy/functioning...
Hi, I have not heard of anyone growing out of Mito either. We have experienced periods where the disease goes into a "remission" and things improve or stay ...
dr cohen and dr mootha both have observed improvements in some cases (patients and rodent models too) when infant cells are replaced by adult cells. dr cohen...
I had to order through MEDCO the UHC pharmacy a 3 month supply was $60 but then they wouldn't do it due to Ex not paying the back balance on the insurance so...
Hi everyone , It has been a long road we just got home.. Aaron had the EGD and the Doctor did the biopsies of the stomach and esophagus and intestines he said...
I am so glad you have fially got this surgery behind. I hope her has a quick recovery. jenna ... in the PICU in St. Mary's Hospital (Mayo), Rochester, MINN....
sorry you guys are back in. Rachel has gone days with meeting her fluid requirements (we kept track back then) but NO output for 15+ hours plus 2+ pounds of...
don't mean to interject but wouldn't it be even better if we dreated a database on the yahoogroup site? jenna caringbridge.org/visit/rachelkassis ... ...
Hi Lisa, My son AJ had strabismus surgery on both eyes. They did try patching first and that didn't work for AJ. They did one eye at a time about 6 months...
yes...we had the surgery..I think I talked to someone about this on here very recently.... Rachel had severe intermittent exotropia(not all the itme but R eye ...
I'm ok at this point with not doing the muscle biopsy since the treatment will not change. Maybe when he's older... I would like to have a skin biopsy done...
Since Thursday Rachel has been stutterig a lot more again and is substituting the wrong word or another word that starts with the same letter like do insstead...
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