In a message dated 11/1/2007 2:36:20 A.M. Eastern Daylight Time, KAFoley2@... writes: don't be surprised if siblings get mad at you... like mine did when...
Amanda Halloween has always been a hard day for us. Rina has aspergers and high anxiety and because of the sensory overload of the day, she hates it to put it ...
Amanda, I wish your Halloween could have been better. We have all been there one time or another. I had that same feeling at my own child's birthday party...
I got that email about the cheesecake .. is Eli's really that good??? Gwen ... on all of ... Cheesecake, ... Cheesecake. ... November ... Dock Sale ... ...
Hey we just got a partial MRI reading back for Rose. It says she has a Chiari 1 malformation. I was wondering if any one out there is dealing with this? We...
Yeah I understand that icky Halloween experience. The 2005 Halloween was what introduced stroke like episodes into our life. Grace kept walking off into the...
Hi Katie, When a child has mito disease it affects everyone in their family and extended family as well. I have a wonderful 6 yr old daughter that is a great...
Hi Kathy, Here are some titles I found at my local library. They all look like really good resources. I have not had a chance to read them through but...
Our little girl had a chiari also and had to get it fixed when she was 3 all is good now. Good Luck Christopher & Heather Laurie <blueknightdawn@...>...
Dr. Parikh called today and said the lab results were in. He said he's never seen this before but I guess there are 6 chemicals which needs transporters to...
I just wanted to say to everyone, thank you so much for all your kind thoughts and words they truly brought me comfort this group has been a God Send I have...
fyi Congress passes kids health bill — again By DAVID ESPO, AP Special Correspondent 33 minutes ago WASHINGTON - A defiant Democratic-controlled Congress...
Heather, We had that too with Joshua. Nobody really cared to be honest- they said that he has the Arnold- Chiari 1 malformation, but basically only mentioned...
I have a friend whose two children have Chiari malformations (but not mito). The local docs have not be so great with them. My friend takes her kids to the...
Alec Ideker earned his wings this morning. Please pray for his parents & older brother as they deal with their loss. Alec's mom, Stephanie is due to have...
I am SO very sorry to hear about your loss...Please know that we are thinking about and praying for you each and every day... Jane Gonzales Wife to Sal, Mom to...
We got back from the Mayo Clinic this afternoon and I am quite exhausted tonight. (I am currently at the end of a CNA class that I am taking along with my...
We will be praying for them all. The Sanders Family ... parents & older brother as they deal with their loss. Alec's mom, Stephanie is due to have their third...
Dear Group: I have a 15 year old daughter with Mitochondrial Disease. Her Mito doc recommended she take a liquid version of carnitine. Does anyone have any...
Hi Heather, One of the most renowned specialists in Pediatric Arnold Ciari is at the University of Chicago. His name is Dr. David Frim. Office phone: ...
Has anyone done a muscle biopsy in Cleveland? Just wondering about experiences. Our local geneticist always uses Atlanta (not sure why). But we're already...
Our thoughts are prayers are with them. ... From: Nickkie Hoekstra Date: 11/1/2007 9:58:21 PM To: Mito@yahoogroups.com Subject: [Mito] Alec Earned His Wings...
I would be happy with either. http://mitosoc.org/diagnosis/tissuetesting.html are your options for fresh. There is also a dx toolbox there that would be good...
They are in our thoughts and prayers. Kathy Mito mom of 3 mito kids _____ From: Mito@yahoogroups.com [mailto:Mito@yahoogroups.com] On Behalf Of Nickkie...
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