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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
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Messages 77881 - 77910 of 98727   Oldest  |  < Older  |  Newer >  |  Newest
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77881
Hello, I am in the same boat except its for my son Declan. He was born in February and since then we are seeing our savings go really fast and once that's...
Chuck M
charlesjmcneil
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Sep 1, 2007
12:19 pm
77882
Hello, I am in the same boat except its for my son Declan. He was born in February and since then we are seeing our savings go really fast and once that's...
charlesjmcneil
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Sep 1, 2007
12:22 pm
77883
ya..when we have such high cost..yes we all go through chanes but our families should not be living like this. Depressions, adah and other conditions are...
nena1294@...
julianna1294
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Sep 1, 2007
2:48 pm
77884
Jenna: I agree with Meagan, as I am sure everyone does. We do want you to be able to tell us what is going on because innumerable people care a lot about both...
Anne K Juhlmann
annakate31
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Sep 1, 2007
3:02 pm
77885
Hello, Does anyone know any pharmacies in the Wilmington, Ma area that compound? We have been going to Johnson Drug in Waltham, but everytime we go they try...
charlesjmcneil
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Sep 1, 2007
3:17 pm
77886
_Compounding Pharmacies for natural hormones_ (http://www.project-aware.org/Resource/Pharm.shtml) ************************************** Get a sneak peek of...
nena1294@...
julianna1294
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Sep 1, 2007
3:40 pm
77887
compunding meds are very costly.... imagine you are sometimes paying double to them to crush and add water health food stores sometimes things in luiquid...
nena1294@...
julianna1294
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Sep 1, 2007
4:03 pm
77888
_Compounding Pharmacies for natural hormones_ (http://www.project-aware.org/Resource/Pharm1.shtml) ************************************** Get a sneak peek of...
nena1294@...
julianna1294
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Sep 1, 2007
4:16 pm
77889
Thanks! On another note does anyone get CO-Q at health food stores? I checked it out but do not trust them. Thanks! Chuck ... From: "nena1294@..."...
Chuck M
charlesjmcneil
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Sep 1, 2007
4:21 pm
77890
I dofor my 2 and a half year old ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour...
nena1294@...
julianna1294
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Sep 1, 2007
4:25 pm
77891
Just an aside on the CoQ10 - Dr Shoffner is quite specific about the brand he wants his patients take.....expensive but some get their insurance company to...
Karen Hunt
DanRHunt
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Sep 1, 2007
4:43 pm
77892
carni Q-gel forte ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour...
nena1294@...
julianna1294
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Sep 1, 2007
4:45 pm
77893
We were recently recommended to start the girls on Creatine and I was wondering if anyone has been able to get medicaid to pay for it. Our insurance will...
Darla Klein
honeybear50317
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Sep 1, 2007
5:07 pm
77894
levocarnitine from the pharmacy 30.00 co-pay ************************************** Get a sneak peek of the all-new AOL at ...
nena1294@...
julianna1294
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Sep 1, 2007
5:28 pm
77895
Sorry, no thoughts! Were buying it out of pocket, our insurance wont touch it. Good luck!! Keely ... and I was ... Our ... a ... $90 out ... get it ... was ...
ilikemonstertrucks
ilikemonster...
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Sep 1, 2007
5:31 pm
77896
I think she was asking about Creatine (its different from Carnitine)... ... Keely ... new AOL at...
ilikemonstertrucks
ilikemonster...
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Sep 1, 2007
5:32 pm
77897
Oh Jenna thats awful. :( At least they have it documented that you were NOT playing a hand in any of it. This is my biggest fear. Even with BRandons confirmed...
ilikemonstertrucks
ilikemonster...
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Sep 1, 2007
5:40 pm
77898
We do not get ours covered or reimbursed. I was trying the powder form, but found it very hard to stay mixed. So I found a capsule and that is working fine....
Kerry Tobin
hailey42399
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Sep 1, 2007
5:44 pm
77899
oops... ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour...
nena1294@...
julianna1294
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Sep 1, 2007
6:27 pm
77900
We don't get reimbursed either. We use the powder form but mix it in with Jamie's tube feeding at night. Laurel ************************************** Get a...
Dalsmith@...
dalsmith3
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Sep 1, 2007
7:09 pm
77901
My sons meds all have to be specially compounded to be sugar free. We go through Acton Pharmacy in Acton MA. They ship to us (we live about 2 hours from...
Melissa
melj780
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Sep 1, 2007
7:47 pm
77902
... new AOL at...
ilikemonstertrucks
ilikemonster...
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Sep 1, 2007
9:09 pm
77903
Is it common to have extreme pain w/aspiration pneumonia? I know it's painful, but writhing, crying pain? My mother had an esophagal endoscopy done two days...
francescainboston
francescainb...
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Sep 1, 2007
11:58 pm
77904
Im so ready to be done fighting with my potassium levels. Last week they were 2.9 (moderately low - enough to be considered serious... much lower and its...
ilikemonstertrucks
ilikemonster...
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Sep 2, 2007
12:00 am
77905
Brandon is non verbal and quite young (4.5) but his bouts of aspiration pnemonia proved to be pretty painful... the first one (worst) was awful. Though most...
ilikemonstertrucks
ilikemonster...
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Sep 2, 2007
12:04 am
77906
Have you applied for MA Health yet. When you do they will pick up bills from three months before the application and refund your money. Your child will qualify...
Barbara Couture
brjmlm
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Sep 2, 2007
12:48 am
77907
Ok, SSI is so confusing.. Does anyone truly understand how it works? Hailee gets benefits, and now I am working but im worried that I make to much but without...
melissa Ryan
angelsguardi...
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Sep 2, 2007
1:06 am
77908
My son was born very ill and qualified for MassHealth automatically. Because of his illness I had to quit work, so our income dropped alot. We do get SSI, but...
Melissa
melj780
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Sep 2, 2007
1:06 am
77909
I think there is an income scale on the SSI web site..... We get 730 a month, but because my husband got 5 paychecks for August, our estimated check for...
Melissa
melj780
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Sep 2, 2007
1:11 am
77910
Hi, You may be aware of an upcoming fundraiser called "It Only Takes a Spark" that the Foundation of Molecular Medicine (founding partners Dr. Shoffner, Dr....
ashleydilorenzo
Online Now Send Email
Sep 2, 2007
1:55 am
Messages 77881 - 77910 of 98727   Oldest  |  < Older  |  Newer >  |  Newest
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