I Need your help to vote for my son, Ian, as the cutest 6 year old in our town. I know I'm partial because I'm his mom, but he really is adorable. Our local...
Dave says hi all and that he would like you to have his new cell number 1-646-262-4968 Go onto the julianna's team page for PA walk on september 8th to...
EJ CALL DAVE...LOL HAVE TO GET WORKING ON THAT CHICK FA LA AROUND THE WORLD FOR MITO ************************************** Get a sneak peek of the all-new AOL...
ayeza is brathing from her mouth , her tongue is becoming like a cardboard, very very dry. what should i do. one more thing she cannot see do much more like...
you guys all are the best people on this planet , i dont know what i can do without you all. i am so happy i have you all. although i am fighting like hell...
Ayesha- I don't have much experience in this area, but I thought maybe you could moisten her mouth with a swab or cloth. I have attached a link for a...
erin, i will try to remember to vote daily! i hope he wins. julie ... From: ffwife73 To: Mito@yahoogroups.com Sent: Wednesday, August 01, 2007 5:59 AM ...
Just a thought...maybe some of that spray that helps lubricate the throats of people who snore. If it lubricates the throat surely it would lubricate any...
If you are interested to set up a table in HAMILTON SEPTEMBER FEST FOR EXAMPLE it cost the regular vendors 25.00 if we were only going to do awareness and not...
We are baseball fans and while we were trying to get season tickets to the "Florida Marlins" games I found out that they offer REALLY good seats right behind...
When Anna is really sick, dehydrated and with low blood sugar, her tongue also gets very dry and is like cardboard. We arrive at the hospital like this and...
In a message dated 8/1/2007 6:27:31 PM Eastern Daylight Time, KAFFNEY95 writes: COME OUT AND MEET MIKEY AND HAVE SOME FUN "I have a rare illness, but it does...
Anybody have experience with nonverbal learning disorder (NVLD), dyslexia, CAPD, etc? Katie saw neuropsych who said she has symptoms of NVLD and dyslexia but...
I need advice. My 5 year old son has mito disease and my 3 year old also. My 3 yr old last week starting having staring spells, or absent seizures. Then on...
You have to trust your mommy instincts. If your instincts are saying don't go on this trip then definitely stay home. Some kids bounce back really quickly...
One of my boys has CAPD...It is extremely frustrating for his teachers, his family, and him. At his recent IEP the special ed director told his teachers and...
Hi friends, If anyone needs a laugh, go to YouTube and search for "Race for Ellie"....my brother put up a video of himself getting a pie in the face from a...
Well we finally were able to get the medication for Clay's seizures - see I switched jobs on July 23rd and then there was a major screw up with my old ...
We had testing both Monday and this morning (Wed.) and Zipporrah has given the docs and testers a good picture of what we say at home. This morning the...
Hi guys, Need help here, for a friend. Her daughter has been diagnosed with Cyclical Vomiting Syndrome....her history to the best of my knowledge is that she...
Kris - How is Ellie?? I'm wondering about them trying Gatorade? It sounds like her electrolytes are off during these times. I'm no expert! Just my feeling....
i think zach has a fairly high dose so to me clay's dose seems low. zach is 34-35 Kg (so about 75 pounds - definitely bigger). his dose is either 300 mg...
... Are they using Zofran? There's also tigan, phenergan, etc. Anyway, I know a number of mito patients have CVS. Some people think it's a form of abdominal...
I have thought that our son has CAPD for years! Natalie's neuro actually tested him and he passed without a problem. Well now that we know about the mito...
I think the fact that it is your "mother-in-law" might make it more difficult, but it does sound like your boys don't need any extra "stress" to their systems...
My son Devin has CVS and Mito. He was diagnosed with CVS at 3 years old,
having had his first episode at 13 months. The Mito diagnosis came at age 6.
He is 8...
Kris, I think it's very common. Based off our experience and other stories I've read, I think it is a combination of slow emptying, bloating, constipation,...
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