Hey guys I was trying to access the UMDF site through AoL and it says it doesn't exist. I put in _WWW.UMDF.org_ (http://www.UMDF.org) anyone know what is...
Sue Ann: Hope I can help at least on one location - Akron, Ohio. My husband and I both grew up in North Canton, Ohio, about 20 minutes south of Akron and my...
Thanks to everyone for their thoughts... and Kelly-Ann for all that research too! :) I have written it all down and will ask about it this morning with the...
Kelly- Ann- Thanks for all this.. I have written it all down and will ask the Ped this morning on rounds. I know re: concern about endoscopy not before Monday...
Thanks, Melody... Sorry that you are looking for a PUlse0x.. :) Hugs to Natalie... Lisa ... Melody ... it ... just ... but I ... insight ... fall ... and ... ...
Kelly no your correct we just moved again, so this makes move number 4 since oct. Oct we moved from az to nc to live with mother in law, dec we moved into our...
I have had the same problem this weekend. They've had a few glitches on their site (text overwriting and the like), so I am presuming that the site is down...
We live in Ohio. The waiver is wonderful (never had any trouble getting things covered) but different counties have different lengths for a waiting list. Some...
Thanks. Sue Ann Bube President & Founder of the United Mitochondrial Disease Foundation Indiana Chapter (H) 317.894.9099 (C) 317.250.5409 _____ From:...
... Do you want one that you can leave on all night or one that just spot checks? Using a pulse ox with a finger clip is not really a good option for...
... I believe that there are income requirements on medicaid waiver in KY. Have you googled "home community based medicaid waiver" for each of the states...
Like reflux, vomiting can get worse when laying down. Linae would vomit if she was sitting (not fully extended abdomen) because of the pressure of low trunk...
In that case I would totally think she's stressing about so many changes-ask her, see if she communicates something to that effect....and unfortunatley might...
I was reading the April issue of The Washingtonian (the DC/MD/VA local magazine). They had a very long aeticle about the Marriots (the family that owns the...
I am sorry I worded things poorly. I think there is a part of me that just wanted to believe the intense pain becomes less over time. I think it makes it...
Please check below to make sure you are on the list if you sent an order. You guys have kept me busy. :) We have 25 people. ~Jenna Jenna Kassis Laurie...
we've seen some improvement with z-vibe creating more awarenes and at least cutting down on some of the unintentional tongue biting jenna ... motor, ... mouth ...
I'm so sorry Ainsley is in pain. I think that's the hardest thing to see. Rachel has had times of out of the blue screaming to the point of hyperventolating....
have you tried running her to the peds office when she's like that if that's closer just to have them spot check her oxygen? Nellcor is well known brand. we...
Not sure if taking glucophage while pregnant would play a role in the babys development but if it raises lactic acid (which is high in people with mito anyway)...
This may or may not help but we once had a cat that somehow hurt her backend. We are not sure how as she went out back in the woods often. Anyhow, we had her...
We went thru this with my son when he was about 3 until he was like 6. At first he would do this for like 30 minutes, then it got to be longer. Also though...
Hi Janet thanks for the reply, I don¹t want to put her back in diapers yet because she wouldn¹t understand that, but your nerve comment hit a nerve (lol) it...
This reminded me of what my son used to do and sometimes still does at age 14 when he has a very bad day. Last spring he was not getting up for school....
Cannot help you on all the questions but I know as an adult I have had stroke-like episodes but did not know it at the time. I am sure I have had quite a few....
Hello Melissa, I was just referring to the diapers as the cat did not know when she had to go so would end up going all over the house. Of course she did not...
Have they considered the crying/screaming episodes to be migraines, especially with the virus issues present? It is not uncommon for our kids to scream...
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