Hi Veronica, My daughter Sarah (20 months) does this when she is getting teeth in and it sounds horrible! It has always been temporary though. I've never...
Elicia: Some of this is typical child behavior and some isn't. You may need to see a child psychologist for yourself and your child. That way they can figure...
My daughter has been grinding her teeth for the last year. She's 25 months old now. It drives us crazy, but I've asked everyone from the dentist, pediatrician,...
No they did do a fresh biopsy on the nerve as well. Now they are talking about weaning him off of the cocktail, which scares me as he is doing so well. We...
First thank you for the info, sorry it took me a bit to reply my email is on the fritz right now. Gabe again had the eye sticking thing yesterday. This time...
thanks talked to her geneticist and her record is flagged to get D10 immediately whenever she comes in ebcuase the regular D5/saline IV didn't help jenna ... ...
Hi all... finally got Linae's labs back: she's 3 with hypotonia and fatigue. OK. so I've looked up these online (so I know what H/L means when nurse said it),...
My daughter is followed by a pulm and we began with endocrine last month. She has latic acidosis and ketotic hypoglycemia, along with some other "issues." I...
He could be looking for sensory input too. There are "chewy tubes" and other chewy toys that you could give him to try to distract him. It acts something like...
Sorry Melody: I was rambling and thinking WAY TOO FAST for my fingers to keep up....By "H/L" I meant highs & lows of TSH or Glucose. I'm not sure what...
A good website that I refer to often is _www.labtestonline.org_ (http://www.labtestonline.org) or _www.labtestsonline.org_ (http://www.labtestsonline.org) ,...
Hi Kelly-Ann Get them to include an Inulin blood if there was low Glucose. There could be a number problems that could cause those results.Does he drink and...
Spent most of the day yesterday at DC Childrens with the twins for Cardiology. Cole had an initial appointment and an EKG and ECHO scheduled for 8:30 then...
Sounds like a hectic day! Glad the news is mostly good... I have always gotten petechia from tornequets when i get bloodwork... i too have never had an...
Whos there gi dr at dc childrens? We will be there tommorrow to see Dr. Evans. Have you heard of her? Whos there cardiologist? Do you happen to have a eye dr...
In a message dated 3/1/2007 8:33:42 PM Eastern Standard Time, denisegehrman@... writes: Whos there gi dr at dc childrens? We will be there tommorrow...
I wanted to let you know that Dr. Brian Brooks is a GREAT Genetic Opthamlogist that my son Aidan sees at Children's. We works out of NIH mostly, but has some...
which neuro do you see now? Do you have an appt with gropman yet? Denise ... From: lawblond7@... In a message dated 3/1/2007 8:33:42 PM Eastern Standard...
In a message dated 3/1/2007 10:27:14 PM Eastern Standard Time, denisegehrman@... writes: which neuro do you see now? Do you have an appt with gropman...
Sharon, Well be at DC Children's on the 13th also. Aidan has a NeuroGenetic follow-up appointment at 10am. Maybe we'll see you there :-) Tara & Aidan To:...
Laura: If he is doing well on the cocktail; I'd say keep him on. Right now we are at a stand still with Leah's diagnosis. She is doing so well the metabolic...
HI I can't seem to find your contact info again and wanted to call you! Can you email me off-list when you get a chance! thanks! deborah...mom to four...
I am SO completely frustrated right now! My 5 year old son has been showing physical improvement lately. His physical therapist a few weeks ago said that he...
My son has been acting out at times not hitting but when its time to do something he doesnt want to he throws himself down and doesnt realize or care who he is...
Our appointment is with Dr. Gropman in Neuro at 9am - both Clay and Cole - if you email me off list we can make plans to have lunch or something afterwards if...
I can't believe it, but Asenath is turning seven on Saturday (tomorrow)!!! We plan to just celebrate as a family but you can be sure it is going to be a major...
This is my girls' lives in a nutshell; make gains, lose gains, make gains... We know for our girls that the issue is strokes and temporary inflammation of...
Our trip went well and was pretty basic follow-up and labs neurologically for Asenath, Zipporrah, and Christina. The planned conversation about their FHM...