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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
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Messages 70239 - 70268 of 98721   Oldest  |  < Older  |  Newer >  |  Newest
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70239
Hi Veronica, My daughter Sarah (20 months) does this when she is getting teeth in and it sounds horrible! It has always been temporary though. I've never...
Amy Martin
amartin_72
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Mar 1, 2007
1:55 pm
70240
Elicia: Some of this is typical child behavior and some isn't. You may need to see a child psychologist for yourself and your child. That way they can figure...
LNerenhausen
lisanerenhausen
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Mar 1, 2007
2:01 pm
70241
My daughter has been grinding her teeth for the last year. She's 25 months old now. It drives us crazy, but I've asked everyone from the dentist, pediatrician,...
lauriedd20
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Mar 1, 2007
2:02 pm
70242
No they did do a fresh biopsy on the nerve as well. Now they are talking about weaning him off of the cocktail, which scares me as he is doing so well. We...
colleen
durochwilliam
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Mar 1, 2007
3:21 pm
70243
First thank you for the info, sorry it took me a bit to reply my email is on the fritz right now. Gabe again had the eye sticking thing yesterday. This time...
Heather
m0m0fmany
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Mar 1, 2007
4:44 pm
70244
thanks talked to her geneticist and her record is flagged to get D10 immediately whenever she comes in ebcuase the regular D5/saline IV didn't help jenna ... ...
Jenna
sjkassis503
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Mar 1, 2007
5:03 pm
70245
Hi all... finally got Linae's labs back: she's 3 with hypotonia and fatigue. OK. so I've looked up these online (so I know what H/L means when nurse said it),...
Kelly-Ann
kalars69
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Mar 1, 2007
8:22 pm
70246
My daughter is followed by a pulm and we began with endocrine last month. She has latic acidosis and ketotic hypoglycemia, along with some other "issues." I...
Melody
tallie_dog
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Mar 1, 2007
8:34 pm
70247
He could be looking for sensory input too. There are "chewy tubes" and other chewy toys that you could give him to try to distract him. It acts something like...
Melody
tallie_dog
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Mar 1, 2007
8:41 pm
70248
My son, 3, does this on occassion. We were told its a common response to reflux. You might look into that....
mbarbatodunn
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Mar 1, 2007
8:45 pm
70249
Sorry Melody: I was rambling and thinking WAY TOO FAST for my fingers to keep up....By "H/L" I meant highs & lows of TSH or Glucose. I'm not sure what...
Kelly-Ann
kalars69
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Mar 1, 2007
10:48 pm
70250
A good website that I refer to often is _www.labtestonline.org_ (http://www.labtestonline.org) or _www.labtestsonline.org_ (http://www.labtestsonline.org) ,...
mmich5569@...
mmich5569
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Mar 1, 2007
11:14 pm
70251
Hi Kelly-Ann Get them to include an Inulin blood if there was low Glucose. There could be a number problems that could cause those results.Does he drink and...
Karen Lowery
benjoegeorge
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Mar 1, 2007
11:48 pm
70252
... Based on what they did, you really can't rule out mito. Laura...
Laura
tbnkatie
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Mar 2, 2007
12:06 am
70253
Spent most of the day yesterday at DC Childrens with the twins for Cardiology. Cole had an initial appointment and an EKG and ECHO scheduled for 8:30 then...
lawblond7@...
lawblond7
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Mar 2, 2007
12:47 am
70254
Sounds like a hectic day! Glad the news is mostly good... I have always gotten petechia from tornequets when i get bloodwork... i too have never had an...
ilikemonstertrucks
ilikemonster...
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Mar 2, 2007
1:03 am
70255
Whos there gi dr at dc childrens? We will be there tommorrow to see Dr. Evans. Have you heard of her? Whos there cardiologist? Do you happen to have a eye dr...
denisegehrman@...
emtdas
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Mar 2, 2007
1:32 am
70256
In a message dated 3/1/2007 8:33:42 PM Eastern Standard Time, denisegehrman@... writes: Whos there gi dr at dc childrens? We will be there tommorrow...
lawblond7@...
lawblond7
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Mar 2, 2007
1:39 am
70257
I wanted to let you know that Dr. Brian Brooks is a GREAT Genetic Opthamlogist that my son Aidan sees at Children's. We works out of NIH mostly, but has some...
TARA WYATT
tara10573
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Mar 2, 2007
2:47 am
70258
which neuro do you see now? Do you have an appt with gropman yet? Denise ... From: lawblond7@... In a message dated 3/1/2007 8:33:42 PM Eastern Standard...
denisegehrman@...
emtdas
Offline Send Email
Mar 2, 2007
3:26 am
70259
In a message dated 3/1/2007 10:27:14 PM Eastern Standard Time, denisegehrman@... writes: which neuro do you see now? Do you have an appt with gropman...
lawblond7@...
lawblond7
Offline Send Email
Mar 2, 2007
10:49 am
70260
Sharon, Well be at DC Children's on the 13th also. Aidan has a NeuroGenetic follow-up appointment at 10am. Maybe we'll see you there :-) Tara & Aidan To:...
TARA WYATT
tara10573
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Mar 2, 2007
1:51 pm
70261
Laura: If he is doing well on the cocktail; I'd say keep him on. Right now we are at a stand still with Leah's diagnosis. She is doing so well the metabolic...
LNerenhausen
lisanerenhausen
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Mar 2, 2007
2:18 pm
70262
HI I can't seem to find your contact info again and wanted to call you! Can you email me off-list when you get a chance! thanks! deborah...mom to four...
VisibleWorship@...
worshiponlyhim
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Mar 2, 2007
3:00 pm
70263
I am SO completely frustrated right now! My 5 year old son has been showing physical improvement lately. His physical therapist a few weeks ago said that he...
tracyshedd2003
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Mar 2, 2007
3:07 pm
70264
My son has been acting out at times not hitting but when its time to do something he doesnt want to he throws himself down and doesnt realize or care who he is...
sarah
zalexia27
Online Now Send Email
Mar 2, 2007
3:32 pm
70265
Our appointment is with Dr. Gropman in Neuro at 9am - both Clay and Cole - if you email me off list we can make plans to have lunch or something afterwards if...
lawblond7@...
lawblond7
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Mar 2, 2007
4:05 pm
70266
I can't believe it, but Asenath is turning seven on Saturday (tomorrow)!!! We plan to just celebrate as a family but you can be sure it is going to be a major...
Darla Klein
honeybear50317
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Mar 2, 2007
4:49 pm
70267
This is my girls' lives in a nutshell; make gains, lose gains, make gains... We know for our girls that the issue is strokes and temporary inflammation of...
Darla Klein
honeybear50317
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Mar 2, 2007
4:53 pm
70268
Our trip went well and was pretty basic follow-up and labs neurologically for Asenath, Zipporrah, and Christina. The planned conversation about their FHM...
Darla Klein
honeybear50317
Offline Send Email
Mar 2, 2007
5:42 pm
Messages 70239 - 70268 of 98721   Oldest  |  < Older  |  Newer >  |  Newest
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