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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

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  • Members: 1984
  • Category: Support
  • Founded: Feb 14, 1999
  • Language: English
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Messages 70239 - 70268 of 104812   Oldest  |  < Older  |  Newer >  |  Newest
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70239 Amy Martin
amartin_72 Send Email
Mar 1, 2007
1:55 pm
Hi Veronica, My daughter Sarah (20 months) does this when she is getting teeth in and it sounds horrible! It has always been temporary though. I've never...
70240 LNerenhausen
lisanerenhausen Send Email
Mar 1, 2007
2:01 pm
Elicia: Some of this is typical child behavior and some isn't. You may need to see a child psychologist for yourself and your child. That way they can figure...
70241 lauriedd20 Send Email Mar 1, 2007
2:02 pm
My daughter has been grinding her teeth for the last year. She's 25 months old now. It drives us crazy, but I've asked everyone from the dentist, pediatrician,...
70242 colleen
durochwilliam Send Email
Mar 1, 2007
3:21 pm
No they did do a fresh biopsy on the nerve as well. Now they are talking about weaning him off of the cocktail, which scares me as he is doing so well. We...
70243 Heather
m0m0fmany Send Email
Mar 1, 2007
4:44 pm
First thank you for the info, sorry it took me a bit to reply my email is on the fritz right now. Gabe again had the eye sticking thing yesterday. This time...
70244 Jenna
sjkassis503 Send Email
Mar 1, 2007
5:03 pm
thanks talked to her geneticist and her record is flagged to get D10 immediately whenever she comes in ebcuase the regular D5/saline IV didn't help jenna ... ...
70245 Kelly-Ann
kalars69 Send Email
Mar 1, 2007
8:22 pm
Hi all... finally got Linae's labs back: she's 3 with hypotonia and fatigue. OK. so I've looked up these online (so I know what H/L means when nurse said it),...
70246 Melody
tallie_dog Send Email
Mar 1, 2007
8:34 pm
My daughter is followed by a pulm and we began with endocrine last month. She has latic acidosis and ketotic hypoglycemia, along with some other "issues." I...
70247 Melody
tallie_dog Send Email
Mar 1, 2007
8:41 pm
He could be looking for sensory input too. There are "chewy tubes" and other chewy toys that you could give him to try to distract him. It acts something like...
70248 mbarbatodunn Send Email Mar 1, 2007
8:45 pm
My son, 3, does this on occassion. We were told its a common response to reflux. You might look into that....
70249 Kelly-Ann
kalars69 Send Email
Mar 1, 2007
10:48 pm
Sorry Melody: I was rambling and thinking WAY TOO FAST for my fingers to keep up....By "H/L" I meant highs & lows of TSH or Glucose. I'm not sure what...
70250 mmich5569@...
mmich5569 Send Email
Mar 1, 2007
11:14 pm
A good website that I refer to often is _www.labtestonline.org_ (http://www.labtestonline.org) or _www.labtestsonline.org_ (http://www.labtestsonline.org) ,...
70251 Karen Lowery
benjoegeorge Send Email
Mar 1, 2007
11:48 pm
Hi Kelly-Ann Get them to include an Inulin blood if there was low Glucose. There could be a number problems that could cause those results.Does he drink and...
70252 Laura
tbnkatie Send Email
Mar 2, 2007
12:06 am
... Based on what they did, you really can't rule out mito. Laura...
70253 lawblond7@...
lawblond7 Send Email
Mar 2, 2007
12:47 am
Spent most of the day yesterday at DC Childrens with the twins for Cardiology. Cole had an initial appointment and an EKG and ECHO scheduled for 8:30 then...
70254 ilikemonstertrucks
ilikemonster... Send Email
Mar 2, 2007
1:03 am
Sounds like a hectic day! Glad the news is mostly good... I have always gotten petechia from tornequets when i get bloodwork... i too have never had an...
70255 denisegehrman@...
emtdas Send Email
Mar 2, 2007
1:32 am
Whos there gi dr at dc childrens? We will be there tommorrow to see Dr. Evans. Have you heard of her? Whos there cardiologist? Do you happen to have a eye dr...
70256 lawblond7@...
lawblond7 Send Email
Mar 2, 2007
1:39 am
In a message dated 3/1/2007 8:33:42 PM Eastern Standard Time, denisegehrman@... writes: Whos there gi dr at dc childrens? We will be there tommorrow...
70257 TARA WYATT
tara10573 Send Email
Mar 2, 2007
2:47 am
I wanted to let you know that Dr. Brian Brooks is a GREAT Genetic Opthamlogist that my son Aidan sees at Children's. We works out of NIH mostly, but has some...
70258 denisegehrman@...
emtdas Send Email
Mar 2, 2007
3:26 am
which neuro do you see now? Do you have an appt with gropman yet? Denise ... From: lawblond7@... In a message dated 3/1/2007 8:33:42 PM Eastern Standard...
70259 lawblond7@...
lawblond7 Send Email
Mar 2, 2007
10:49 am
In a message dated 3/1/2007 10:27:14 PM Eastern Standard Time, denisegehrman@... writes: which neuro do you see now? Do you have an appt with gropman...
70260 TARA WYATT
tara10573 Send Email
Mar 2, 2007
1:51 pm
Sharon, Well be at DC Children's on the 13th also. Aidan has a NeuroGenetic follow-up appointment at 10am. Maybe we'll see you there :-) Tara & Aidan To:...
70261 LNerenhausen
lisanerenhausen Send Email
Mar 2, 2007
2:18 pm
Laura: If he is doing well on the cocktail; I'd say keep him on. Right now we are at a stand still with Leah's diagnosis. She is doing so well the metabolic...
70262 VisibleWorship@...
worshiponlyhim Send Email
Mar 2, 2007
3:00 pm
HI I can't seem to find your contact info again and wanted to call you! Can you email me off-list when you get a chance! thanks! deborah...mom to four...
70263 tracyshedd2003 Send Email Mar 2, 2007
3:07 pm
I am SO completely frustrated right now! My 5 year old son has been showing physical improvement lately. His physical therapist a few weeks ago said that he...
70264 sarah
zalexia27 Send Email
Mar 2, 2007
3:32 pm
My son has been acting out at times not hitting but when its time to do something he doesnt want to he throws himself down and doesnt realize or care who he is...
70265 lawblond7@...
lawblond7 Send Email
Mar 2, 2007
4:05 pm
Our appointment is with Dr. Gropman in Neuro at 9am - both Clay and Cole - if you email me off list we can make plans to have lunch or something afterwards if...
70266 Darla Klein
honeybear50317 Send Email
Mar 2, 2007
4:49 pm
I can't believe it, but Asenath is turning seven on Saturday (tomorrow)!!! We plan to just celebrate as a family but you can be sure it is going to be a major...
70267 Darla Klein
honeybear50317 Send Email
Mar 2, 2007
4:53 pm
This is my girls' lives in a nutshell; make gains, lose gains, make gains... We know for our girls that the issue is strokes and temporary inflammation of...
70268 Darla Klein
honeybear50317 Send Email
Mar 2, 2007
5:42 pm
Our trip went well and was pretty basic follow-up and labs neurologically for Asenath, Zipporrah, and Christina. The planned conversation about their FHM...
Messages 70239 - 70268 of 104812   Oldest  |  < Older  |  Newer >  |  Newest
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