Yesterday we took Clay to the new cardiologist at Dc Children's for a second Opinion and at the referral of the hematologist. On a good note Clay's heart ...
68831
Tammy Liddell
mottcrew2002
Feb 1, 2007 11:21 am
When Erik was that little he was be hind also he never walked independently til he was 16 months old, All of the beginning things were delayed sitting...
68832
Tammy Liddell
mottcrew2002
Feb 1, 2007 11:32 am
We have not experianced major seizures but have had what they called silent seizures only a few times.Tammy elicia rivera <riverafamilygeorgia@...>...
68833
Barbara Swoyer
barbswoyer
Feb 1, 2007 12:50 pm
The gtube is such an emotional battle. For many reasons. It took me 6 months to get my arms around the idea, and I cried and cried when we did it. But, like...
68834
Jen Clifton
jcliftondmc
Feb 1, 2007 1:13 pm
Connor has had seizures since he was 10 months old. Maybe you could survey all of the group to get an estimate... Jen -Donny (7) -Mason (5) -Connor (2) Leigh's...
68835
Wendy & Rick
trixie938
Feb 1, 2007 2:12 pm
Nickkie, Ask your PT about Kinesio taping. It was a miracle for my son. He had severe
hypotonia and with the taping we were able to get him to sit, then...
68836
francescainboston
francescainb...
Feb 1, 2007 2:12 pm
Hey, guys, I have seen Pedialyte popsicles in the supermarket or drug store -- Capucine loves them! Also, I have frozen Pediasure into a slush like...
68837
francescainboston
francescainb...
Feb 1, 2007 2:14 pm
Sheryl - Depends upon your appt time and how long it takes, as well as how transportable your kids are. What are their interests? You are right; Boston is a...
68838
francescainboston
francescainb...
Feb 1, 2007 2:19 pm
Veronica, all requests need to be addressed to Millie at nena1294 at aol.com (spelled out version in case yahoo screws it up). In the meantime, I have...
68839
LNerenhausen
lisanerenhausen
Feb 1, 2007 2:24 pm
My daughter, Leah, 8 years old, never has and never will crawl. Her arms just won't be able to support her body. She rolls to get to where ever she needs to...
68840
francescainboston
francescainb...
Feb 1, 2007 2:29 pm
... last week. ... 1/31/2007 3:16 PM...
68841
francescainboston
francescainb...
Feb 1, 2007 2:30 pm
Julie, that's brilliant -- good researcher, you are! I need to post this to another group. Thanks so much for your help. Suz www.mitoaction.org...
68842
Sandra Rowe
rowe_rightch...
Feb 1, 2007 2:39 pm
Our 3 year old daughter has suspected mito and didn't walk until this past summer. She now has leg braces and is almost running! It's huge! Hope this info...
68843
mom2jettandjude
Feb 1, 2007 3:34 pm
Nickkie, Although I have no input, I just wanted to say that is a sweet, SWEET picture of you guys on your site. Julie ... From: nickkie82 To:...
68844
Loriann Melby
LoriannMelby
Feb 1, 2007 3:39 pm
Lucas never really officially learned to crawl. He could roll around or bunny hop to get around. He actually started walking when he was 4 yrs. old. He is...
68845
Jenna
sjkassis503
Feb 1, 2007 3:45 pm
Rachel has had many spells that really looked like seizures (complete with inability to talk afterwards, eye deviation, cyanosis ect) but her 2 EEG's have been...
68846
Gwen
gwenyp
Feb 1, 2007 3:56 pm
Sounds like Autumn is coming along just fine .. with Anna, just one day out of the blue she'll do something new. It was the same with sitting, sitting herself...
68847
LNerenhausen
lisanerenhausen
Feb 1, 2007 4:00 pm
Veronica: Do you have a Easter Seals Program or CP center near you? Some times they have equipment to lend out. I know ours does. Also how old is your...
68848
Tamara Nelson
fairgrovejoe
Feb 1, 2007 4:08 pm
Goodmorning!!! I have seen several of you guys talk about delayed gastric emptying. How do you dx this? The reason I was wondering. I have noticed when Joey...
68849
Wendy & Rick
trixie938
Feb 1, 2007 4:25 pm
I know a lot of kids here have motility issues and gastric emptying problems
With my kids it was diagnosed with a gastric emptying scan. They were in
severe...
68850
Barbara Swoyer
barbswoyer
Feb 1, 2007 4:30 pm
My son didn't walk until 22 months. I remember being a little freaked out, but it all happened in time. Is she in early intervention and does she get PT?...
68851
loerco333
Feb 1, 2007 5:20 pm
Hi Keely, I just wanted to share something I struggle with along this journey. I know how you feel, and I understand how you feel about wanting to delay the...
68852
loerco333
Feb 1, 2007 5:28 pm
Hi Nickkie, Our son Collin was always late to reach his milestones, but still reached them not too far off the chart. I'm not sure if he crawled, one our kids...
68853
sherylsuml
Feb 1, 2007 5:37 pm
Trinity, me and my uncle is going with me to help. Our appt it at 2:00 and our flight is at 7:30. Last time we took the train about two stops down which put us...
68854
amerikooch@...
mitomomof2
Feb 1, 2007 5:39 pm
Hi Keely & group, I am sorry I have not gotten back to anyone, my son who is 21 has severe cyclic vomiting syndrome , severe Postural Orthostatic Tachycardia...
68855
Meagan
tooge01
Feb 1, 2007 6:02 pm
Delayed gastric emptying is diagnosed by doing a gastric emptying scan (a nuclear medicine scan). Keep in mind though that anyone with a "stomach bug" has...
68856
nickkie82
Feb 1, 2007 6:14 pm
I have asked our PT about the taping and she acted offended that I mentioned it. She told me that it only does good on adults and that it wouldn't benefit...
68857
sherylsuml
Feb 1, 2007 6:24 pm
Hi, she's on keppra, which is doing absolutely nothing. We have an appt with neuro in about 3 weeks, I don't think she can go on like this until then. Sheryl ...
68858
Barbara Swoyer
barbswoyer
Feb 1, 2007 6:32 pm
You have a GI order a gastric emptying study, done in radiology It's not a bad test.they have to eat a small amount of food, w/ barium mixed in, then the xray...
68859
Wendy & Rick
trixie938
Feb 1, 2007 6:35 pm
Nickkie, I would absolutely push it. If you are having trouble with the PT
is there any option to change? Is this through and ECI/EI program where you
have a...
