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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
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Messages 68830 - 68859 of 98732   Oldest  |  < Older  |  Newer >  |  Newest
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68830
Yesterday we took Clay to the new cardiologist at Dc Children's for a second Opinion and at the referral of the hematologist. On a good note Clay's heart ...
lawblond7@...
lawblond7
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Feb 1, 2007
9:37 am
68831
When Erik was that little he was be hind also he never walked independently til he was 16 months old, All of the beginning things were delayed sitting...
Tammy Liddell
mottcrew2002
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Feb 1, 2007
11:21 am
68832
We have not experianced major seizures but have had what they called silent seizures only a few times.Tammy elicia rivera <riverafamilygeorgia@...>...
Tammy Liddell
mottcrew2002
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Feb 1, 2007
11:32 am
68833
The gtube is such an emotional battle. For many reasons. It took me 6 months to get my arms around the idea, and I cried and cried when we did it. But, like...
Barbara Swoyer
barbswoyer
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Feb 1, 2007
12:50 pm
68834
Connor has had seizures since he was 10 months old. Maybe you could survey all of the group to get an estimate... Jen -Donny (7) -Mason (5) -Connor (2) Leigh's...
Jen Clifton
jcliftondmc
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Feb 1, 2007
1:13 pm
68835
Nickkie, Ask your PT about Kinesio taping. It was a miracle for my son. He had severe hypotonia and with the taping we were able to get him to sit, then...
Wendy & Rick
trixie938
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Feb 1, 2007
2:12 pm
68836
Hey, guys, I have seen Pedialyte popsicles in the supermarket or drug store -- Capucine loves them! Also, I have frozen Pediasure into a slush like...
francescainboston
francescainb...
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Feb 1, 2007
2:12 pm
68837
Sheryl - Depends upon your appt time and how long it takes, as well as how transportable your kids are. What are their interests? You are right; Boston is a...
francescainboston
francescainb...
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Feb 1, 2007
2:14 pm
68838
Veronica, all requests need to be addressed to Millie at nena1294 at aol.com (spelled out version in case yahoo screws it up). In the meantime, I have...
francescainboston
francescainb...
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Feb 1, 2007
2:19 pm
68839
My daughter, Leah, 8 years old, never has and never will crawl. Her arms just won't be able to support her body. She rolls to get to where ever she needs to...
LNerenhausen
lisanerenhausen
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Feb 1, 2007
2:24 pm
68840
... last week. ... 1/31/2007 3:16 PM...
francescainboston
francescainb...
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Feb 1, 2007
2:29 pm
68841
Julie, that's brilliant -- good researcher, you are! I need to post this to another group. Thanks so much for your help. Suz www.mitoaction.org...
francescainboston
francescainb...
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Feb 1, 2007
2:30 pm
68842
Our 3 year old daughter has suspected mito and didn't walk until this past summer. She now has leg braces and is almost running! It's huge! Hope this info...
Sandra Rowe
rowe_rightch...
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Feb 1, 2007
2:39 pm
68843
Nickkie, Although I have no input, I just wanted to say that is a sweet, SWEET picture of you guys on your site. Julie ... From: nickkie82 To:...
mom2jettandjude
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Feb 1, 2007
3:34 pm
68844
Lucas never really officially learned to crawl. He could roll around or bunny hop to get around. He actually started walking when he was 4 yrs. old. He is...
Loriann Melby
LoriannMelby
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Feb 1, 2007
3:39 pm
68845
Rachel has had many spells that really looked like seizures (complete with inability to talk afterwards, eye deviation, cyanosis ect) but her 2 EEG's have been...
Jenna
sjkassis503
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Feb 1, 2007
3:45 pm
68846
Sounds like Autumn is coming along just fine .. with Anna, just one day out of the blue she'll do something new. It was the same with sitting, sitting herself...
Gwen
gwenyp
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Feb 1, 2007
3:56 pm
68847
Veronica: Do you have a Easter Seals Program or CP center near you? Some times they have equipment to lend out. I know ours does. Also how old is your...
LNerenhausen
lisanerenhausen
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Feb 1, 2007
4:00 pm
68848
Goodmorning!!! I have seen several of you guys talk about delayed gastric emptying. How do you dx this? The reason I was wondering. I have noticed when Joey...
Tamara Nelson
fairgrovejoe
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Feb 1, 2007
4:08 pm
68849
I know a lot of kids here have motility issues and gastric emptying problems With my kids it was diagnosed with a gastric emptying scan. They were in severe...
Wendy & Rick
trixie938
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Feb 1, 2007
4:25 pm
68850
My son didn't walk until 22 months. I remember being a little freaked out, but it all happened in time. Is she in early intervention and does she get PT?...
Barbara Swoyer
barbswoyer
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Feb 1, 2007
4:30 pm
68851
Hi Keely, I just wanted to share something I struggle with along this journey. I know how you feel, and I understand how you feel about wanting to delay the...
loerco333
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Feb 1, 2007
5:20 pm
68852
Hi Nickkie, Our son Collin was always late to reach his milestones, but still reached them not too far off the chart. I'm not sure if he crawled, one our kids...
loerco333
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Feb 1, 2007
5:28 pm
68853
Trinity, me and my uncle is going with me to help. Our appt it at 2:00 and our flight is at 7:30. Last time we took the train about two stops down which put us...
sherylsuml
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Feb 1, 2007
5:37 pm
68854
Hi Keely & group, I am sorry I have not gotten back to anyone, my son who is 21 has severe cyclic vomiting syndrome , severe Postural Orthostatic Tachycardia...
amerikooch@...
mitomomof2
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Feb 1, 2007
5:39 pm
68855
Delayed gastric emptying is diagnosed by doing a gastric emptying scan (a nuclear medicine scan). Keep in mind though that anyone with a "stomach bug" has...
Meagan
tooge01
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Feb 1, 2007
6:02 pm
68856
I have asked our PT about the taping and she acted offended that I mentioned it. She told me that it only does good on adults and that it wouldn't benefit...
nickkie82
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Feb 1, 2007
6:14 pm
68857
Hi, she's on keppra, which is doing absolutely nothing. We have an appt with neuro in about 3 weeks, I don't think she can go on like this until then. Sheryl ...
sherylsuml
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Feb 1, 2007
6:24 pm
68858
You have a GI order a gastric emptying study, done in radiology It's not a bad test.they have to eat a small amount of food, w/ barium mixed in, then the xray...
Barbara Swoyer
barbswoyer
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Feb 1, 2007
6:32 pm
68859
Nickkie, I would absolutely push it. If you are having trouble with the PT is there any option to change? Is this through and ECI/EI program where you have a...
Wendy & Rick
trixie938
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Feb 1, 2007
6:35 pm
Messages 68830 - 68859 of 98732   Oldest  |  < Older  |  Newer >  |  Newest
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