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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

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Group Information

  • Members: 1984
  • Category: Support
  • Founded: Feb 14, 1999
  • Language: English
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Messages 68830 - 68859 of 104814   Oldest  |  < Older  |  Newer >  |  Newest
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68830 lawblond7@...
lawblond7 Send Email
Feb 1, 2007
9:37 am
Yesterday we took Clay to the new cardiologist at Dc Children's for a second Opinion and at the referral of the hematologist. On a good note Clay's heart ...
68831 Tammy Liddell
mottcrew2002 Send Email
Feb 1, 2007
11:21 am
When Erik was that little he was be hind also he never walked independently til he was 16 months old, All of the beginning things were delayed sitting...
68832 Tammy Liddell
mottcrew2002 Send Email
Feb 1, 2007
11:32 am
We have not experianced major seizures but have had what they called silent seizures only a few times.Tammy elicia rivera <riverafamilygeorgia@...>...
68833 Barbara Swoyer
barbswoyer Send Email
Feb 1, 2007
12:50 pm
The gtube is such an emotional battle. For many reasons. It took me 6 months to get my arms around the idea, and I cried and cried when we did it. But, like...
68834 Jen Clifton
jcliftondmc Send Email
Feb 1, 2007
1:13 pm
Connor has had seizures since he was 10 months old. Maybe you could survey all of the group to get an estimate... Jen -Donny (7) -Mason (5) -Connor (2) Leigh's...
68835 Wendy & Rick
trixie938 Send Email
Feb 1, 2007
2:12 pm
Nickkie, Ask your PT about Kinesio taping. It was a miracle for my son. He had severe hypotonia and with the taping we were able to get him to sit, then...
68836 francescainboston
francescainb... Send Email
Feb 1, 2007
2:12 pm
Hey, guys, I have seen Pedialyte popsicles in the supermarket or drug store -- Capucine loves them! Also, I have frozen Pediasure into a slush like...
68837 francescainboston
francescainb... Send Email
Feb 1, 2007
2:14 pm
Sheryl - Depends upon your appt time and how long it takes, as well as how transportable your kids are. What are their interests? You are right; Boston is a...
68838 francescainboston
francescainb... Send Email
Feb 1, 2007
2:19 pm
Veronica, all requests need to be addressed to Millie at nena1294 at aol.com (spelled out version in case yahoo screws it up). In the meantime, I have...
68839 LNerenhausen
lisanerenhausen Send Email
Feb 1, 2007
2:24 pm
My daughter, Leah, 8 years old, never has and never will crawl. Her arms just won't be able to support her body. She rolls to get to where ever she needs to...
68840 francescainboston
francescainb... Send Email
Feb 1, 2007
2:29 pm
... last week. ... 1/31/2007 3:16 PM...
68841 francescainboston
francescainb... Send Email
Feb 1, 2007
2:30 pm
Julie, that's brilliant -- good researcher, you are! I need to post this to another group. Thanks so much for your help. Suz www.mitoaction.org...
68842 Sandra Rowe
rowe_rightch... Send Email
Feb 1, 2007
2:39 pm
Our 3 year old daughter has suspected mito and didn't walk until this past summer. She now has leg braces and is almost running! It's huge! Hope this info...
68843 mom2jettandjude Send Email Feb 1, 2007
3:34 pm
Nickkie, Although I have no input, I just wanted to say that is a sweet, SWEET picture of you guys on your site. Julie ... From: nickkie82 To:...
68844 Loriann Melby
LoriannMelby Send Email
Feb 1, 2007
3:39 pm
Lucas never really officially learned to crawl. He could roll around or bunny hop to get around. He actually started walking when he was 4 yrs. old. He is...
68845 Jenna
sjkassis503 Send Email
Feb 1, 2007
3:45 pm
Rachel has had many spells that really looked like seizures (complete with inability to talk afterwards, eye deviation, cyanosis ect) but her 2 EEG's have been...
68846 Gwen
gwenyp Send Email
Feb 1, 2007
3:56 pm
Sounds like Autumn is coming along just fine .. with Anna, just one day out of the blue she'll do something new. It was the same with sitting, sitting herself...
68847 LNerenhausen
lisanerenhausen Send Email
Feb 1, 2007
4:00 pm
Veronica: Do you have a Easter Seals Program or CP center near you? Some times they have equipment to lend out. I know ours does. Also how old is your...
68848 Tamara Nelson
fairgrovejoe Send Email
Feb 1, 2007
4:08 pm
Goodmorning!!! I have seen several of you guys talk about delayed gastric emptying. How do you dx this? The reason I was wondering. I have noticed when Joey...
68849 Wendy & Rick
trixie938 Send Email
Feb 1, 2007
4:25 pm
I know a lot of kids here have motility issues and gastric emptying problems With my kids it was diagnosed with a gastric emptying scan. They were in severe...
68850 Barbara Swoyer
barbswoyer Send Email
Feb 1, 2007
4:30 pm
My son didn't walk until 22 months. I remember being a little freaked out, but it all happened in time. Is she in early intervention and does she get PT?...
68851 loerco333 Send Email Feb 1, 2007
5:20 pm
Hi Keely, I just wanted to share something I struggle with along this journey. I know how you feel, and I understand how you feel about wanting to delay the...
68852 loerco333 Send Email Feb 1, 2007
5:28 pm
Hi Nickkie, Our son Collin was always late to reach his milestones, but still reached them not too far off the chart. I'm not sure if he crawled, one our kids...
68853 sherylsuml Send Email Feb 1, 2007
5:37 pm
Trinity, me and my uncle is going with me to help. Our appt it at 2:00 and our flight is at 7:30. Last time we took the train about two stops down which put us...
68854 amerikooch@...
mitomomof2 Send Email
Feb 1, 2007
5:39 pm
Hi Keely & group, I am sorry I have not gotten back to anyone, my son who is 21 has severe cyclic vomiting syndrome , severe Postural Orthostatic Tachycardia...
68855 Meagan
tooge01 Send Email
Feb 1, 2007
6:02 pm
Delayed gastric emptying is diagnosed by doing a gastric emptying scan (a nuclear medicine scan). Keep in mind though that anyone with a "stomach bug" has...
68856 nickkie82 Send Email Feb 1, 2007
6:14 pm
I have asked our PT about the taping and she acted offended that I mentioned it. She told me that it only does good on adults and that it wouldn't benefit...
68857 sherylsuml Send Email Feb 1, 2007
6:24 pm
Hi, she's on keppra, which is doing absolutely nothing. We have an appt with neuro in about 3 weeks, I don't think she can go on like this until then. Sheryl ...
68858 Barbara Swoyer
barbswoyer Send Email
Feb 1, 2007
6:32 pm
You have a GI order a gastric emptying study, done in radiology It's not a bad test.they have to eat a small amount of food, w/ barium mixed in, then the xray...
68859 Wendy & Rick
trixie938 Send Email
Feb 1, 2007
6:35 pm
Nickkie, I would absolutely push it. If you are having trouble with the PT is there any option to change? Is this through and ECI/EI program where you have a...
Messages 68830 - 68859 of 104814   Oldest  |  < Older  |  Newer >  |  Newest
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