Yesterday we took Clay to the new cardiologist at Dc Children's for a second Opinion and at the referral of the hematologist. On a good note Clay's heart ...
When Erik was that little he was be hind also he never walked independently til he was 16 months old, All of the beginning things were delayed sitting...
The gtube is such an emotional battle. For many reasons. It took me 6 months to get my arms around the idea, and I cried and cried when we did it. But, like...
Connor has had seizures since he was 10 months old. Maybe you could survey all of the group to get an estimate... Jen -Donny (7) -Mason (5) -Connor (2) Leigh's...
Nickkie, Ask your PT about Kinesio taping. It was a miracle for my son. He had severe
hypotonia and with the taping we were able to get him to sit, then...
Sheryl - Depends upon your appt time and how long it takes, as well as how transportable your kids are. What are their interests? You are right; Boston is a...
Veronica, all requests need to be addressed to Millie at nena1294 at aol.com (spelled out version in case yahoo screws it up). In the meantime, I have...
My daughter, Leah, 8 years old, never has and never will crawl. Her arms just won't be able to support her body. She rolls to get to where ever she needs to...
Our 3 year old daughter has suspected mito and didn't walk until this past summer. She now has leg braces and is almost running! It's huge! Hope this info...
Lucas never really officially learned to crawl. He could roll around or bunny hop to get around. He actually started walking when he was 4 yrs. old. He is...
Rachel has had many spells that really looked like seizures (complete with inability to talk afterwards, eye deviation, cyanosis ect) but her 2 EEG's have been...
Sounds like Autumn is coming along just fine .. with Anna, just one day out of the blue she'll do something new. It was the same with sitting, sitting herself...
Veronica: Do you have a Easter Seals Program or CP center near you? Some times they have equipment to lend out. I know ours does. Also how old is your...
Goodmorning!!! I have seen several of you guys talk about delayed gastric emptying. How do you dx this? The reason I was wondering. I have noticed when Joey...
I know a lot of kids here have motility issues and gastric emptying problems
With my kids it was diagnosed with a gastric emptying scan. They were in
severe...
My son didn't walk until 22 months. I remember being a little freaked out, but it all happened in time. Is she in early intervention and does she get PT?...
Hi Keely, I just wanted to share something I struggle with along this journey. I know how you feel, and I understand how you feel about wanting to delay the...
Hi Nickkie, Our son Collin was always late to reach his milestones, but still reached them not too far off the chart. I'm not sure if he crawled, one our kids...
Trinity, me and my uncle is going with me to help. Our appt it at 2:00 and our flight is at 7:30. Last time we took the train about two stops down which put us...
Hi Keely & group, I am sorry I have not gotten back to anyone, my son who is 21 has severe cyclic vomiting syndrome , severe Postural Orthostatic Tachycardia...
Delayed gastric emptying is diagnosed by doing a gastric emptying scan (a nuclear medicine scan). Keep in mind though that anyone with a "stomach bug" has...
I have asked our PT about the taping and she acted offended that I mentioned it. She told me that it only does good on adults and that it wouldn't benefit...
Hi, she's on keppra, which is doing absolutely nothing. We have an appt with neuro in about 3 weeks, I don't think she can go on like this until then. Sheryl ...
You have a GI order a gastric emptying study, done in radiology It's not a bad test.they have to eat a small amount of food, w/ barium mixed in, then the xray...
Nickkie, I would absolutely push it. If you are having trouble with the PT
is there any option to change? Is this through and ECI/EI program where you
have a...
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