Lori, I Have one child with mito (16yrs old) and 2 healthy children 8&9, My sons was caused by a genetic chromosonal translocation, and I am not a carrier but...
When my son Erik is sick he sleeps 14-18 hours straight and when he is awake he is laying on the couch. He is 16 and will tell you that he is just tired and...
Has anyone had their children try ambien for sleep? Thanks, Janice __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo!...
Sheldon was switched to a G-J tube in Sept. I'm having trouble increasing the rate to be able to get enough formula into him. The highest I can run it at is 57...
We tried it for our two year old and the first time we gave it to him he fell asleep with in 15 minutes. BUT he did wake up after two hours and would not go...
Thanks everyone for your wonderful in-put and responses. I truly love the info this group offers and the support. ... has ... he is my ... tested ... chance ...
Its the only medically recognized treatment for mitochondrial disease... Its a combination of vitamins and suppliments that help the mitochondria function at...
To my child . . . . . Just for this morning . . . . . I am going to smile when I see your face and laugh when I feel like crying. Just for this morning . . . ....
Reminder from: Mito Yahoo! Group http://groups.yahoo.com/group/Mito/cal MDA CHAT Monday January 1, 2007 6:00 pm - 7:00 pm (This event repeats every week.) ...
Mito@yahoogroups.com
Jan 1, 2007 11:16 pm
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Hailee could use some prayers, its been awhile since she has been sick, and her little body just dosnt do well even with the simplest of a cold and she is to...
Thank you all for replying...I tried Ellie at 85 today and she did very well. I'm afraid to do it while she is sleeping, but while she was awake it worked...
Hi there, Ellie has been taking melatonin for about 2 1/2 years and it works wonders for her (read: us). We give her three 1mg tablets from GNC...they are...
Hi Melissa: I pray that she can stay out of the hospital; know that I am thinking of you and Hailee during this illness. Thank God for her gtube because that...
Yes, Sheldon does have motility issues. I guess that's probably why he can't tolerate a higher rate. I guess we were hoping that his intestinal motility was...
I'm sorry to hear that Hailee is sick. I hope she gets better soon and doesn't end up in the hospital or having problems from being sick. ... Stacey Fleming ...
I know many chairs (including the one Brandons getting) have been crash tested and approved for use in vehicles, so Im wondering who here uses theirs? How...
Oh Melissa Im so sorry shes getting sick, It's so hard to see them step back when their doing so well. I hope she bounces back fast and manages to avoid the...
Hi I have a child with mito they suspect that is the cause of all of the severe health problems I have had (kidney failure, muscle problems, migrains ,...
Melatonin also works well for Sheldon. It helps him fall asleep and does seem to help him stay asleep for at least a few hours after taking it. ... Stacey...
Sorry to hear Hailee is sick...My Jessica gets the same way when sick. Hailee will be in my thoughts and prayers... Jane www.caringbridge.org/jessicagonzales06...
Lily, age 4, currently has a kidcart and her new whelchair should be here soon. Her Dad has a mini van with a lift, it has the back bench seat but the other...
Dear Teresa, our son Derek also struggles with sleeping at night. Although we didn't try melatonin, we did try a homeopathic spray (prescribed by his...
Could be just about anything because there are so many organs in the area you describe. Hope the doctor is able to halp Becca ... From: elicia rivera To:...
An assortment of medications/vitamins. Seems to be a little different from person to person. My daughter takes coq10,glutamine,riboflavin,etc. You can check...
Keely We have two vans now. When we got the first chair, we had a lift system installed into the back. You loose the back bench. Also, check for height ...
Thank you It puts things into proper perspective Becca ... From: Suzette O'Flynn To: Mito@yahoogroups.com Sent: Monday, January 01, 2007 5:46 PM Subject:...
True has a Carrie Seat and it can be used as a carseat (comes with a tie down or you can use the straps in the car with it), a feeding seat (it has straps on...
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