Laurie - My son was put on Keppra as his only seizure med from Oct 2005 to June 2006, when we added Topamax. We've since tried Lamictal, Prednisone, and Aidan...
siezure hx here too and on melatonin for almost 4yrs. we saw a decrease in seizures when on it...and increase when taking a break. but then my kid never...
have her contact me...tatumcrew at yahoo dot com also, atlanta has a mito yahoogroup for all metro atlanta. its mito_atlanta. we had ours at shoffners and...
Laurie, Our daughter(11) and son(2) each with seizures (Mito complex 1) are on Keppra. We have been through many drugs over the years with little success. It...
Normally I don't cross-post information between the various online forums and E-mail discussion lists. I view them as unique communities of their own with...
Laurie: My son Andrew 5 yrs old has been taking keppra since 2004. He has seizures only at night and has not had an episode after adjusting the dosages for...
We went to Jude's audio yesterday, and she said that his ears still have negative pressure. Is this something to be concerned about? I know mito causes ear...
Our EIP therapist is having to follow the "rules" of First Steps. She claims that the Feds have made some rules about only being able to do therapy in the...
My daughter is on Kepra and since she started we have not had any seizures for over a year now. Marisol Sustache ... From: Laurie <lauraliew@...> To:...
Shelly: Andrew has been the most affected our of the two boys . With a diagnosis of SCAD which is a fatty oxidation disorder but also falls under the mito...
It does. Dr. Boles is our Dr. he feels Sean has a very rare type of Mito, but more Dysautonomia, though the rest of Sean's Drs disagree. They feel it is just...
Laurie, My daughter was 1st put on phenobarb in late '99 for sz. We were in the same boat, no clue she was having sz, until she had an EEG, it was VERY...
Adrian has been on Keppra for about 3 - 4 months (was already on Topamax & Frisium). Once he was stabilised on the full dose, he has been pretty much seizure...
Hi Laurie, My daughter Jenna has been on Keppra since March 2005. She originally started it while on phenobarbital, then was weaned off the phenobarb and went...
I got this at work today and it really made me think!! Get a tissue ready!! Becca Gold Wrapping Paper I received this from a friend who had a choice to make....
Today we finally got Clay into see the hematologist at DC Childrens and I have to say I was very impressed with the doctor. First he was very knowledgeable...
Capucine had low phosphorus in her recent blood test -- ideas, anyone? We both had traces of 3-methyl-glutaconic acid and 2-oxoglutarate as well as lactic acid...
Sharon - Good to know that you were happy with the doctor you saw at Children's since it looks like we'll be going down the mitochondrial or metabolic disorder...
In a message dated 12/1/2006 10:05:36 PM Eastern Standard Time, tara10573@... writes: disorder road and with all Aidan's other docs being at Children's...
Thank you, everyone, for your responses! Somehow it is not quite as scarey when others are experiencing similar troubles in life and health, and are so...
Found this page it seem relevant but does not explain but may give indicators for further searches Dihydrolipoyl dehydrogenase deficiency (lipoamide...
Hi Keely: Alot of what you wrote is accurate - about diagnosis and antibodies and such. So you are understanding celiac disease correctly. I did not know of...
I dunno...but Linae had hearing test this week to and now she has to see a ENT becuse of a pressure issue in BOTH ears. How many specialties are there...should...
Sharon - It is a small world - you work right near my hubby, he works at the Navy Yard. We live up near Baltimore, but Aidan was being seen at Walter Reed...
In a message dated 12/2/2006 8:37:15 AM Eastern Standard Time, tara10573@... writes: It is a small world - you work right near my hubby, he works at the...
... disorder but ours is the opposite of most. We have a protein C and S deficiency making us form clots. our blood is too thick and we over produce...
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