I also have a person who has been trying to post to this site but has been unable. I told him it can take a while and not to get disappointed. Can he be...
I looked at the settings for Mito Group; memebership does not have to be approved (anyone can join), but new member messages do. Just an FYI. Kelly-Ann...
Reminder from the Calendar of Mito http://groups.yahoo.com/group/Mito/cal Weely MDA Chat Summer Schedule Sunday October 1, 2006 9:00 pm - 9:00 pm (This event...
Mito@yahoogroups.com
Oct 1, 2006 7:05 pm
65362
Hi, I went to MDA's site to join for the chats, but it didn't say anything about the one tonight that you mentioned. Am I going to the right place? Please...
Hi, Just when I thought I knew what I was talking about... Recently I posted that Jude had MM, Complex iv. They didn't have enough sample to test 1 and3. So...
Becca, It took me forever to get my first msg posted. I think a month. I think the approver is only able to do new messages once a month, and I have read on...
Julie, The only complication we had was our son could pull his Mickey if he had a good grip on the tube. They should have shown you how to change it out, but...
Why do you think they told us to put 6ml of water in this balloon? And can it be too tight, or do you think it is still just swollen? Thanks, Julie ... From:...
Im glad they found the rest of the samples, sorry bout the extra diagnosis though. Mitochondrial Myopathy is any myopathy caused by defects in mitochondria......
Well thanks. That helps. I have one more question that is haunting me. When we first found out that neuro suspected mito, he said it may have been caused...
Never heard that an infection in the mom could cause mitochondrial disease... never heard of that in any of the reading I've done either....maybe someone else...
AReckling@...
Oct 2, 2006 12:11 pm
65370
J I just wanted to say a couple of things that Keely didn't mention but yes, her info was correct. When Andrew was being diagnosed and I went to the mito ...
anyone have experience with this? Our muscular dystrophy guru has recommended this body suit. He believes that it increases pressure on certain muscle groups...
Hi again! If you don't get an answer from this group, I can, with your permission, post it on the myopathy group b/c I'm pretty sure that some of their kids...
AReckling@...
Oct 2, 2006 3:14 pm
65374
As far as the UTI thing goes, forget it. It was misinformation. Mito is there from conception, nothing anyone does can 'cause' it or prevent it. the egg and...
okay. i don't know why he mentioned that. i will ask the next time i'm in the office i'll ask where he got that from. as far as the complexes go, thanks for...
yes, please!! thanks so much suz ... permission, post it on the myopathy group b/c I'm pretty sure that some of their kids use it. They call it their kids...
Good afternoon, My son has an upper respiratory infection and even before the actual infection was visible, he started with the mental cofusion that he ...
Brandon has a crocodile gait trainer which we LOVE for outdoor trips and trips to the clinic/hospital. Unfortunately it is not useful in our home as its quite...
Hi, Krystena, Capucine used to be like this, and still sometimes is. She was dx with High Functioning Autism a few years ago, and this type of behavior was...
Are you talking about Theratogs, by chance? www.theratogs.com We havn't done them but got really close with Linae's very low muscle tone. Curious to hear more....
Keely, Justin has a posterior walker and he keeps it at school during the school year.I wish I could remember the brand, I will look tomorrow when I pick him...
... From: shawn hughart To: Becca Loscar Sent: Monday, October 02, 2006 6:53 PM Subject: To Mito group Hi everyone, I have been trying for two weeks to post...
Anne, I am very interested in any responses you get on the myopathy group as well (could you email me the link for it? I think it might be somewhere I should...
Don't know if its the same thing, but Leah had a trunk lycra suit that I velcroed around her. It gave her a little more support when she was younger....
Hi all. I don't' post a lot, but was wondering if anyone else's children had developed a lazy eye. We have started noticing it in Andy with his R eye...
Have never seen it. Could it be some sort of sensory comforting thing? Or a sensory stimulation? That's all I can think of...sorry, no help. Could you get an...
Keeley, that was a great explanation...and also, I've never heard of the UTI link. At all. Put that one to rest, I'd say. Barb Swoyer, Jake's mom ... From:...
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