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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
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Messages 58992 - 59021 of 98734   Oldest  |  < Older  |  Newer >  |  Newest
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58992
Karen, I most certainly would repost the photo, but I don't know how! Keely saw the pictures at Alex's webpage www.caringbridge.com/vt/alex I have tried to...
attnymb
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Mar 1, 2006
10:28 am
58993
If for any reason you have a problem getting a convaid and live in Massachusetts, I have one that I would be happy to pass down. It is used, however, still...
ply4willis
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Mar 1, 2006
1:03 pm
58994
Convaids are great, however, if you call National Seating and Mobility (name of the company) they do a "wheelchair assessment" clinic at Healthsouth in...
ply4willis
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Mar 1, 2006
1:06 pm
58995
Hi Everyone Just wanted to send you a quick email to let you know that the Weston, MA UMDF Support group is meeting this evening (March 1st) in the Weston...
ply4willis
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Mar 1, 2006
1:09 pm
58996
Marisol, Is the program that Jackie goes to in Lynn called Blossom St? If that's the one, your right about it being an excellent program. My son turns 18 next...
Lori Bradlee
dodgethestorm9
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Mar 1, 2006
1:36 pm
58997
Hi Kim, Ohhhh, I empathize with you. I hate the flu! I wish I could bring you some chicken soup and watch the kids for you. I thought something you said in...
Joni Holycross
loerco333
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Mar 1, 2006
2:40 pm
58998
The conviad Safari does not offer any upper body support unless you add it. It looks like a tall umbrella stroller. It does have a lapbelt and shoulder straps...
Donna Noble
donnanoble2001
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Mar 1, 2006
2:40 pm
58999
Were in Canada, but Im interested in getting a second opinion on the management of Brandons disorder (complex 1). I really just want to hear from someone...
ilikemonstertrucks
ilikemonster...
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Mar 1, 2006
3:44 pm
59000
Cohen is in Cleaveland and was closed to new pts except for diagnosing so you might need to check on that. Korson is fabulous in my book...and a Cannuk...I...
VisibleWorship@...
worshiponlyhim
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Mar 1, 2006
4:00 pm
59001
yes it is Blossom St. It would be nice to have someone with Mito to compare and share info. Lori Bradlee <dodgethestorm2@...> wrote: Marisol, Is...
Marisol Sustache
OceanandSun
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Mar 1, 2006
6:44 pm
59002
thanks but I don't know how to either :) I'll go to the website below karen h ... From: Mito@yahoogroups.com [mailto:Mito@yahoogroups.com]On Behalf Of attnymb...
Karen Hunt
DanRHunt
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Mar 1, 2006
7:12 pm
59003
I want to take some info on virus avoidance for the IEP and was wondering if anyone had any good articles, doctor's notes, or even an IEP that explains WHY...
Darla Klein
honeybear50317
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Mar 1, 2006
10:08 pm
59004
Can't believe she is almost 6!!! We were thrilled at her turning three, didn't think she would reach four, and then passed five and now almost six! Friday is...
Darla Klein
honeybear50317
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Mar 1, 2006
10:13 pm
59005
Happy Birthday Asenath Now we are both 6 Max...
romori@...
a2stin
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Mar 1, 2006
10:33 pm
59006
WOW!! Happy Birthday Asenath!!! :) Sounds like a fun day for the 6 year old!! Keely www.caringbridge.org/visit/brandonschellenberg ... turning ... now ... ...
ilikemonstertrucks
ilikemonster...
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Mar 1, 2006
10:37 pm
59007
We have two wheelchairs and really like them. They are both Spree XT Tilt-In-Space Wheelchairs from Invacare. You can see a photo of it at ...
Darla Klein
honeybear50317
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Mar 1, 2006
10:55 pm
59008
Sounds awesome! I am sure it was a blast. I can imagine how special she must have felt to be included in everything and to see how everyone was excited at...
Darla Klein
honeybear50317
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Mar 1, 2006
10:57 pm
59009
HAPPY BIRTHDAY, ASENATH! Anne R ... From: Darla Klein <honeybear50317@...> To: Mito <Mito@yahoogroups.com> Sent: Wed, 1 Mar 2006 16:17:31 -0600 Subject:...
AReckling@...
Send Email
Mar 1, 2006
11:00 pm
59010
I think you already got the number but just in case, it is 193035344-8. You can also check out the website at www.joyinaforeignland.com to purchase the book...
Darla Klein
honeybear50317
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Mar 1, 2006
11:01 pm
59011
Darla- It's imperative here that you have two or three doctors write a letter about the necessity of home bound education. Don't try to fool with justifying...
Wendy
iamwendyann
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Mar 1, 2006
11:01 pm
59012
Would love all the info you can offer! Thanks! Darla...
Darla Klein
honeybear50317
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Mar 1, 2006
11:06 pm
59013
Sorry you have been having a rough time. With the calcification of brain tissue, what are all the concerns there? Is it like having a stroke where the brain...
Darla Klein
honeybear50317
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Mar 1, 2006
11:10 pm
59014
How do you keep your small children's glasses on? Joey is only two and he just will NOT keep them on. He immediately takes them off and throw them. one of...
Darla Klein
honeybear50317
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Mar 1, 2006
11:15 pm
59015
Hi everyone, I wanted to share that I will be running in the Boston Marathon on Monday, April 17th. More important than that, however, is that I have an...
kristin murray
kristinmattjack
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Mar 1, 2006
11:53 pm
59016
i dont know what it means i see a neuro on the 16th but it is related to my calcium situation and also chronic hypoparathyroidism can lead to parkinsons and...
sarah
zalexia27
Online Now Send Email
Mar 2, 2006
12:09 am
59017
Hi Kristin, Yea! Congratulations that you are running in the Boston marathon! That is a true dream - I ran one marathon in Denver about 12 years ago and had a...
AReckling@...
Send Email
Mar 2, 2006
12:25 am
59018
Anne, I would PAY TO SEE Kristin bald! LOL... Kristin is such a brave person, and she is an amazing mom to her kids. They are her life. She really means she is...
iluvdizney2
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Mar 2, 2006
12:40 am
59019
HAPPY 6TH BIRTHDAY ASENATH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Another milestone that is reached. We all know how important they are. I hope you all...
kathy boone
scar146trio449
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Mar 2, 2006
12:59 am
59020
Does anyone know how to be reassured the cord wont strangle him? The guy is bringing a different one but tomorrow. i worry about it over night . Sarah ... ...
sarah
zalexia27
Online Now Send Email
Mar 2, 2006
2:21 am
59021
We also used National Seating and Mobility out of Natick. That's where we ordered the stroller. They go up to very large sizes, just FYI. Jake is 75lbs also...
Barbara Swoyer
barbswoyer
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Mar 2, 2006
2:28 am
Messages 58992 - 59021 of 98734   Oldest  |  < Older  |  Newer >  |  Newest
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