Can I relate to you. I can't tell you how many times we would go out or to church andeveryone would hear how bad Caeden is and then they would say oh he looks...
Welcome Sonya. I think you will find as much couragement and helpfulness as I ahve in the past years on here. It's unfortunate that any of us have to be hear,...
... MELAS. ... we also have a defect in complex III and suspected MELAS...what are your sons symptoms? what did his niopsy show to lead them to MELAS? Karen...
Kim we had the stomach bug with the older two a few days ago...not fun! True had just gotten out of the hospital again for severe hypoglycemia and we came ...
Hi all, In the progression of mito disease, is it common (or possible) that the mito begins to effect oral motor function? With Jake, we've been seeing...
Hi Barb With Max we find that depending on her fatigue level there will be more slurring of speech. We have also noticed over time that even we do have no...
I can relate too with Kendall at times we can take her out and everyone looks at us like we are crazy. Saying it doesn't look like she is that bad... but they...
With Kendall she has the same problems at times. One day we can hardly understand anything she says and she is drooling alot and then other days her speech is...
Hi, Barb - I think that some of this can be fatigue related. My kids' articulation gets worse when they are tired or sick or having a bad day; mine does the...
Hello, My son started having similar difficulties at about 1 year of age. He began coughing a lot while being fed and wasn't able to swallow food very well....
Darla - I know that I had to put together a packet for Dr. Shoffner of Emily's labs and history, and did an info sheet for the other kids and myself, and a ...
Darla - Complex partial seizures can be of several types even in the same child. With Emily, the hallmark was still being awake and alert in the beginning ...
Wow, I am reading your description of your little boy and it is SO similar to my little girl who is 17 months old. She also was diagnosed with Complex I and...
Kathleen, Our kids do not tolerate the heat and really struggle with weakness and fatigue. We use a cooling vest as well as other cooling items in the warm...
I am thinking maybe I don't really understand this test. They did MtDNA testing (blood) on Sophie. They told me all was normal. Her muscle biopsy is what...
Hey Kim, I know what you mean about the Yahoo thing. It is messed up. On the anesthesia thing I really think it has to do with the precautions. When Justin had...
Melissa, It sounds like she could be constipated. Is she eating okay? Justin will only go about once a week too if I don;t give him the Miralax on a regular...
Kathleen, I know some families here use the cooling vests, I just keep Justin inside mostly and if we went out last summer I kept a wet washcloth and an ice...
I'm not getting all of the posts either. I didn't realize it until Kim mentioned it, but when I went to the group I saw ones I didn't get. Also from another...
Hi all, I have lots of anxious energy right now so I'm writing... Asher came home from preschool not feeling well. He is running a 102 temp and is throwing up....
AReckling@...
Feb 1, 2006 8:50 pm
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Hi Erin, I think when I posted to you I called you Tia. Please forgive my error, I am just absentminded these days. Our daughter (Collin's twin) is named...
Ann, You and I have been leading parallel lives. Daniel came down with a virus Thursday. Friday-Sun, he had 102 degree temps. was listless, not eating....
Has anyone had any dental/oral hygiene problems with kids dx with Mito? I know dont' always watch my son as closely as we should when he's brushing his teeth,...
Hi all... I'm really hoping someone can help me out here with what to do... Riley had the stomach flu about 3 weeks ago... diarrhea, vomitting, fever... you...
Yes we have. Our daughter (10) had many things done at once (nothing extreme, just a lot at once). This took place at a Children's Hospital under the direction...
Miranda had her Urodynamic testing done Monday. All I can say is I feel so sorry for my poor little girl and I think we are both so done with it all. They did...
Ann So sorry to hear about Asher. I hope you can make it thru this without the hospital and if not, I hope you receive immediate good care. Have you ever asked...
Sounds like dehydration. Will he drink prune juice or eat prunes? Maybe 4 oz of juice and extra water would help. Sorry your doctor is a putz. Do you have a...
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