Darla, Thank you for telling us about this book. It looks like a good one. I
m ordering as soon as I can. Kristine *Ü* ... From: Darla Klein Date: 01/01/06...
We have the same problem but have found a way for us. We have to test urine osmilality. It has to be under 250 to be good. Even when tims electrolytes and SG...
The first Drs we saw about it were the Endocrine Drs and they seem to handle the testing, i assume if it's kidney related they would also have you see a...
Hi, How often did you test his blood sugar to find out that his new average is 125-145? Various times of the day or just in the morning before eating? How...
Hi, I had a child on Conderta and it affected his appetite somewhat but then he ate alot when it wore off so it wasn't a huge issue. However I agree that...
I used to only check when he was symptomatic of hypoglycemia (shaky sweaty etc) but for the past while i have been checking first thing in the morning...
We started my son now 13 just after he turned 10. In Nov 2002 he had a stroke like event where he could not remember names of things--even ketchup and how to...
I've been reading several posts where mom's have said their kids with ADHD are taking risperdal. My 8 yr old is on Concerta and I would like a different med...
Well this is exactly what we are doing with Jake - he is 12, to be 13 in April. He does have mild mito but a lot of other issues including being only 54...
wow do we have the same kid??? the only diff is my son cant gain weight despite our best efforts. 3/24/01 dob hugs :) ... received the ... hard to ... ...
hi, my zoe (12 years old) (pdh deficiency) has SEVERE out-toeing! i cant see how they could turn out any more or how she will be able to walk if they do! her...
Zachs hips did that for along time. he got better w/ therapy. Lexi my unaffected daughter still sits in the w position (low tone) . It took a while and i find...
do boys w/ mito related issues generally have not right looking testicals i noticed when i change him, his one side is higher and smaller than his other and...
I remember from one of your recent posts (I think) that you said Hailee has a swing that fits in the doorway so she can swing inside. Could you post any...
I think its pretty normal... both my sons (one mito one not) are like that... either way I dont think you have to worry about asking your ped questions like...
My son is 3 and started the cocktail a year ago this month. We have seen tremendous improvements, but waited until a diagnosis through muscle biopsy was made....
Risperdal has a lot of dangerous side effects and I don't know how it would work for ADHD. It's not listed as even an off label use in my drug book. There are...
Has she seen an orthopedic surgeon? Brandon has severe intoeing, and I asked our neuro for an orthopedic referral last year. This summer we were told his...
I just noticed this beginning to happen with my son Devin (7yrs old, Complex
I & III). He wears AFOs and he still has this problem. I was going to ask
his PT...
zoe just got the afo's and started pt over the summer but i have been told that the afo's will not change her feet permanently, they just put her feet in the...
Sharon, Your recent post about Jake and this issue is what got my mind going on this. I was shocked when you said that Jake was malnourished and since he...
Sophie had this for quite a while when she first started walking. I was told the same thing by her PT that it was caused by low tone. Now for some reason she...
Laura, Thanks. This was not info that was given on the site checked for info. Laura <tbnkatie@...> wrote: Risperdal has a lot of dangerous side effects...
hi all, i have rx's for coq10 and carnitine from shoffners partner. i forgot to ask if i need to have them compounded or just buy OTC. if compounded, can...
We have one child, non-Mito but with mild CP, that does this and it is a low muscle tone and compensation issue as it helps them to better keep balance. It...
" I was shocked when you said that Jake was malnourished and since he sounds soooo much like Alison I decided I needed to call the doc about her. Her ped had...
Risperdal has a lot of dangerous side effects and I don't know how it would work for ADHD. It's not listed as even an off label use in my drug book. There are...
If your child already uses braces to correct the positioning of his feet then the hips are probably the culprit. Asenath has this issue. We have tried hip...
Thanks Darla. So does that mean we need to do the hip strengthening
exercises the PT gave us (that we should be doing anyway? oops) Kristine *Ü* ... From:...
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