Hi My 10 year old daughter has PDH. She had a lot of cerebral irritability when she was young, possibly due to seizures.I can certainly appreciate the crying!...
Hello Lois! I am still here, but have not been online much this summer due to a massive renovation project here at home. It has been a busy summer! My daughter...
Hi, everybody – We’re going down the shore for the next 12 days, so will be out of touch. I just wanted to thank everyone for their supportive posts. I may...
Thanks for the reply. Sorry it's taken so long to get back to you, I'm pretty overwhelmed these days... The g-tube would be helpful if it could keep him out of...
... What about having an IEP in place--as OHI? That way you may be able to get some things started before you need them. You really can't get acommodations in...
Make sure they check for glycogen sotrage disease.Oru dd 9 is sound slike Ethan with pain , aches etc. She has other issues: motor dyspraxia, on autism ...
I have a dumb question but Im asking it anyway...what is a 504? I know a little about the IEP but have never heard of the 504. Becca ... From: Michelle...
Hi Michelle, Our daughter too has only a 504 plan for her schooling as she does not need the educational part. I think this is the best by far so they do not...
Lois, I read your post a few days ago and just haven't know what to say. It is good that you finally got a diagnosis but gosh it just isn't fair. I really...
We would like to remind you of this upcoming event. Weekly MDA Chats and Special Guest Announcement Date: Monday, August 1, 2005 Time: 9:00PM - 10:00PM EDT...
Mito@yahoogroups.com
Aug 1, 2005 10:02 pm
52961
Stacey, I just wanted to send you guys some prayers. I think of Sheldon often. I totally empathize with difficulty deciding to place a g-tube (or not). Like...
We would like to remind you of this upcoming event. Chat Reminder Date: Monday, August 1, 2005 Time: 9:00PM - 10:00PM EDT (GMT-04:00) The time for MDA Chat is...
Mito@yahoogroups.com
Aug 1, 2005 11:02 pm
52963
I agree... I think that we need to make sure that we include everything into the 504 plan. I have spent so much time just educating the school on her ...
Michelle, I know JUST where you are with this issue! My son is also going into 5th this yr, also not showing dev delay but REALLY gets fatigued during the yr....
... Not necessarily. A friend in Texas has a 504 in place for her deaf child. My daughter has an IEP for Other Health Impaired (OHI). It includes only medical...
Oh my God- We have the same child...She would rather not take meds-not talk about how tired she is- not speak of her fatigue-so no one would know she's...
I'm needing info about Memphis, Tennessee. My husband thinking about transferring with his company Sherwin Williams. We now live outside Orlando, Florida...
WILLIAM A. SAUER JR.
usmc192@...
Aug 2, 2005 1:19 am
52970
Hi Holly i live in Memphis...maybe we can schedule a phone call tomorrow (tuesday night) after 7p CST. There is another mom on here in Memphis too. I have...
Sorry about the scare, Sarah!! So glad you are ok, and know what to watch for now. Donna H. Mom to Craig (8) unspecified mito and Dalton (6) possible mito ......
Dear Keely, I am so, so sorry that you are seeing symptoms in Tyler. Craig has had all sorts of strange movements, from tremors to myoclonic seizures. The...
Hi all, My son is, by one neurologist anyway, suspected of having a mito disorder, despite numerous tests coming up negative. I recently found out that during...
We've been complaining about cognitive decline in Thomas, 16. Nobody has really listened because the child still has normal intelligence. He's having...
Hi Kathyrn, I really don't know much about anesthesia problems, sorry. I read a couple of your posts, though, and wanted to tell you that we are somewhat in...
I'm so happy for you, Seanne, and for Gaby. Glad it went so well! Donna H. Mom to Craig (8) unspecified mito and Dalton (6) possible mito ... to WDW. ... Kids...
Hi Lois, I was out of town for the weekend, but glad to see your first post when I got online. Sad to see your second, though, and find out that Leighann has...
Hi everyone, After two years of waiting for the full genetic studies on Craig's muscle, we are left with no more answers than when we started. They did not...
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