Hi Guys...well it is finally here. We are taking Abby to Georgetown this evening for preadmission for having her tonsils out. Abigail is still in bed sleeping...
Dear Myst, I know the feeling you are talking about, and it is so unsettling and nerveracking. Sometimes it gets so hard to stay strong ALL the time and be...
well I can totally relate because my son seemed to get all his problems in august w/ his health issues. (pneumonias) my daughter is having her tonsils out may...
Karen, I just wanted to chime in about all mito's being terminal or not. It's likely you've already received posts on this subject, but i've been stuck in the...
Sending lots of prayers for you and abby.... Oh do i know how you feel about wanting answers.. Our gentic dr said he probally wouldnt know for sure what hailee...
Picture of the kids w/ our new house Sarah mom to zach 4 ga2, major lung issues , alexis 6, __________________________________________________ Do You Yahoo!? ...
We would like to remind you of this upcoming event. Weely MDA Chat Summer Schedule Date: Sunday, May 1, 2005 Time: 9:00PM EDT (GMT-04:00) We will not have...
Mito@yahoogroups.com
May 1, 2005 7:02 pm
50087
Just read this post and wanted to also say not all mito is a death sentence. My family has MELAS, which is characterized by seizures. My sister was diagnosed...
Dawn, H Pylori is a bacteria (I believe) that lives in our stomachs. It is usually harmless, unless it over grows and causes tiny blister like sores on the ...
My prayers are with you and Abby for a successful surgery and uneventful recovery. Remember being scared for our children is normal. I know how hard it is to...
Saying a silent prayer for Abby and for your entire family. Danielle ... Georgetown ... is ... up ... are ... and ... and ... between ... doing ... they ... ...
We would like to remind you of this upcoming event. Weekly MDA Chats and Special Guest Announcement Date: Monday, May 2, 2005 Time: 9:00PM - 10:00PM EDT...
Mito@yahoogroups.com
May 2, 2005 1:02 am
50092
We would like to remind you of this upcoming event. Chat Reminder Date: Monday, May 2, 2005 Time: 9:00PM - 10:00PM EDT (GMT-04:00) The time for MDA Chat is 9...
Mito@yahoogroups.com
May 2, 2005 1:02 am
50093
I will keep Abby in my prayers. Becca mr_lucy <mr_lucy@...> wrote: Hi Guys...well it is finally here. We are taking Abby to Georgetown this evening for...
Well I made it through the last week. I was on such a roller coaster of emotions. I just started having a lot of questions, and I thank each and everyone of...
Darla, I think that I'd ask the doc about checking Joey out for seizures. It does sound like he could be having them. The thing is that reglan can increase...
... You can't crush Previcid. It won't work that way. It has time release granules and they get destroyed in crushing. Also, children tend to do better if you...
For those of you that have children with seizures, is it possible to have partials seziures start AFTER your child has had grand mals and absence szs? My kid...
I need some research articles for an insurance appeal. I need info about the consequences of untreated metabolic disease. We currently have the diagnosis of ...
Darla, Thanks for your explanation of SLE's. If they don't always show up,on MRI's then how do they dx them ? And would that cause only a problem with his...
Deb, Thanks for validating me,,hating the normal result ! It sounds crazy to not be happy,,but it is so annoying,,,and now we seem to be back at square one ! ...
I don't know of anything specific, sorry. I would try looking up info from your state about there newborn screenings. I remember when I had our newest baby, it...
Hello all, I recieved the hard copy of Molly's sleep study and need some help from those who deal with O2 issues. Her o2 sat were 86%-96% throughout the test...
Dear Roomies- I am currently under a great amount of stress and feel I need a break from the group. My marriage is very strained and spent most of the night...
Karen- Sorry to hear about your little guy, sounds quite painful indeed. I can tell you from experience that it took 5 extra substantial doses to get me almost...
Laura, I saw the suggestion you had for techni-care for g-tube stoma's. I just wondered if would help with drainage from granulation tissue around the g-tube...
Laura, I don't know about research articles for the appeal, but because Sophie has hypotonia as a major symptom of her mito the muscular dystrophy association...
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