Thanks Darla, I would appreciate this. So often when I read your e-mails to others they sound so much like something I could have written about my own two...
I am another mother with a daughter with tachycardia. My daughter is called Amy although Mito has not been confirmed as after a single blood test came back...
My husband is my biggest supporter NOW. It took a few years but now after all the trouble I have had with Dr's, I make him go to the big appts with me..it has...
I have heard that during potty training kids will go a long time without going. They are still getting used to the control of it all. We are having a weird...
I think it is somewhat common with mito. Grace has what is called cough varient asthma. She will go for months at a time with no problems, then will have a bad...
I'm asking that everyone please pray for the mangino family. I do not believe they belong to this site. Spencer went before GOD on March 30th. He was 4 years...
God please give the Mangino family the strenght they need for what they will be dealing with at this time and let them know we are praying for them. Diana...
Ruth, I was just thinking the same thing in my mind. How do we do it and if I tell you your words are the ones I always keep telling people but never myself....
Hi everybody, I'm wondering whether chronic diarrhea could be a mito related problem. Daniel has had very large loose bms for 2 weeks now. No changes in...
Grace had chronic diarrhea when she was a baby. For her she was not absorbing her foods, therefore it just was eliminated as soon as she was feed. This may...
Lori, It sounds like perhaps you child may have the stomach flu, not just a bug. William was fine, attentive and playing yet had diarrhea alone for 2 1/2...
To everyone, I obviously have not posted in a while. I want to thank all of you for your prayers and support while we watched Leanna lose her battle to mito on...
Hi all, Just a brief note to say I will be off the email list starting this weekend until I return from DC and the neurosurgeons visit with Joe. We don't know...
Suhad, You continue to amaze me with your grace even in this such difficult time. As I read your post about Leanna's last days the tears began to fall. You...
Chronic diarrhea can occur in mito. Also food sensitivities and intolerances sometimes develop. My son is allergic to milk, gluten, and soy. Allison...
Frist of all :-) HAPPY BIRTHDAY JOE!!!!! Seven years old. That is how old my Leah will be toward the end of April. No April Fools wishes here. Just full...
Brian Sorensen
sorehead@...
Apr 1, 2005 11:03 pm
48888
Suhad, Your strength amazes and impowers me. I find myself thinking of your family very often. I'm still praying for you. Thank you for the update. Carrie...
Prayers that Joe handles whatever is about to come well. I am praying for him and your family. Also I hope your family has fun with the special birthday...
Suhad, Thank you for sharing. Your strength and courage amaze me. We are all here for you when you need us. Thank you for being a part of this group and...
We received some great news today. Wyatt was accepted for a MAW trip last month. We decided we wanted to go to the Minnesota Twins spring training camp next...
That is AWESOME!!! The MAW trips are fun for the whole family. I felt like a kid at Give Kids the World Village too! Enjoy and take lots of pictures. Post...
Dear Suhad, There is not a day that I don't think of the families that have lost children to this disease, and you have been on my mind so much. I know that...
May you have safe travel and understanding physicians along your path. Happy Birthday Cassandra!!!! Take care, Joni AM L <wisecam@...> wrote:Hi all,...
Congrats! Sounds like a blast! Make sure and take some pictures to share with us. If you (or anyone) doesn't own a digital camera, I HIGHLY suggest you get ...
Zach had a pulmo apt yesterday. The dr. said that they're assuming that zach is either aspirating and that is causing pneumonia or he has ciliary immotility...
Dear Mangino Family: May you know that your blessed son is in the arms of his creator and feels only pure joy and peace. He is swinging on God's swing set...
((((((Suhad))))))), We embrace you and your husband. Tonight as I read "Love is All you Need" to William, my heart imagined you reading to Leanna. I was in...
Hello everyone, Sorry I haven't replied to all the good people who have replied to me in the past. Thank you for your support and suggestions. I have another...
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