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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
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Messages 45626 - 45655 of 98721   Oldest  |  < Older  |  Newer >  |  Newest
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45626
I remember that Grace and Zoe are very close in age. We were told to split the pill in half first, to see if that dose worked. It did not. Now we use the full...
Carrie Jones
allbregra
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Dec 1, 2004
12:49 pm
45627
Last night Molly woke up screaming and acted like she was going to throw up. As she was sitting in bed tons of drool was just pooring out of her mouth. I...
thefourofus03
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Dec 1, 2004
1:40 pm
45628
It sounds like reflux / problem swallowing secretions to me. My daughter has had a lot of it lately at night. I wonder about the screaming too.. My daughters...
Embroidery Journal
sewnstitchnsue
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Dec 1, 2004
2:11 pm
45629
My son is 5 1/2 now so you would think I'd handle the holidays better. But every year around this time I seem to get depressed. My Chris is severely delayed...
nu12002
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Dec 1, 2004
2:51 pm
45630
Nancy, are there any support groups for moms of special needs kids or a UMDF chapter near you?? I think that would really help you- it has me. As you said, it...
Embroidery Journal
sewnstitchnsue
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Dec 1, 2004
2:57 pm
45631
Suzanne, Not sure why. I was told either your kids get it or they don't. One of my 12 year old sons, Kyle finally outgrew it at 8 yrs. of age. He has many...
Loriann Melby
lmelby1000@...
Send Email
Dec 1, 2004
3:32 pm
45632
Nancy, Your not alone in having a hard time during the holidays. My situation is different from yours I lost my son a year and 3 months ago. He had a mito...
LINDA WISEMAN
lm2775
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Dec 1, 2004
3:37 pm
45633
Well....we had a script & Arnett HMO will still not pay for her formula to be covered. Also, she has Children's with Special Heathcare Insurance and they were...
Debbie Vanaman
spongiegirl2001
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Dec 1, 2004
3:41 pm
45634
I received the lab report that I ordered from records release. I know it will be several more months before I receive the dr. report from my son's visit. We...
tkrichards4
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Dec 1, 2004
4:04 pm
45635
That is really sad that the Insurance Company won't pay for the Pediasure. Don't they realize by keeping your child healthy, they avoid further complications...
Darla Klein
honeybear50317
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Dec 1, 2004
4:11 pm
45636
We have had this happen quite a bit with several of our kids and it is usually related to asthma activity. Phlegm production gets much more and it is hard to...
Darla Klein
honeybear50317
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Dec 1, 2004
4:22 pm
45637
Yes, sometimes the holiday season can cause some depression. I think for me it is mostly the extra business that causes extra exhaustion. Also the weather...
Darla Klein
honeybear50317
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Dec 1, 2004
4:35 pm
45638
Andrea, My son, who is 6, has been on Carnitor for over a year now, and has had no side effects. I'm sorry to hear that Jacob is. I hope you can find something...
Kristine
lvwisc
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Dec 1, 2004
5:43 pm
45639
Debbie, You might want to try the feeding group on yahoo. They may have good ideas about getting insurance coverage. I have also heard of several people who...
Laura
tbnkatie
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Dec 1, 2004
5:49 pm
45640
Could you please me on no mail thru Mon. Dec 13th. Thank you. Mom and I will be flying to NY City tom. (thurs Dec 2nd) I will be seeing Dr's at Columbia on...
LILQT4U1984@...
cfsgal18
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Dec 1, 2004
7:29 pm
45641
Nancy It's perfectly natural to feel depressed this time of year. Expectations are high and reality never quite meets those expectations, even for people with...
c k
cyndykayet
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Dec 1, 2004
8:52 pm
45642
For my son, it was because of a food/foods he did not tolerate. Cindy-GA ... From: thefourofus03 To: Mito@yahoogroups.com Sent: Wednesday, December 01, 2004...
Cj
rids7865
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Dec 1, 2004
9:29 pm
45643
Welcome to the group. You have found a very warm and caring group to help you through your families "journey". Our family has 5 children, only one is mito...
Carrie Jones
allbregra
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Dec 1, 2004
9:50 pm
45644
Sheldon often gets croup too, especially when he's coming down with something. (Hope you don't mind me getting in on this conversation.) ... -- ... Stacey...
Stacey Fleming
stace434
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Dec 1, 2004
9:59 pm
45645
Grace will act similar to this when her blood sugar is low. Often she wakes up very shaky, sweaty and very disoriented. She can also upset herself so much that...
Carrie Jones
allbregra
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Dec 1, 2004
10:02 pm
45646
Dear group, I scanned some pics of Jaleigh that we recently took. Thought that you all might like to see them. Love, Debbie :)...
Debbie Vanaman
spongiegirl2001
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Dec 1, 2004
10:11 pm
45647
Dear group, These are of all three of our kids. Love, Debbie...
Debbie Vanaman
spongiegirl2001
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Dec 1, 2004
10:14 pm
45648
Beautiful children! I love seeing pictures of kids in the group. -- ... Stacey Fleming flemings@......
Stacey Fleming
stace434
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Dec 1, 2004
10:26 pm
45649
Debbie: Beautiful pictures!! Kerry ... From: Debbie Vanaman [mailto:djvanaman@...] Sent: Wednesday, December 01, 2004 5:12 PM To:...
Kerry Tobin
hailey42399
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Dec 1, 2004
11:03 pm
45650
Adorable pictures! Thanks for sharing them with us. See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of...
Darla Klein
honeybear50317
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Dec 2, 2004
2:38 am
45651
can some one please tell me how to look at the pictures??? i love looking at pictures, it makes me feel like i can know ya'll better. i dont know much about...
davonne atkins
davonneatkins
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Dec 2, 2004
2:55 am
45652
I'm not sure if this will work for you but I had the same problem at first. From the Yahoo group, click on Edit My Membership. Under Message Format, select...
Stacey Fleming
stace434
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Dec 2, 2004
3:12 am
45653
it didnt work. thank you for taking the time to help. thanks, davonne...
davonne atkins
davonneatkins
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Dec 2, 2004
3:35 am
45654
I got into this conversation late, so I am not sure who posted. I believe someone was having problems getting pediasure covered by insurance. I've never tried...
jacobshoor
Offline Send Email
Dec 2, 2004
4:20 am
45655
Where do you read your e-mails? So you go to yahoo or send it to your aol.com address? Personally all the messages from this group go to my personal msm.com...
Darla Klein
honeybear50317
Offline Send Email
Dec 2, 2004
5:04 am
Messages 45626 - 45655 of 98721   Oldest  |  < Older  |  Newer >  |  Newest
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