Lauren, My daughter has chronic ketosis--it's a high level of ketones in the blood and is a form of acidosis (keto-acidosis). You are right in assuming that...
4532
Hilandgang@xxx.xxx
Nov 1, 1999 2:51 pm
Oh, Sharon-- I understand this heartbreak you are going through. It is so devastating when someone tells us there's something "wrong" with our kid. And in...
4533
Hilandgang@xxx.xxx
Nov 1, 1999 3:08 pm
Lauren, Lexi has always had elevated acylcarnitine levels, in addition to her elevated ketones (intermittent). I wish I knew better how to explain it, but ...
4534
Hilandgang@xxx.xxx
Nov 1, 1999 3:11 pm
Romona, Where can I get a copy of the Dash story--sounds like it would hit the mark for many of us. ruth ps--how ya doin? haven't seen you pst in a few...
4535
Hilandgang@xxx.xxx
Nov 1, 1999 3:29 pm
Hi Lisa, I wanted to try to give you a little insight on a couple of your questions. Carnitine is one of the substances used by the body to break down fats & ...
4536
Hilandgang@xxx.xxx
Nov 1, 1999 3:49 pm
Sorry about the interruption of the last transmission, but my daughter pressed the Escape button, and my mail was sent :( Anyway, I was telling you that many...
4537
Elf808@xxx.xxx
Nov 1, 1999 4:43 pm
... Ruth, ... I'd be glad to furnish the air fare, hotel (or ya can stay here) and show ya around the town a bit :D TTYS Romona...
4538
Steve Fitzgerald
sfitzger@xxxxx.xxxx
Nov 1, 1999 8:31 pm
Ruth, Thanks for the details. Interestingly enough, Alex has elevated acylcarnitine levels but his carnitine levels are normal. There were no ketones in his...
4539
Elf808@xxx.xxx
Nov 1, 1999 5:44 pm
Hi there :) We are doing really well theses days, a few bumps in the road a couple of unexpected twist and the same ole same old... Zach just got his Reverse...
4540
Elf808@xxx.xxx
Nov 1, 1999 6:06 pm
The Dash I read of a man who stood to speak at the funeral of his friend. He referred to the dates on her tombstone from the beginning... to the end. He noted...
4541
Terri Mason
momalboe@xxxxxxx.xxxx
Nov 1, 1999 9:01 pm
Lauren, Before Carl was diagnosed with Leigh's, I was told all of the following by physicians: "He's fine, quit being so paranoid. Optic atrophy of unknown...
4542
Steve Fitzgerald
sfitzger@xxxxx.xxxx
Nov 2, 1999 4:35 am
I talked to Dr. Kelley again tonight and he said that it was very astute of me to find the information burried in my son's lab report about the elevated...
4543
lisa abreu
lisa.abreu@xxxxxxxx.x...
Nov 2, 1999 4:57 am
thanks ruth, I really appreciate your answer. In the meanwhile I am not sure anymore if I belong here. My baby's skin biopsy came back normal, so we are back...
4544
Hilandgang@...
Nov 2, 1999 5:51 pm
Oooh, Romona, Sounds like GREAT fun!! Tell me when and I'm there:) ruth...
4545
Goldenfam4@xxx.xxx
Nov 2, 1999 3:08 pm
In a message dated 11/1/99 9:52:34 AM Eastern Standard Time, Hilandgang@... writes: << Last night was Halloween, and I wanted more than anything to be like...
4546
Mary Lou Micheaels
marilou@xxxxxxx.xxxx
Nov 2, 1999 8:53 pm
Just a little hope for you - Carrie used to freak out too with the whole costume thing - now she wants to wear one year round - I have to hide them. Also, it...
4547
Dalsmith@xxx.xxx
Nov 3, 1999 12:31 am
Our son has recently stopped eating following a 12 day hospitalization for uncontrolled seizures. He started with vomitting and dry heaves while in the ...
4548
William McGarry
vmcgarry@xxxxxx.xxx
Nov 3, 1999 12:53 am
Hello to everyone, I am considering starting a family support group in the province of Ontario. I am looking for anyone on this list who would be interested in...
4549
Jeannine and Curtis S...
sawyer@xxx.xxxx
Nov 3, 1999 3:35 pm
Laurel, Ketosis along can cause anorexia, so I guess that could classify as metabolic. My daughter did something similar with the vomiting when she was...
4550
Steve Zullo
zullo@xxxxx.xxx.xxxx
Nov 3, 1999 4:37 pm
Reminder The 10:30 AM NIA seminar at GRC by Douglas C. Wallace will be available on Mbone and videocast.nih.gov, and the Medical Board Room in Building 10,...
4551
Curtis P. Houllion
houllion@xxxx.xxxx
Nov 4, 1999 5:52 am
... From: Steve Zullo <zullo@...> To: <mitochondrial@onelist.com>; <Mito@onelist.com>; Mito-L <mitochondria-l@...> Sent: Wednesday, November...
4552
Curtis P. Houllion
houllion@xxxx.xxxx
Nov 4, 1999 5:52 am
plytj ... From: Steve Zullo <zullo@...> To: <mitochondrial@onelist.com>; <Mito@onelist.com>; Mito-L <mitochondria-l@...> Sent: Wednesday,...
4553
Dalsmith@xxx.xxx
Nov 4, 1999 12:24 am
In a message dated 11/3/99 10:35:01 AM Eastern Standard Time, sawyer@... writes: Jeannine, I am familiar with the valium as a good friend of mine's son has...
4554
lisa abreu
lisa.abreu@xxxxxxxx.x...
Nov 4, 1999 2:52 am
Laurel: pls ck out digest 263, msg 5 and digest 264, msg 8 regarding intal use for vomiting, my son has been using it for 9 months with excellent results, he...
4555
Jeannine and Curtis S...
sawyer@xxx.xxxx
Nov 4, 1999 2:04 pm
I know this topic has been discussed quite a bit lately, and I thought some of you might be interested to know that the cover of this month's people magazine...
4556
Jeannine and Curtis S...
sawyer@xxx.xxxx
Nov 4, 1999 2:09 pm
Lisa, your posts are coming thru with all this extra stuff around the words... not sure if it's my computer unable to interpret or the settings on yours. It...
4557
Hilandgang@...
Nov 4, 1999 5:36 pm
Lisa, I'm happy to hear that the bio[sy came back normal, and while I hate to rain on your parade, I think there is something else that you should know... ...
4558
Hilandgang@xxx.xxx
Nov 4, 1999 5:38 pm
Christine, Will we EVER learn?!?! :) we are STILL paying for that little outing. Lexi has been the Queen of Seizures all week. yuck ruth...
4559
Shelley .L.
shelley_lev@xxxxxxx.x...
Nov 4, 1999 5:56 pm
There seems to be more coverage on this now...there was also a 20/20 segment on a mom accused for the illness of her little boy...Julie Patrick.She was falsely...
4560
Sue Ellen Picker
bookbinder@xxxxxxxxx....
Nov 4, 1999 8:42 pm
This question of MBP is very interesting and let us all try to think of this way: it hinges on the difference between what the medical profession claims is...
