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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
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Messages 43600 - 43630 of 98720   Oldest  |  < Older  |  Newer >  |  Newest
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43600
Kim, I will pray that Logan doesn't have a whopping headache and that his huge bump heals quickly. Sometimes peeling hands and feet can happen with viral...
alliecat1113
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Sep 1, 2004
9:23 am
43601
We use the Precision monitor which is very easy to use and takes 5 seconds. It also has the feature of checking blood ketones which is great for children who...
Dalsmith@...
dalsmith3
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Sep 1, 2004
10:55 am
43602
thank you for responding...I'm new to group and will introduce myself later on... many thanks, Karen ... From: Dalsmith@... [mailto:Dalsmith@...] Sent:...
Karen Fossett
momtosjnjp
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Sep 1, 2004
11:27 am
43603
www.epic4health.com...
thefourofus03
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Sep 1, 2004
12:18 pm
43604
In a message dated 9/1/2004 12:41:11 AM Central Standard Time, murf2441@... writes: No matter what happens, we will not put him in a home. About that, we...
VisibleWorship@...
worshiponlyhim
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Sep 1, 2004
12:19 pm
43605
My head is still spinning. The neuro we have been taking Chelsea to at Shriner's Hospital in Chicago called last nite. He told us she has the gene mutation for...
jayvelde@...
luna2day
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Sep 1, 2004
12:36 pm
43606
That must have been a surprise, however no matter what the diagnosis is we are all dealing with the same problems- meds, docotors, school, etc. The problems...
gazubich
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Sep 1, 2004
1:54 pm
43607
-Oh, Kristine... (((((((((((((hugs))))))))))))))) I'm sorry about Chelsea's diagnosis. It's so hard hearing anything new. Do you have help at home? Nursing...
heidicoleman2002
heidicoleman...
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Sep 1, 2004
1:56 pm
43608
Peeling hands & feet can be a sign of strep. Cindy-GA Logan has started peeling,on the palms of his hands,and on the bottom of his feet. Kim mom to Meaghan 15...
Cj
rids7865
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Sep 1, 2004
2:06 pm
43609
Welcome to the group. It is a wonderful group of people who have quite a bit of knowledge. You might want to tell us a little bit about your daughter and if...
gazubich
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Sep 1, 2004
2:26 pm
43610
Kristine, You must be in total shock. I have a friend who was going through the whole diagnosis process with me. The doctors had such a hard time diagnosing...
Lori Cutillo
loricutillo
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Sep 1, 2004
2:41 pm
43611
Let's see if I can pull up some old samples. We used to have them on Mitoldies but I'm not sure they are still there. Mito Mouse is symbolic of a study that...
Alice
justagram14
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Sep 1, 2004
3:13 pm
43612
OMGoodness! I am so sorry to hear all of you have it. I provide for daycare services for special needs children in my home, and (my parents are suppose to KNOW...
Mysty Brown
mr_lucy
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Sep 1, 2004
3:31 pm
43613
Dear Kelly, I am so sorry for what you are going through, and yet if it is mito, I am glad you are getting off to an early start with a diagnosis. We searched...
suhad1970@...
suhadhaddad1970
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Sep 1, 2004
4:03 pm
43614
The Atlanta UMDF Support Group is doing a Golf Tournament on Nov. 15 at 11 AM at Stone Mountain Golf Club in Stone Mtn., Georgia. We are currently taking...
Ashley DiLorenzo
ashleydilorenzo
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Sep 1, 2004
4:42 pm
43615
... Love Sarah J...
Sarah Johnson
momme_9901
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Sep 1, 2004
5:02 pm
43617
... Is Rett linked to Mito? I read the info and boy does alot of it sound just like mito.Just curious, Dawn...
thefourofus03
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Sep 1, 2004
5:39 pm
43618
Hi Alice; I'd buy at least 4 but could probably convince at least 10 other family members to support us. Keep us posted. Kelly Kilbride mom to Kirkland Complex...
Kilbride Kelly
kilbridek
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Sep 1, 2004
6:23 pm
43619
Last night, I had a very bad scare. As I was driving back from Tuscaloosa, I saw the interior lights come on. I turned around and saw William had opened up his...
A E
gardn02
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Sep 1, 2004
7:08 pm
43620
I am sure this is quite a shot for you. I hope you are able to get more accurate help for her now that you have a firm diagnosis of Retts. I don't know...
Darla Klein
honeybear50317
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Sep 1, 2004
7:24 pm
43621
Wow! What a scare that must have been! We take so much for granted. We just assume those kind of things will work like they are supposed to. Glad to hear it...
Darla Klein
honeybear50317
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Sep 1, 2004
7:28 pm
43622
Where are you from Kelly? I live in Des Moines, Iowa. I am glad you found this group as it has been the best group I have ever been in. I tried a couple...
Darla Klein
honeybear50317
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Sep 1, 2004
7:37 pm
43623
Go to the umdf.org website and learn tons and also there are many of us that have caringbridge web pages with our personal stories. Ours is at ...
Darla Klein
honeybear50317
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Sep 1, 2004
7:41 pm
43624
The only real problem with the Novocain is if he would have high blood pressure, or a typically fast heartbeat. Dentists typically use a product called ...
albregra@...
allbregra
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Sep 1, 2004
7:48 pm
43625
Welcome to the group. You will find many caring and supportive people here. It is always nice to find a place where you know someone can relate to you. I am...
albregra@...
allbregra
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Sep 1, 2004
8:36 pm
43626
Hi, my daughter uses the Freestyle at home and the Freestyle Flash at school. Both of them use blood from the arm which is not painful at all. It uses so...
lennieismine
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Sep 1, 2004
10:13 pm
43627
Hi!! Joey, my 5 year old son has a unspecific Mito. We have had a terrible time since he has started Kindergarden, in getting him to eat. Breakfast, lunch,...
fairgrovejoe
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Sep 1, 2004
10:45 pm
43628
It could be a stage, but like u said I would hate to be wrong . I would try a few things first before I would try some things. What his teacher does is a good...
sarah
zalexia27
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Sep 2, 2004
12:46 am
43629
I know this is unrelated, but I can not maintain my own calcium. I lack the parathyroid hormone that regulates it through my body. It takes me 2-4 days of no...
sarah
zalexia27
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Sep 2, 2004
12:54 am
43630
... Does he have a favorite food ot two? I would let him eat what he wants as long as he is eating. If he wants pizza for breakfast, cereal for dinner. Any...
thefourofus03
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Sep 2, 2004
12:55 am
Messages 43600 - 43630 of 98720   Oldest  |  < Older  |  Newer >  |  Newest
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