I really do not know too much on this, sorry, but I will try to share what I know from Gracies biopsies. With her it is not too much of defficincies that...
Melissa, Morgan had a normal muscle and skin biopsy. Her liver was found to have the bad mito. I too have signs and symptoms as do my other two. If they...
Hi Melissa: I felt I needed to respond to your email. Leah too has what is called a proliferation of mitochondria cells in her body; meaning too many. And if...
Brian Sorensen
sorehead@...
Jul 1, 2004 3:25 pm
41770
Not to sound ignorant, but what does "crash" mean when you are talking about mito? Lauren ... From: Brian Sorensen [mailto:sorehead@...] Sent: Thursday,...
Hi everyone, I am coming to the experts...Madelaine (7) took a crash back in March following a cold. She had horrible ataxia, irritability, developmental...
Hi- Just my opinion, but my 12 yr old just had one- it was excruciatingly painful for him- and really not worth it for him... they lied and told him & I that...
My son had a NC/EMG last summer. He was a big boy but I could tell it was very painful. Test did reveal large fiber neuropathy, but since there is no ...
i think it has helped with posture and cordination some i wish more but when in PT OT it got worse as they were so tired hippo does not seem to tire them as...
Ditto that! Jenny had no idea she was doing therapy because she was having so much fun. She also had no idea that when she was brushing the horses she was...
THANKS FOR THE REPLY CAN'T WAIT FOR LOGAN TO GO AND TRY IT. I REALLY APPRECIATE ALL THE INPUT JEN Tommie & Lisa Horsley <leehorsley@...> wrote:Ditto...
I am sorry to hear about the trouble she has been having this spring/summer. Concerning the EMG, my 16 year old is scheduled to have one on July 30th and I...
Usually we talk about a Mito crash when our kids become metabolically unstable and can have many different symptoms including increased fatigue, possible...
Hi, In terms of the EMG, if you have to do it, you have to do it, but, if you don't, it's something to avoid. Maybe a 2nd opinion from a neuro who knows about ...
In a message dated 7/1/2004 3:28:05 PM Pacific Standard Time, AReckling@... writes: In terms of the EMG We chose NOT to do this, the MD doctor said she...
Gee I would do anything to ONLY have a 15 dollar co-pay but we have to meet our $4500.00 duct first then pay the next 20% till we meet a certain dollar amount....
I don't know what MDA Clinic you go to but I have never heard of them operating this way. There is no co-pay with the MDA Clinics if you go to the clinic for...
Alice, Children's hospital started charging us for a co-pay this past year. At our last appt. their credit card machine wasn't working, so they billed us. My...
A. C.
beaniex5@...
Jul 2, 2004 2:58 am
41788
I have been planning to ask some questions before doing the test, but have thought since Luke suffers sensory feeling loss that he most likely won't feel much....
I get very upset when I see these hospitals with paid parking lots. Are you sure you can't get something stamped because you are an MDA appointment? I think...
Patty I hear your frustration for sure as we are a family of 3 Mito kids plus myself, so that is 4 Mito people in one family, yet because I work as a teacher...
I got this through the children's hospital, on the site they have pages you can print out and put in a binder, a great way to keep track of all the stuff you...
In a message dated 7/1/2004 10:26:24 PM Eastern Daylight Time, TPAEJJ90@... writes: I've even thought about taking Josh off our insurance plan and tell...
My son Andrew has had two normal muscle biopsies done. The first left about a two inch scar on his thigh that is quite faint. The second is about4 inches long,...
... Especially since it's based on the amount of time you spend there...and who has control over whether the doctors are running late?! Julia -- Mom to: Emilie...
Hi, everyone - My 3 children and I have a netabolic genetics appt. at Hopkins on July 13th. We will be seeing Dr. Stephen Kahler (a DAN doc and geneticist, and...
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